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Possible celiac?

laneym
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laneym Newbie
laneym
Posted

Hi everyone, 

Basically, I've had all of these symptoms for years but I left them as 'something everyone deals with'.

I've had optical migraines since the 4th grade, had a DH-like rash since 7th grade (I called them my 'stress bumps'), when I was 7 I had the symmetrical white spots 'fixed', I've been told I'm anemic since 4th grade, found that I'm b12 deficient last year (sophomore year of college). 

I recently started getting the digestive symptoms. One day about a month ago at a coffee shop, I ate a bagel then had to sit in the bathroom for 20 minutes because I was scared I would throw up. I went home and slept for hours. After that, I realized that I haven't actually gained 30 lbs, I just bloat. I am quite petite but can bloat to look like I'm 6 months pregnant. It's actually quite impressive. The nausea has been less extreme, but still there. Bloating seems to get worse every time. After that, I cut out gluten for about 1.5 weeks and went camping the following weekend. Over that weekend I forgot and ate gluten. I ended up with terrible stomach pain and a huge headache. My rash went crazy the next few days.

My boyfriend's mom suggested I look into celiac. I always doubt myself and my symptoms - I played competitive soccer on a broken ankle for 3 months - so I am extremely nervous to spend the money on a trip to the doctor. I feel like all of my symptoms could potentially be unrelated, but I don't know if I should write them off. 

Please let me know your thoughts!

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cyclinglady Grand Master
cyclinglady
Posted
(edited)
2 hours ago, laneym said:

Hi everyone, 

Basically, I've had all of these symptoms for years but I left them as 'something everyone deals with'.

I've had optical migraines since the 4th grade, had a DH-like rash since 7th grade (I called them my 'stress bumps'), when I was 7 I had the symmetrical white spots 'fixed', I've been told I'm anemic since 4th grade, found that I'm b12 deficient last year (sophomore year of college). 

I recently started getting the digestive symptoms. One day about a month ago at a coffee shop, I ate a bagel then had to sit in the bathroom for 20 minutes because I was scared I would throw up. I went home and slept for hours. After that, I realized that I haven't actually gained 30 lbs, I just bloat. I am quite petite but can bloat to look like I'm 6 months pregnant. It's actually quite impressive. The nausea has been less extreme, but still there. Bloating seems to get worse every time. After that, I cut out gluten for about 1.5 weeks and went camping the following weekend. Over that weekend I forgot and ate gluten. I ended up with terrible stomach pain and a huge headache. My rash went crazy the next few days.

My boyfriend's mom suggested I look into celiac. I always doubt myself and my symptoms - I played competitive soccer on a broken ankle for 3 months - so I am extremely nervous to spend the money on a trip to the doctor. I feel like all of my symptoms could potentially be unrelated, but I don't know if I should write them off. 

Please let me know your thoughts!

Get tested!  It is an easy blood test.  Learn more:

Open Original Shared Link

Important!  Keep eating gluten or your test results will be negative.  

Edited by cyclinglady
  • 2 weeks later...
laneym Newbie
laneym
Posted
  • Author
On 6/4/2018 at 10:54 PM, cyclinglady said:

Get tested!  It is an easy blood test.  Learn more:

Open Original Shared Link

Important!  Keep eating gluten or your test results will be negative.  

Hi! I actually did get tested and it came back negative. However, I was completely gluten free for about two weeks then reintroduced gluten only two days before the test. It was also ordered and interpreted by my dermatologist. He at first did not even know there was a blood test and had to call a general practitioner friend to ask about it. 

With that in mind, I am worried that the 'negative' may have been false or even not interpreted correctly. 

He also diagnosed me with psoriasis in my scalp without a biopsy, but was confused that it 'presented differently' on my arms/hips/knees. 

I am not sure how to explain my relationship with my body right now, other than that there is something not right. I just would like answers. 

 

cyclinglady Grand Master
cyclinglady
Posted

Did you get a complete celiac blood panel?  It includes the TTG, EMA and DGP (IgA and IgG versions).  You only need one of those tests to be positive.   You should be also tested for an IgA deficiency which is common 8nceliacs and thetest is also used as a control test.     Ask for the lab tests results.  It is your right.  Know that if negative some celiacs are seronegative and that includes those who present with DH.  I am pretty sure you can have concurrent skin issues.  

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