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Does This Sound Normal?

Ginger38

By Ginger38
in Coping with Celiac Disease

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Ginger38 Rising Star
Ginger38
Posted

I feel physically and mentally absolutely terrible. My muscles are tender to touch. Im extremely exhausted. I can’t focus or work. Yesterday I was in the bathroom all day. Is this a normal reaction to gluten consumption even if it’s not a huge amount?  If so how long does this last? Ive been in tears I feel so poorly and I’m scared I’m not going to get back to my normal. 

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Scott Adams Grand Master
Scott Adams
Posted

People with celiac disease who go gluten-free, then accidentally or purposefully eat gluten months or years afterwards tend to have a wide range of reactions. Some have no reaction at all, perhaps because their gut is fully healed, while others have nearly instant reactions that are very bad and last for days or weeks.

This may be a bit late, but this article may be helpful:

 

Ginger38 Rising Star
Ginger38
Posted
  • Author
On 5/2/2022 at 1:29 PM, Scott Adams said:

People with celiac disease who go gluten-free, then accidentally or purposefully eat gluten months or years afterwards tend to have a wide range of reactions. Some have no reaction at all, perhaps because their gut is fully healed, while others have nearly instant reactions that are very bad and last for days or weeks.

This may be a bit late, but this article may be helpful:

 

Thank you. This makes sense 

C4Celiac Contributor
C4Celiac
Posted

Are you eating at Restaurants off Gluten free menus?

Or eating packaged foods that are not labeled "Certified Gluten Free"

Ginger38 Rising Star
Ginger38
Posted
  • Author
11 hours ago, C4Celiac said:

Are you eating at Restaurants off Gluten free menus?

Or eating packaged foods that are not labeled "Certified Gluten Free"

Yes I’ve been doing both 

C4Celiac Contributor
C4Celiac
Posted

Then you're eating gluten from Restaurants. You can't eat from gluten free menus from Restaurants regularly. You will eventually be eating Gluten. 

 

Ginger38 Rising Star
Ginger38
Posted
  • Author
38 minutes ago, C4Celiac said:

Then you're eating gluten from Restaurants. You can't eat from gluten free menus from Restaurants regularly. You will eventually be eating Gluten. 

 

So you feel like these physical symptoms are a reaction to gluten? 

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C4Celiac Contributor
C4Celiac
Posted

Probably if you have Celiac.

I haven't been eating gluten for 1 year and 9 months and still don't feel 100% yet.   And I never eat at restaurants... 

What's your anti body levels..

Stop eating at restaurants from gluten free menus.

Don't eat anything packaged that isn't certified gluten free.

Ginger38 Rising Star
Ginger38
Posted
  • Author
16 hours ago, C4Celiac said:

Probably if you have Celiac.

I haven't been eating gluten for 1 year and 9 months and still don't feel 100% yet.   And I never eat at restaurants... 

What's your anti body levels..

Stop eating at restaurants from gluten free menus.

Don't eat anything packaged that isn't certified gluten free.

My antibody levels are a weak positive 

C4Celiac Contributor
C4Celiac
Posted
6 hours ago, Ginger38 said:

My antibody levels are a weak positive 

then you have celiac

Ginger38 Rising Star
Ginger38
Posted
  • Author
4 hours ago, C4Celiac said:

then you have celiac

Thank you so much, this is what I have been trying to clarify. Talking to you made it very simple. Thanks again 

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