How much gluten for testing

[helenquinlan]

Hi, can you get tested if you have been eating a small amount of gluten. I have cut down to 90% gluten free but some still gets into my daily diet.

[kareng]

24 minutes ago, helenquinlan said:

Hi, can you get tested if you have been eating a small amount of gluten. I have cut down to 90% gluten free but some still gets into my daily diet.

I think you need to be eating a purposeful amount of gluten.  I can’t tell if you are just guessing that some is sneaking in or if you know you eat a specific gluteny food everyday.

https://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/

 

For a gluten challenge we recommend eating 1/2 slice of bread or a cracker each day for the duration of the challenge.

• Prior to blood testing we recommend 12 weeks of eating gluten.
• Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten.

[helenquinlan]

13 minutes ago, kareng said:

I think you need to be eating a purposeful amount of gluten.  I can’t tell if you are just guessing that some is sneaking in or if you know you eat a specific gluteny food everyday.

https://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/

 

For a gluten challenge we recommend eating 1/2 slice of bread or a cracker each day for the duration of the challenge.

• Prior to blood testing we recommend 12 weeks of eating gluten.
• Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten.

that's about what i am eating. but i will eat that if i havent eaten any that day. This is helpful. I have had a biopsy and it showed not gluten intolerance.

[kareng]

6 minutes ago, helenquinlan said:

that's about what i am eating. but i will eat that if i havent eaten any that day. This is helpful. I have had a biopsy and it showed not gluten intolerance.

A biopsy won’t show if you have a gluten intolerance or not.  It can show Celiac damage .  But the damage can be spotty ( in patches) & not really visible.  they could miss the spot when they biopsy.  

Even if you don’t have Celiac, you can be gluten intolerant.  There are a variety of reasons for that, so eliminating Celiac first is the easiest step. 

[helenquinlan]

34 minutes ago, kareng said:

A biopsy won’t show if you have a gluten intolerance or not.  It can show Celiac damage .  But the damage can be spotty ( in patches) & not really visible.  they could miss the spot when they biopsy.  

Even if you don’t have Celiac, you can be gluten intolerant.  There are a variety of reasons for that, so eliminating Celiac first is the easiest step. 

 

34 minutes ago, kareng said:

A biopsy won’t show if you have a gluten intolerance or not.  It can show Celiac damage .  But the damage can be spotty ( in patches) & not really visible.  they could miss the spot when they biopsy.  

Even if you don’t have Celiac, you can be gluten intolerant.  There are a variety of reasons for that, so eliminating Celiac first is the easiest step. 

I am learning so much here. I am just so sick of this rash. thank you

[kareng]

Just now, helenquinlan said:

 

I am learning so much here. I am just so sick of this rash. thank you

You didn’t say it was a rash.  There is a Celiac rash called dermatitis herepetiformis.  That is diagnosed by a dermatologist who takes a biopsy from the skin next to a fresh lesion.  If that is positive, you have Celiac and no other testing is necessary.  But the DH will not go away on a 90% gluten-free diet.  

[helenquinlan]

1 hour ago, kareng said:

You didn’t say it was a rash.  There is a Celiac rash called dermatitis herepetiformis.  That is diagnosed by a dermatologist who takes a biopsy from the skin next to a fresh lesion.  If that is positive, you have Celiac and no other testing is necessary.  But the DH will not go away on a 90% gluten-free diet.  

 

1 hour ago, kareng said:

You didn’t say it was a rash.  There is a Celiac rash called dermatitis herepetiformis.  That is diagnosed by a dermatologist who takes a biopsy from the skin next to a fresh lesion.  If that is positive, you have Celiac and no other testing is necessary.  But the DH will not go away on a 90% gluten-free diet.  

 

1 hour ago, kareng said:

You didn’t say it was a rash.  There is a Celiac rash called dermatitis herepetiformis.  That is diagnosed by a dermatologist who takes a biopsy from the skin next to a fresh lesion.  If that is positive, you have Celiac and no other testing is necessary.  But the DH will not go away on a 90% gluten-free diet.  

Yes, that is what she said I have, but said it isn't from gluten. So there is no medications for this rash, just no gluten, right? 

Just now, helenquinlan said:

 

 

Yes, that is what she said I have, but said it isn't from gluten. So there is no medications for this rash, just no gluten, right? 

and I can get this late in life, I am 55?

[kareng]

54 minutes ago, helenquinlan said:

 

 

Yes, that is what she said I have, but said it isn't from gluten. So there is no medications for this rash, just no gluten, right? 

and I can get this late in life, I am 55?

If you have DH, you have Celiac.  And it is from gluten.  And you can developer Celiac at any time in life.  Check the University of Chicago website.  They have lots of good info.  DH requires a strict gluten-free diet and sometimes needs a short term treatment of dapsone. 

 

If ypur our skin was actually biopsies and found to be DH, you might want to get another doctor.