Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Are there more bloods to come?


Alfiemama

Recommended Posts

Alfiemama Newbie

Hi I'm new here.

I've been experiencing sharp pain on upper left hand side, floating stools, gas and wind. They have also found out I have macrocytic anemia (high mch and mcv) low ferritin and low vit d ' b12 is normal but still low at 268.

I've been referred to a gastro and my appointment is on the 19th. 

GP order coeliac screen and this has come back but I'm unsure as this doesn't seem to be the full test. 

Can anyone shed any light on this? I've googled and given myself every condition under the sun and getting myself in a tizz.

20180430_102509.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
On 5/3/2018 at 5:52 AM, Alfiemama said:

Hi I'm new here.

I've been experiencing sharp pain on upper left hand side, floating stools, gas and wind. They have also found out I have macrocytic anemia (high mch and mcv) low ferritin and low vit d ' b12 is normal but still low at 268.

I've been referred to a gastro and my appointment is on the 19th. 

GP order coeliac screen and this has come back but I'm unsure as this doesn't seem to be the full test. 

Can anyone shed any light on this? I've googled and given myself every condition under the sun and getting myself in a tizz.

20180430_102509.webp

Wow!  This is different.  Running an IgA (Immunoglobulin A) test prior to a celiac panel when they suspect celiac disease?  Some celiacs are IgA deficient making some of the celiac tests invalid (used as a control test).  Others, like me are very high in IgA which can mean you have other autoimmune issues or illnesses.  If you want to see if you have celiac disease, ask for the entire panel.

I wish you well.  

squirmingitch Veteran

I am assuming they figure your Gastro will run the celiac serum panel. That sure is weird though. A PCP or GP or any doc can order the celiac blood panel so I don't know why they ONLY ran the one checking to see if you are IgA deficient.

Keep eating gluten every day!

Alfiemama Newbie
5 hours ago, cyclinglady said:

Wow!  This is different.  Running an IgA (Immunoglobulin A) test prior to a celiac panel when they suspect celiac disease?  Some celiacs are IgA deficient making some of the celiac tests invalid (used as a control test).  Others, like me are very high in IgA which can mean you have other autoimmune issues or illnesses.  If you want to see if you have celiac disease, ask for the entire panel.

I wish you well.  

Thank you. I rang and spoke to receptionist but she said it said okay. Couldn't see anything that I could. I've been told bloods okay before and they haven't been and clearly flagged. Now I'm waiting until my Dr back in. But receptionist said she couldn't see any bloods outstanding.

 

3 hours ago, squirmingitch said:

I am assuming they figure your Gastro will run the celiac serum panel. That sure is weird though. A PCP or GP or any doc can order the celiac blood panel so I don't know why they ONLY ran the one checking to see if you are IgA deficient.

Keep eating gluten every day!

Thank you, it's very strange and receptionist said no more bloods to come back and it says it's okay. It's strange it's over the range though. 

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442

    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...