Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

iluvfupa

Actually Feel Kinda Lucky

Rate this topic

Recommended Posts

After reading all these threads of people who were wrongly diagnosed for so many years I almost feel lucky that my father has celiac disease. At first I was experience stomach discomfort and diarrhea after eating wheat grains and started to think I had celiac disease. So, I figured I would just go enjoying any food as long as possible without finding out if I did indeed have the disease. Then after searching the net for symptoms I realized all the serious complications that can develop if gluten continued in my diet. I also have been so skinny my whole life, and figured it would be great to gain some weight as well. I broke my hand recently (in a really stupid way; yep alcohol was involved), and realized that it probably should not have broken that easily and there is a good chance it could be from celiac disease (if I do indeed have it).

So, I decided to get tested. I went to my family doctor to get tested or get a referral to get tested. The nurse asked me why I was there, I told her to get tested for celiac disease. She responded, "Never heard of it". Then after talking to the doctor for a few minutes it was clear that I knew more about the disease from an hour of reading than he did. I think it is safe to say, that I would have never been referred to get tested, if it was not for the fact I knew about the disease due to my father and specifically requested it.

Tomorrow I get the blood test. I am almost hoping I have it, because it would explain the problems that I have been having. I would rather it be celiac than something way more serious.

After reading all the post people misdiagnosed for years and years, I find it amazing that my dad was correctly diagnosed over 30 years ago when he was living in Brazil, by a Brazilian doctor. Also, I was tested when I was younger, but it came up negative.

I'll let you know my results, and how informative the doctor is of celiac disease.

Ryan

Share this post


Link to post
Share on other sites

Your Dad was probably diagnosed because he was outside of the US! The US really lags behind other countries when it comes to celiac knowledge and diagnosis. I hope your test goes well and you get the answers you are searching for.

Welcome to the board :)

Hez

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...