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I have been told that I could possibly have Celiac Disease.

I had a test but it was negative. However, I was just recently diagnosed with Dermatitis Herpoformis. I have had two doctors tell me to go gluten free in my diet so I am. I also have a malabsorption issue with my vitamin D and B. I am on 50,000 iu’s a week for D. I also have Rheumatoid Arthritis, Sjögrens, Raynauds, Thyroid/Parathyroid issues and Osteoporosis.

I was told that my test came back negative due to trying to not eat gluten. I am so confused and need to know how to proceed. Do I have it or not?

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Hi Stephanie. Dermatitis herpetiformis is a form of celiac disease. Apparently, celiacs with DH may not have elevated serum antibodies, but if the skin biopsy is positive, there is no room for doubt. You should most certainly go gluten free as soon as possible. And very strictly too, avoiding all cross-contamination. Be sure to check the DH section of this forum for tips on a strict gluten-free diet.

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Right, DH is a condition only celiacs get.  The antibodies get deposited in the skin and cause irritation.   Also people with DH sometimes don't show positive on the blood work. Maybe because the antibodies are in the skin rather than circulating in the blood.

DH can be very sensitive to gluten and also iodine.


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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