Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

I cant stop eating gluten

Ellie Davies

By Ellie Davies
in Meet Up Room

Recommended Posts

Ellie Davies Newbie
Ellie Davies
Posted

Hi, I'm 15 and I was diagnosed with celiac when I was 13. For the first year and a half, I was very good at staying 100% gluten-free other than the occasional slip up with something I didn't know had gluten in it. Recently, however, I have begun to get worse about staying gluten-free. Although I never eat anything huge, sometimes if my friends have cookies or something I will have a bite. Also since my brothers aren't gluten-free there are often a lot of glutenous products around the house that sometimes I'll nibble at. I know I'm not supposed to but because I have never had an awful reaction to it I never feel like that big of a deal. I KNOW its really bad and can give me all sorts of other diseases but when I go to eat it I never think about that stuff. Please help! I really need to stop but I don't know what to do!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
1 minute ago, Ellie Davies said:

Hi, I'm 15 and I was diagnosed with celiac when I was 13. For the first year and a half, I was very good at staying 100% gluten-free other than the occasional slip up with something I didn't know had gluten in it. Recently, however, I have begun to get worse about staying gluten-free. Although I never eat anything huge, sometimes if my friends have cookies or something I will have a bite. Also since my brothers aren't gluten-free there are often a lot of glutenous products around the house that sometimes I'll nibble at. I know I'm not supposed to but because I have never had an awful reaction to it I never feel like that big of a deal. I KNOW its really bad and can give me all sorts of other diseases but when I go to eat it I never think about that stuff. Please help! I really need to stop but I don't know what to do!

Do your parents know?  I think you need to talk with them about getting some counseling for you.  Self-harming behavior is a serious medical/mental health issue.

Link to comment
Share on other sites
Ellie Davies Newbie
Ellie Davies
  • Author
Posted
13 minutes ago, kareng said:

Do your parents know?  I think you need to talk with them about getting some counseling for you.  Self-harming behavior is a serious medical/mental health issue.

 

no, my parent doesn't know. And it's not really a self-harming situation, I'm not doing it because I know it hurts me I'm eating it because I want the glutenous food. It's more of a self-control issue. 

Link to comment
Share on other sites
kareng Grand Master
kareng
Posted
Just now, Ellie Davies said:

 

no, my parent doesn't know. And it's not really a self-harming situation, I'm not doing it because I know it hurts me I'm eating it because I want the glutenous food. It's more of a self-control issue. 

Tell your parents and ask for help.  

Link to comment
Share on other sites
Ennis-TX Grand Master
Ennis-TX
Posted

Keep gluten-free alternatives for treats. They make gluten free everything now days. Enjoy Life has tons of prepackaged gluten-free cookies, udi's, and Ians make pretty much everything else you buy like cheese sticks, chicken nuggets etc in gluten-free versions. heck even some companies make a gluten free version of hot pockets. I composed a decent list, and even where to get stuff or how to get your local grocery store to stock it.

Having a gluten-free alternative that "Kicks" that craving is essential for self control issues. And it is quite self harming that little nibble....will keep doing damage to your insides for weeks. Your antibodies spike that long and take that long to go down. So your doing more damage then your think and this stacks over time. Your lucky you can eat many foods. Most of us do not learn about this disease til much later in life....we have what you would call collateral damage lol. I developed multiple intolerance issues, allergies, and even other disease.  Think about this, I can not eat carbs, no grain, no sugar, no fruit, I can not eat dairy, I am allergic to anything with corn in it, no peanuts. I also lost the ability to digest meats........yeah I eat nuts, seeds, leafy greens, and egg whites. Not my choice either, wish I had known earlier. 

'https://www.celiac.com/forums/topic/119661-gluten-free-food-alternative-list-2017/

 

Link to comment
Share on other sites
HaleyMoon Rookie
HaleyMoon
Posted
On 10/23/2017 at 5:18 PM, Ellie Davies said:

Hi, I'm 15 and I was diagnosed with celiac when I was 13. For the first year and a half, I was very good at staying 100% gluten-free other than the occasional slip up with something I didn't know had gluten in it. Recently, however, I have begun to get worse about staying gluten-free. Although I never eat anything huge, sometimes if my friends have cookies or something I will have a bite. Also since my brothers aren't gluten-free there are often a lot of glutenous products around the house that sometimes I'll nibble at. I know I'm not supposed to but because I have never had an awful reaction to it I never feel like that big of a deal. I KNOW its really bad and can give me all sorts of other diseases but when I go to eat it I never think about that stuff. Please help! I really need to stop but I don't know what to do!

I'm a few years older than you. I have a family member who also eats gluten she's had celaic disease longer than I've been alive. She likes to tell me "oh a bit won't hurt" and I eat gluten here and there" she tells me she gets stomach aches but she ignores them.

i stay away from gluten because last time I ate gluten I ended up in the hospital.

Tell your parents I agree with the other comments don't eat gluten you can get cancer it can cause other problems too. You may not have a reaction now but it's only a matter of time trust me you do not want to throwing up over and over again and have your stomach hurt and all kinds of symptoms. Just because you don't feel it doesn't mean it isn't doing any damage.

Link to comment
Share on other sites
  • 2 months later...
Aisling Eldridge Rookie
Aisling Eldridge
Posted

Honestly I know where you are i have been though a phase  where I didnt really care about it.

what you need to do is think look if I do this I will get ill and this disease can trigger a load of things to happen and it will be painful. And if I carry on doing this to myself eventually I could get cancer and my heart could even stop beating.

thats what you need to tell yourself because trust me you will definitely benefit from not having extra health problems on top of Celiac as it’s hard enough on its own

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


seerwatch77 Apprentice
seerwatch77
Posted

I know how you feel. I have 3 roommates that are not gluten free and like to bake.  We don't share food, so I can't eat their gluteny food unless they offer it to me, which has really helped.

You could try keeping snacks with you so you don't feel as tempted to have some cookie when your friends are. For helping you stay on the diet at home, maybe talk to your parents about your willpower difficulties and see if you can have fewer gluteny products that will tempt you in the house or find gluten free substitutes that you like just as much. For cookies, I've liked glutino's lemon wafers since before I went gluten free.

Link to comment
Share on other sites
  • 2 weeks later...
Isabel Z Rookie
Isabel Z
Posted

I have two suggestions. First try switching to mostly natural gluten free foods. It makes the diet much easier. Second, i know you said you know the consequences, but really think deeply. in some ways, gluten is poison to your intestines. it literally eats away at it! so next time you think about eating gluten, think what you are really putting your body.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,060
    • Most Online (within 30 mins)
      7,748
    Demandcpm
    Newest Member
    Demandcpm
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Zackery Brian
      Gluten and 30 other Items causing me Severe Muscle Inflamation Pain

      By Zackery Brian · Posted

      I'm sorry to hear about the challenges you've been facing with your health. Dealing with celiac disease and multiple food sensitivities can indeed be overwhelming. Here are a few thoughts and suggestions based on your experience and the replies you've received: Confirming Diagnosis: It's great that your gastroenterologist confirmed your celiac disease diagnosis through additional tests. Understanding the specifics of your condition can help tailor your approach to managing it more effectively. Food Sensitivity Testing: While blood tests for food sensitivities can provide some insights, they may not always be completely accurate. As mentioned by others, false positives are common, and individual responses to specific foods can vary. Discussing your test results and symptoms with a healthcare professional knowledgeable about celiac disease and food sensitivities can help clarify your situation. Research and Education: Exploring conditions like Mast Cell Activation Syndrome (MCAS) and histamine intolerance could shed further light on your symptoms and provide additional avenues for managing your health. Gathering information from reliable sources and discussing your findings with your healthcare team can help you make informed decisions about your care. Dietary Management: Managing celiac disease and multiple food sensitivities can be challenging, but finding a balance that works for you is crucial. Working with a dietitian who specializes in celiac disease and food intolerances can help you develop a personalized dietary plan that meets your nutritional needs while minimizing symptoms. Stress Management: Chronic pain and health issues can take a toll on mental and emotional well-being. Finding healthy coping strategies to manage stress, such as mindfulness, relaxation techniques, or engaging in activities you enjoy, may help improve your overall quality of life. Remember, you're not alone in your journey, and seeking support from healthcare professionals, support groups, or online communities can provide valuable encouragement and guidance.
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Joint swelling when ill even on gluten-free diet

      By Moodiefoodie · Posted

      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      Joint swelling when ill even on gluten-free diet

      By knitty kitty · Posted

      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
    • knitty kitty
      Still testing positive after being gluten free for one year ?!!

      By knitty kitty · Posted

      @Shireen32,  Take some deep breaths.  Your labs are fine!  Your tTg IgA is so low!  Well done!  Your endomysial IgA is fine.  There's not a level on the endomysial test.  It's just "yes or no" for if you have celiac disease.   No, it's too early to call it refractory. What are you eating?  Please tell us more than meat and veg. Do you consume dairy? Do you consume processed gluten free foods?   Are you taking any prescription medications, herbal supplements, vitamins and minerals?  
×
×
  • Create New...