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Actually Feel Kinda Lucky

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After reading all these threads of people who were wrongly diagnosed for so many years I almost feel lucky that my father has celiac disease. At first I was experience stomach discomfort and diarrhea after eating wheat grains and started to think I had celiac disease. So, I figured I would just go enjoying any food as long as possible without finding out if I did indeed have the disease. Then after searching the net for symptoms I realized all the serious complications that can develop if gluten continued in my diet. I also have been so skinny my whole life, and figured it would be great to gain some weight as well. I broke my hand recently (in a really stupid way; yep alcohol was involved), and realized that it probably should not have broken that easily and there is a good chance it could be from celiac disease (if I do indeed have it).

So, I decided to get tested. I went to my family doctor to get tested or get a referral to get tested. The nurse asked me why I was there, I told her to get tested for celiac disease. She responded, "Never heard of it". Then after talking to the doctor for a few minutes it was clear that I knew more about the disease from an hour of reading than he did. I think it is safe to say, that I would have never been referred to get tested, if it was not for the fact I knew about the disease due to my father and specifically requested it.

Tomorrow I get the blood test. I am almost hoping I have it, because it would explain the problems that I have been having. I would rather it be celiac than something way more serious.

After reading all the post people misdiagnosed for years and years, I find it amazing that my dad was correctly diagnosed over 30 years ago when he was living in Brazil, by a Brazilian doctor. Also, I was tested when I was younger, but it came up negative.

I'll let you know my results, and how informative the doctor is of celiac disease.


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Your Dad was probably diagnosed because he was outside of the US! The US really lags behind other countries when it comes to celiac knowledge and diagnosis. I hope your test goes well and you get the answers you are searching for.

Welcome to the board :)


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