Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


  • You've found your Celiac Tribe! Join our like-minded, private community and share your story, get encouragement and connect with others.

    💬

    • Sign In
    • Sign Up
0
Mel31

Gluten challenge for toddler - how long?

Rate this topic

Recommended Posts

Hi everyone,

My 20 month old daughter has anemia and chronic constipation and the pediatrician wants to test for celiac. After the doctor suggested gluten could be the issue we decided to cut it out and see if it makes a difference while we were waiting for the pediatrician appointment.

She was gluten free for a bit over a month and her constipation improved as well as her eczema and she seemed happier. 

The doctor ordered the blood test and said we need to give her gluten for 3-4 weeks but since we started giving her gluten foods again her constipation has come back, she's been really cranky and her eczema has gotten worse again. I don't like seeing her like this and don't want to do another three weeks of this. 

My question is, can we do the test after say 2 weeks back on gluten considering she was only gluten free for a month?

Thanks

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Hi - we did gluten free for 1 month and then back on gluten for 2 weeks and tested. It came back as barely positive. We were referred to a GI and he said we should have waited at least 12 weeks. You could always test at 4 weeks and if it's negative test again in 12? I considered doing that. 

Share this post


Link to post
Share on other sites

Thank you, I think I'm going to wait for another couple of weeks so it's 4 weeks back on gluten. The doctor ordered 3 different tests. I was recently tested and it came back negative but they only did igA and another one.

Share this post


Link to post
Share on other sites
On 28/09/2017 at 1:05 PM, alioubba said:

Make sure you do the whole panel. The ttg IGA isn't as sensitive for kids under 2. I don't have the name of all the tests handy but there should be at least 5. 

Would it be possible to come back negative for a few and only one positive? Is that still considered positive then?

Share this post


Link to post
Share on other sites

You only need one positive on the celiac panel.  Four weeks is iffy despite being gluten free  for just a month.  No problem, you can always retest after continuing on for another two months of gluten.  The issue will be with your doctor or insurance.  You might have to pay out if pocket.  Even if negative, keep in mind testing for someone that young can be hard.  They might not be able to generate enough  antibodies at that age.  

http://www.cureceliacdisease.org/faq/at-what-age-should-children-get-tested-for-celiac-disease/

 

Edited by cyclinglady

Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

Share this post


Link to post
Share on other sites
6 hours ago, cyclinglady said:

You only need one positive on the celiac panel.  Four weeks is iffy despite being gluten free  for just a month.  No problem, you can always retest after continuing on for another two months of gluten.  The issue will be with your doctor or insurance.  You might have to pay out if pocket.  Even if negative, keep in mind testing for someone that young can be hard.  They might not be able to generate enough  antibodies at that age.  

http://www.cureceliacdisease.org/faq/at-what-age-should-children-get-tested-for-celiac-disease/

 

Thank you

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0