Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?


H.R. 2074: The Gluten in Medicine Disclosure Act of 2019

Rate this topic

Recommended Posts


Please personalize the sample letter pasted below. Email this letter to
your local representative. A state-by-state directory is available at:


Here's a link to the bill:



Sample letter:

H.R. 2074: The Gluten in Medicine Disclosure Act of 2019

Dear [Name of
your representative]:

According to the
Mayo Clinic, the rate of celiac disease has almost quadrupled over the past 50
years. Celiac disease is a serious, genetic autoimmune disorder in which
ingesting gluten causes damage to the villi of the small intestine. It affects
nearly 3 million people in the United States. In comparison, Alzheimer’s
disease affects approximately 2 million people. 

The only
treatment is the total elimination of gluten-containing products, including wheat,
barley, and rye sources. For some, failure to avoid these can lead to
life-threatening complications. Currently, this is nearly impossible to
determine the presence of gluten in prescription medicine. 

In 2004, the
Food Allergen Labeling Consumer Protection Act required packaged food labels to
identify all ingredients containing wheat and other allergens. This requirement
does not extend to prescription drugs. After repeated efforts to shed light on
this issue, the FDA released draft guidance in 2017 encouraging drug
manufacturers to disclose the presence of gluten. While some manufacturers have
taken this step, it has not been implemented consistently. This leads to
anxiety of not knowing whether or not your medicine is causing more harm than

That is why
Representatives Tim Ryan and Tom Cole introduced the Gluten in Medicine
Disclosure Act, which will make it easier to identify gluten in prescription
drugs. This legislation would require drug manufacturers to label medications
intended for human use with the list of ingredients, their source, and whether
gluten is present. A gluten-containing drug that does not meet these
requirements would be considered misbranded under Section 502 of the Federal
Food, Drug, and Cosmetic Act. This labeling will allow concerned consumers to
know, for example, if the starch in their prescription drugs comes from wheat
or corn. For the nearly 3 million Americans living with celiac disease, that
small distinction is an important one. 

Please join other
members in cosponsoring this important piece of legislation to make it easier
and safer for individuals with celiac disease or gluten sensitivity to make
informed purchases of needed medications. 

For more information or to cosponsor, please contact Rachel Jenkins (rachel.jenkins@mail.house.gov) in Congressman Ryan’s Office or Shane Hand (shane.hand@mail.house.gov) in Congressman Cole’s Office. 



Share this post

Link to post
Share on other sites

I did this a few days ago.  Thanks for posting.  

Please write your rep today!!!!


Share this post

Link to post
Share on other sites

Thanks cyclinglady! I emailed mine 2 weeks ago but re-emailed again yesterday b/c he had not yet signed on & he's a DOCTOR! I will keep after him until he does. We need to keep on top of this & hound them about it. With the link to the bill; you can see who has signed on to co-sponsor it so you can keep track. We need to keep on them. This is NOT a partisan issue. It benefits ALL of us.

Please urge your friends & relatives to do this as well. 

Share this post

Link to post
Share on other sites

Ugh!  My representative has not signed yet!  I will continue to purse him.  I know his office got the email.  Got back a lame email and a single survey question.  Maybe time to hit his local office.  


Share this post

Link to post
Share on other sites

Mine hasn't either. It really tics me off b/c he only allows you to email him through his website & unless you take a screenshot of what you wrote, you have no record of the communication AND it also asks if you wish a reply to what you wrote him. I check YES, I do wish a reply. Well, this is what he considers a reply. I do not consider this a reply. It is only an acknowledgment of receipt of an email from me. It is NOT a reply addressing the issue I emailed about. Grrrrrrrrrrrrrrrrr!1107559795_ScreenShot2019-05-15at12_57_17PM.png.76237fd2f89774f2b6a61407be105f51.png

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • May 29, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • June 01, 2019 Until June 02, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
    • July 07, 2019 Until August 03, 2019
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.

  • Create New...