Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Test your children?

Deades

By Deades
in Coping with Celiac Disease

Recommended Posts

Deades Contributor
Deades
Posted

I was recently and surprisingly diagnosed June 1.  I am in my late 50s and have two children ages 21 and 19.  I understand Celiac is heredity.  I have no physical symptoms which is why I was surprised at the diagnosis.  My kids don't exhibit symptoms either.  I have always been anemic and my kids hemoglobin always was within range.  Do I have my kids get a blood test or not?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

All first degree relatives should be tested every 2 years in the absence of symptoms or immediately if symptoms present. It is hereditary and can present at any age. Make sure they are eating gluten daily for at least 3 months before testing if they have been gluten free. 

 

Welcome to the club you never wanted to be a part of. Check out our Newbie 101 pinned to the top of the Coping section.

cyclinglady Grand Master
cyclinglady
Posted

Better to catch a celiac disease diagnosis early.  Experts do recommend the testing of all first-degree relatives even if asymptomatic and while on a full gluten-containing diet.   I had my kid screened and requested a full panel since I test oddly.  She was also screened for anemia.  That was about three years ago.  We are considering running the panel again, but Not until she is back at school and on a daily diet of gluten (our home is gluten free and she is gluten light in the summer).  

Celiac disease can cause long term issues.  You have osteoporosis besides anemia, right?  I bet you might have some other issues that can resolve on a gluten free diet that you just chocked up to getting old.  Wouldn't be nice to prevent such damage in your kids?  Wish I had known about celiac disease a long time ago!  

Fbmb Rising Star
Fbmb
Posted
On 6/24/2017 at 5:44 PM, Deades said:

I was recently and surprisingly diagnosed June 1.  I am in my late 50s and have two children ages 21 and 19.  I understand Celiac is heredity.  I have no physical symptoms which is why I was surprised at the diagnosis.  My kids don't exhibit symptoms either.  I have always been anemic and my kids hemoglobin always was within range.  Do I have my kids get a blood test or not?

I tested positive in November and immediately had my toddler tested, though he didn't have symptoms (aside from being really little). He has it.

Pegleg84 Collaborator
Pegleg84
Posted

Yes, definitely! The sooner they find out if they have it, the sooner they can heal up and, as cyclinglady said, avoid a lot of potential long term health issues. Also be aware that, with bloodtests, false negatives are more common than false positives. I'd recommend they get a full bloodwork panel done to check for vitamin deficiencies, which could in itself be a sign of malabsorption problems. I had iron anemia as a teenager, which looking back was probably my first Celiac symptom. My mom and my sister both have Celiac as well.

You could also suggest that your parents or any siblings get tested as well.

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,108
    • Most Online (within 30 mins)
      10,442
    MiaPiwo
    Newest Member
    MiaPiwo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Symptoms Dismissed

      By Wheatwacked · Posted

      Chronic fatigue in the producer was the inspiration for the episode but I feel it touches on anyone that suffers and is dismissed as psycosomatic. The patient expressed my feelings elequently.  In episode 2 the doctor explains the problem well. I stopped all commercial milk protein like skim milk added to processed foods and in a few days there was a definate improvement in my  gut, bowel movements, discomfort etc. Still drinking several glasses of Pasture Fed grass fed milk with no negative effects.   Specifically, for myself Clonidine is the only medication that lowers my BP and the doctor did not renew it, insisting that I continue Losartan.  I think that she thinks I am abusing Clonidine and the reason the Losartan doesn't work is because I am non-compliant.  Absolutely not. Surprisingly after a few days withdrawal from the Clonidine my fasting blood sugar has gotten under control.  Fasting blood sugar near normal instead of over 160.  Last few days its been below 100.  I still need Glimiperide.  Without the clonidine my pulse rate is around 100 bpm, with it around 60.   Prescription of angiotensin receptor blockers in celiac disease is associated with persistent symptoms and surrogate markers of malabsorption.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12323722/ Angiotensin receptor blocker-associated enteropathy (ARB-e) is an increasingly recognised clinical entity with symptoms and histological findings identical to coeliac disease (celiac disease). There is evidence to suggest immune-mediated mucosal injury in ARB-e with a high prevalence of DQ2/DQ8; however, as IgA anti-tissue transglutaminase (anti-TTG) is usually negative   https://onlinelibrary.wiley.com/doi/full/10.1002/ueg2.12117 NEW research [Nov 2024] presented at the American College of Gastroenterology (ACG) Annual Scientific Meeting suggests that angiotensin receptor blockers (ARBs), a class of drugs commonly used to manage hypertension, may be associated with poorer outcomes in patients with coeliac disease. Findings indicated that patients taking ARBs had a higher likelihood of experiencing persistent symptoms and markers of poor small bowel healing, such as anaemia and iron deficiency.  https://www.emjreviews.com/en-us/amj/gastroenterology/news/angiotensin-receptor-blockers-may-worsen-coeliac-disease-outcomes/
    • mermaidluver22
      Some inflammation in ileum with celiac?

      By mermaidluver22 · Posted

      @BarcinoHi! I am so sorry abt your son but also relieved to know I am not alone! My ttg iga is still mildly elevated but going down. Last time we checked I had some small erosions in my ileum but recently got an MRE that showed no inflammation. Calpro 70. We are still in limbo but we are taking a conservative approach as well. Please keep me updated about his situation and outcomes! I always love to hear others opinions/experiences especially ibd specialists. 
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • BelleDeJour
      Dermatitis Herpetiformis - follow up dermatology appointment coming up

      By BelleDeJour · Posted

      Oh, thank you all so so much! I have found my people.   ❤️ I am so sorry that we have all suffered with this torturous itching and resulting sore skin. Sue, I can relate to what you wrote about the dark thoughts, I have had them, too. It's very tough and painful.  I have now had a 2 day straight run of only minor itching. I woke up this morning and did not want to get out of bed because it is the first time in months that I have felt comfortable and actually been able to appreciate the lovely feeling of the duvet on my skin, rather than just waking in pain and thinking about where I need to put cream on before I dress for work. If I can continue like this, then I think I could manage without medication but every time I say this, I then have a flare up. I plan to be very careful about what I eat over the weekend and it won't be easy as we are out with friends for dinner on Saturday (the pub do have very good gluten-free options, I checked of course!).  I really, REALLY appreciate your words so much and am so glad to have found this forum. I am going to read the articles kindly posted now, thank you Scott.
    • Scott Adams
      Turkey neck

      By Scott Adams · Posted

      I don’t know how common this is with celiac disease specifically, but significant inflammation, weight changes, aging, genetics, and skin elasticity can all play a role. It may be worth talking with both your doctor and a board-certified dermatologist or plastic surgeon to see what options are realistic, from skin-tightening treatments to surgical approaches, while also making sure there isn’t ongoing inflammation, thyroid imbalance, or nutritional deficiency contributing. You deserve support for both the physical and emotional side of this.
×
×
  • Create New...