Jump to content
  • Sign Up
jhc

request suggestions

Rate this topic

Recommended Posts

Hello, I have frequent canker sores (roughly comes back every couple of months). Some blood test results are as following.

Component Your Value Standard Range
TISSUE TRANSGLUTAMINASE IgG 0.31 Index <=0.90 Index
Tissue transglutaminase IgA 0.96 Index <=0.90 Index

My doctor said that result is unspecific, and I unlikely have celiac disease, since I do not have other abdominal symptoms. For reference, I do have frequent constipation, excessive gas, frequent canker sore, etc.

Do you think an upper endoscopy is recommended? I am a little hesitate considering the risk of this procedure and the fact that my symptoms are not that bad. I appreciate all suggestions.

 

Share this post


Link to post
Share on other sites
31 minutes ago, jhc said:

Hello, I have frequent canker sores (roughly comes back every couple of months). Some blood test results are as following.

Component Your Value Standard Range
TISSUE TRANSGLUTAMINASE IgG 0.31 Index <=0.90 Index
Tissue transglutaminase IgA 0.96 Index <=0.90 Index

My doctor said that result is unspecific, and I unlikely have celiac disease, since I do not have other abdominal symptoms. For reference, I do have frequent constipation, excessive gas, frequent canker sore, etc.

Do you think an upper endoscopy is recommended? I am a little hesitate considering the risk of this procedure and the fact that my symptoms are not that bad. I appreciate all suggestions.

 

Share this post


Link to post
Share on other sites

Sorry.  Something is wonky with either my connection or celiac.com!

Your results are not specific...borderline.    That is why your PCP should refer you to a GI for further celiac blood tests and a possible endoscopy.  I recognize the lab report form.  Kaiser?  If so, a PCP can not order a full celiac panel.  Only a GI can do so.  Why bother?  Because if you test like me, the TTG tests are always negative.  Request the EMA and the DGPS test via a GI.  

Do not be fooled by a lack of abdominal symptoms.  I was only anemic -- no abdominal issues at all.  Constipation is a symptom.  Your PCP is thinking is just historical Classic celiac disease symptoms.  

Please email your doctor for the referral if you think you might have celiac disease and want a solid answer.  

 

Share this post


Link to post
Share on other sites

Thanks very much Cyclinglady. Yes, it is Kaiser. I doctor said the GI think it is unlikely to be celiac deisease (he did not say how he came to this conclusion), but he would be happy to do an upper endoscopy for me. I did some look up online, this procedure should be low risk. Still feel a little hesitate while reading the potential risks :(.

Share this post


Link to post
Share on other sites

Push for the endoscopy.  My GI said at the initial consult that he didn't think I had celiac but wanted to do the scope to "rule it out"  When he saw me immediately after the endo, while I was still in recovery, he saw enough damage to change his position and sure enough the biopsy came back positive.

Share this post


Link to post
Share on other sites
20 minutes ago, Centime said:

Push for the endoscopy.  My GI said at the initial consult that he didn't think I had celiac but wanted to do the scope to "rule it out"  When he saw me immediately after the endo, while I was still in recovery, he saw enough damage to change his position and sure enough the biopsy came back positive.

I admit, my blood panel was "mildly positive" with only the DPG IGA being the positive, yet I had a Marsh Stage IIIB (pathologist report) though my visual on the endoscopy was fine.  celiac disease can be hard to diagnose, that is for sure.  

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Forum Discussions

    Mistakes can set you back.  Remember, celiac disease is an autoimmune response.  Once triggered, it can go off for days, weeks or months.  Like my family member who has MS.  She would have severe flares that would last for six weeks or mor...
    Apart from a couple of mistakes I’ve been gluten free for a month now.  I still have issues with digestion.  Pain in my abdomen (like there is a blockage ) if I eat a big meal.  Small meals are fine, and I still get excessive wind and nause...
    No I dont take any medicines.
×
×
  • Create New...