Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy on Tuesday

dalek100

Recommended Posts

dalek100 Apprentice
dalek100
Posted

Hi,

I am very sorry to be a big nuisance on here. I am scheduled for an endoscopy on Tuesday and isn't until later in the day. I was wondering if anyone had any advice on whether I should eat a lot of gluten the night before or whether it doesn't matter? 

Thank you for everyone's help on this forum.

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

As long as you have kept gluten in your diet there is no need to consume larger amounts the day before your procedure. You may want to consume your favorite gluten foods, especially if you had positive blood work, but there is no need to go overboard. 

rarchy Apprentice
rarchy
Posted

I has my endoscopy about 6 weeks ago, I didn't make a particular effort to eat more gluten the day before, just the same as what I had been eating, and my biopsy was positive for (partial) villous atrophy, so if its there it will show up.

dalek100 Apprentice
dalek100
Posted
  • Author

Hi,

Thank you for your help. I was just wondering if when you had your endoscopy if they detected it by the camera or was it the biopsies that shown it? Sorry to be a nuisance.

rarchy Apprentice
rarchy
Posted

Hi, no problem! It was the biopsies and as far as I am aware that is normally the case unless you have severe atrophy. Before I went I thought they could tell on the day but the doctor carrying out the procedure said most of the time they can't see. I asked him after if he thought it was celiac and he said "It looks like it probably is but if I hadn't known I was looking for evidence of celiac I wouldn't have said you have it".... So that didn't really answer anything! 

I went gluten free immediately after as you no longer need to eat it (although 6 weeks on and I haven't noticed a huge difference except maybe my digestive issues have improved). 

Are you having sedation? I just went for the normal throat spray (which tasted of bananas and gin!), and it wasn't particularly comfortable but was ok and personally I would do the same again.

RMJ Mentor
RMJ
Posted

My doctor is at a university hospital and has a very good endoscope with great magnification.  She was able to see the blunted villi during the endoscopy, confirmed by the biopsy.

dalek100 Apprentice
dalek100
Posted
  • Author

Hi, 

I am very sorry for being a pain by posting on here again. I was wondering if I could ask for some advice? I had my endoscopy done earlier this evening and the consultant said everything looked normal and said he has taken plenty of D2 biopsies. I was wondering does this mean that Celiac is unlikely now? I am worried in case my problems will never get resolved and the amount of weight loss. Did other people encounter this?

Thank you for all your help,

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jmg Mentor
Jmg
Posted
8 minutes ago, dalek100 said:

I was wondering does this mean that Celiac is unlikely now?

It's impossible to answer this until the biopsy results are available unfortunately. The damage to the villi is too small to see with the naked eye. It's good news however that there's nothing amiss to the naked eye :)

 

  • 2 weeks later...
Victoria1234 Experienced
Victoria1234
Posted
On 5/9/2017 at 2:46 PM, dalek100 said:

Hi, 

I am very sorry for being a pain by posting on here again. I was wondering if I could ask for some advice? I had my endoscopy done earlier this evening and the consultant said everything looked normal and said he has taken plenty of D2 biopsies. I was wondering does this mean that Celiac is unlikely now? I am worried in case my problems will never get resolved and the amount of weight loss. Did other people encounter this?

Thank you for all your help,

 

Have the results come back yet?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,596
    • Most Online (within 30 mins)
      7,748
    Vicki teach
    Newest Member
    Vicki teach
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      I was tested back in 2017 and my TTG-IGA was mildly elevated (an 11 with reference range <4) but my EMA was negative and biopsy was negative. Fast forward to 2 weeks ago where I was like y'know what, I still have so many symptoms and I'm always so sick, I should repeat this, thinking it was not going to be positive.  I also found out through 23 and me that I do have the HLA-DQ2.5 gene so I thought it would be good to repeat given my ongoing symptoms. Well my blood work came back with a ttg-iga level of 152.6 with a reference range of <15 and my EMA was positive and EMA titer was 1:10 with reference range of <1:5. I guess I'm nervous that I'm going to do the biopsy and it's going to be negative again, especially since I also had an endoscopy in 2020, not to look for celiac but just as a regular 5 year thing I do because of all my GI issues, and they didn't see anything then either. I have no idea how long the EMA has been positive but I'm wondering if it's very recent, if the biopsy will show damage and if so, if they'll say well the biopsy is the gold standard so it's not celiac? I of course am doing all the things to convince myself that it isn't real. Do a lot of people go through this? I think because back in 2017 my ttg-iga was elevated but not a huge amount and my EMA was negative and my biopsy was negative, I keep thinking this time it's going to be different. But this time my ttg-iga is 152.6 with reference range <15, and my EMA was positive. BUT, my titer is only 1:10 and I keep reading how most people here had a ttg-iga in the hundreds or thousands, and the EMA titer was much higher. So now I am convinced that it was a false positive and when they do the biopsy it'll be negative.
    • trents
      Found coffee or coffee pods that contain gluten

      By trents · Posted

      Welcome to the forum, @linnylou73! Are you claiming this based on a reaction or based upon actual testing?
    • linnylou73
      Found coffee or coffee pods that contain gluten

      By linnylou73 · Posted

      Sams club membermark columbian coffee is either cross contaminated or the pods contain gluten
    • KimMS
      Helping child go strict gluten-free and concerns about growth/height

      By KimMS · Posted

      Thank you! Very helpful.
    • Scott Adams
      Helping child go strict gluten-free and concerns about growth/height

      By Scott Adams · Posted

      This varies a lot from person to person. I include foods that are not certified gluten-free but are labelled "gluten-free", while super sensitive people only use certified gluten-free. Both types of products have been found to contain gluten, so there are no guarantees either way: It you are in the super sensitive group, eating a whole foods based diet where you prepare everything is the safest bet, but it's also difficult. Eating out is the the most risky, even if a restaurant has a gluten-free menu. I also include items that are naturally gluten-free, for example refried beans, tuna, pasta sauces, salsas, etc., which have a low overall risk of contamination.
×
×
  • Create New...