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Hello 

I have 6 n half years old. He doesn't have any symptoms of celiac disease . Although he is smaller than his age but growing .I was very ci corned about hai weight n height so his doctor did regular blood work and one of the gluten test came out positive. I took my kid to GI two different ones. They both suggest endoscopy . Now I'm scared and confused reading different views. I do not know how scary is endoscopy. My kid is already not too big so some people said to wait until he gets bigger in weight and age wise. I am very confused how scary is endosocopy along with biopsy ofcourse help

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My biggest regret is that when my son was diagnosed with Celiac disease as an infant 42 years ago, we did not as a family go gluten free. I know that today he would be healthier ( he is in denial and noncompliant), I would not have suffered from the 18 various health complaints not typically related to Celiac I've lived with most of my life that got better with GFD only, and my wife (endometriosis and ovarian cancer), brother and father (both failed to recover from intestinal surgery, stitches wouldn't hold the seal and that resulted in sepsis) would probably still be alive.

1 hour ago, Mbajwa said:

regular blood work and one of the gluten test came out positive.

Do a family GFD and watch your family's health improve. Whatever a biopsy might show, he is still gluten sensitive and the only treatment is GFD. Wheat is a giant industry, so they will spend millions $ and do whatever they can to convince you to eat it.

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2 hours ago, Mbajwa said:

Hello 

I have 6 n half years old. He doesn't have any symptoms of celiac disease . Although he is smaller than his age but growing .I was very ci corned about hai weight n height so his doctor did regular blood work and one of the gluten test came out positive. I took my kid to GI two different ones. They both suggest endoscopy . Now I'm scared and confused reading different views. I do not know how scary is endoscopy. My kid is already not too big so some people said to wait until he gets bigger in weight and age wise. I am very confused how scary is endosocopy along with biopsy ofcourse help

If the endoscope is done right in the hospital there is no trauma what so ever, you do not even notice they did a biopsy. You go in they put you on a IV (this might scare your kid) then when you go in they inject this white stuff into the IV and you get the best sleep of your life, and wake up with everything done with complete loss that time even passed and feel oddly refreshed....I swear less then a hour under on that feels more refreshing then a full night in my bed.

THE WORST part about it will the the prep....they require you to take either 4pills of laxative and a full 8oz container of miralax mixed with 32-64oz oz of Gatorade or a full bottle of magnesium citrate and the miralax Gatorade mix....basically you have to be stuck on the toilet as your bowls empty the day before and not eat anything just liquids up to 2 days prior and the day of.
Your child will never trust Gatorade again.....

Once the testing is done come back here, if positive you can get pointers on cleaning out the house and making it safe for your child. You should also test any other direct blood relatives as this is genetic. Undiagnosed and untreated can lead to other AI disease, Nutrient deficiency related disorders, cancer, lymphoma, or eventual rupturing of the intestines or colon. Kids lucky early diagnosis means he can heal and get back to a normal life sooner....just has to take certain precautions with always bringing his own food and never eating what he is given by others.

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Hi,

The endoscopy is not a big problem.  They usually put the person out during the endoscopy.  They put a 5 foot long, thin tube down the throat and a little way into the small intestine.  The tube (endoscope) can take tiny bits of the lining of the small intestine for the biopsy.  He shouldn't feel anything except he may have a slightly sore throat the next day.  The endoscope usually has a camera so the Dr. can take pictures inside.

There are several blood antibody tests.  The Dr. should do the full celiac disease antibody panel.  It includes deamidated IgA and deamidated IgG and EMA, plus total IgA.  He should keep eating at least some gluten (wheat, rye, or barley) every day until all the testing is done.

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My daughter had the endoscopy when she was ten.   It is a rather simple procedure.   We went to the hospital early in the morning.   They put her out first, which took just a few minutes.   I got to stay with her and held her hands until went to sleep.  Then the procedure itself took about 10-15 minutes.   She came out, and stayed in a bed for an hour or two, then we went home by lunch time.   My daughter went back to school the next day.

You have to fast for the endoscopy.   So, you want to the book the earliest appointment possible.   It is not easy for kids to not eat anything for long periods of time during the day.

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An endoscopy requires fasting after midnight & the next day you get the procedure. Easy procedure as gluten-free-Cheetah Cub explains above. 

 

This is NOT a colonoscopy which would require the laxatives & so forth. A colonoscopy is used for an entirely different reason & is not used for diagnosing celiac disease.

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9 hours ago, Ennis_TX said:

If the endoscope is done right in the hospital there is no trauma what so ever, you do not even notice they did a biopsy. You go in they put you on a IV (this might scare your kid) then when you go in they inject this white stuff into the IV and you get the best sleep of your life, and wake up with everything done with complete loss that time even passed and feel oddly refreshed....I swear less then a hour under on that feels more refreshing then a full night in my bed.

THE WORST part about it will the the prep....they require you to take either 4pills of laxative and a full 8oz container of miralax mixed with 32-64oz oz of Gatorade or a full bottle of magnesium citrate and the miralax Gatorade mix....basically you have to be stuck on the toilet as your bowls empty the day before and not eat anything just liquids up to 2 days prior and the day of.
Your child will never trust Gatorade again.....

Once the testing is done come back here, if positive you can get pointers on cleaning out the house and making it safe for your child. You should also test any other direct blood relatives as this is genetic. Undiagnosed and untreated can lead to other AI disease, Nutrient deficiency related disorders, cancer, lymphoma, or eventual rupturing of the intestines or colon. Kids lucky early diagnosis means he can heal and get back to a normal life sooner....just has to take certain precautions with always bringing his own food and never eating what he is given by others.

Thanks it helped alot

 

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10 hours ago, Wheatwacked said:

My biggest regret is that when my son was diagnosed with Celiac disease as an infant 42 years ago, we did not as a family go gluten free. I know that today he would be healthier ( he is in denial and noncompliant), I would not have suffered from the 18 various health complaints not typically related to Celiac I've lived with most of my life that got better with GFD only, and my wife (endometriosis and ovarian cancer), brother and father (both failed to recover from intestinal surgery, stitches wouldn't hold the seal and that resulted in sepsis) would probably still be alive.

Do a family GFD and watch your family's health improve. Whatever a biopsy might show, he is still gluten sensitive and the only treatment is GFD. Wheat is a giant industry, so they will spend millions $ and do whatever they can to convince you to eat it.

Thankyou

 

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17 hours ago, Ennis_TX said:



THE WORST part about it will the the prep....they require you to take either 4pills of laxative and a full 8oz container of miralax mixed with 32-64oz oz of Gatorade or a full bottle of magnesium citrate and the miralax Gatorade mix....basically you have to be stuck on the toilet as your bowls empty the day before and not eat anything just liquids up to 2 days prior and the day of.
Your child will never trust Gatorade again.....
 

This part is incorrect info. This is info. that only pertains to a colonoscopy. This is not applicable to an endoscopy. For an endoscopy, you only need to fast from midnight the night before. You do NOT have to take laxatives or miralax & clean out your bowels.

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59 minutes ago, squirmingitch said:

This part is incorrect info. This is info. that only pertains to a colonoscopy. This is not applicable to an endoscopy. For an endoscopy, you only need to fast from midnight the night before. You do NOT have to take laxatives or miralax & clean out your bowels.

Hearing this now makes sense.....so unsure if my doctor was just a being A22 or doing it just cause, but he gave me a prep sheet with those instructions for both the endo and the colon scope and I did them separately.

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7 hours ago, Ennis_TX said:

Hearing this now makes sense.....so unsure if my doctor was just a being A22 or doing it just cause, but he gave me a prep sheet with those instructions for both the endo and the colon scope and I did them separately.

Well Ennis, if he did a colonoscopy on you then you did need to go through that prep (ain't fun is it?:o). Maybe he did a colonoscopy? 

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8 hours ago, Ennis_TX said:

Hearing this now makes sense.....so unsure if my doctor was just a being A22 or doing it just cause, but he gave me a prep sheet with those instructions for both the endo and the colon scope and I did them separately.

Your doctor probably ordered both an endoscopy and colonoscopy.  You have both celiac disease and Ulcerative Colitis, right? 

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6 hours ago, cyclinglady said:

Your doctor probably ordered both an endoscopy and colonoscopy.  You have both celiac disease and Ulcerative Colitis, right? 

Yes....and as every one has missed....they were done "Separately" on different days. Did one they followed up with the other, both had a laxative prep.
 

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4 hours ago, Ennis_TX said:

Yes....and as every one has missed....they were done "Separately" on different days. Did one they followed up with the other, both had a laxative prep.
 

I am sorry that you had to go through the prep twice!  That is awful.  Let’s hope it was an honest mistake.  I know the next time I have a colonoscopy, the GI wanted me to do a double prep.  Now, healed from celiac disease, I am not sure that will be necessary.  In any case, I am not looking forward to a another colonoscopy.  

But back to the OP, I have a daughter and would not hesitate to get her a diagnosis (complete with all the necessary testing) if it meant her feeling well.  There is nothing worse (at least in this moment of time that I can recall) than being in diagnostic limboland, which is where most of us started and may still be in. 

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    • I just saw the ear doctor though and he didn't say anything  
    • I was diagnosed with Celiac in July of 2016. 

      I had an endoscopy in April of this year, the damage seemed to be very minimal (On a scale from 0 to 5, five being the worst and 0 being healthy, I was a 1.) and the doctor told me I'm healing.... If I'm still healing...why do I still hurt SO BAD? It doesn't matter what I eat, rice, rice pasta, fruits, vegetables, I'm always in major pain and I'm always EXTREMELY BLOATED, and I spend all day burping and in burning, uncomfortable pain.

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