Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

New job enrollment benefit, mark "disabled" if celiac?


SS7

Recommended Posts

SS7 Newbie

Hi everyone,

I recently started a new job and I'm in the process of selecting insurance benefits that are offered by my employer by Blue Cross and Blue Shield. My wife was diagnosed with celiac disease two years ago and is going to be on my insurance plan.

In the benefits enrollment portal that my employer uses, one of the questions asked under my profile and her profile is "Disabled?" with a "yes or no" option and no farther description.

Do you usually mark yes if you are celiac for this question? If you selected no, did you run into any issues with your insurance later on?

I tried searching but couldn't really find any topics about this.

Thank you!

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

This is an excellent question, and it also a fairly new development. This is the first I've heard about this question on a work health benefits questionnaire.

I have seen this recently on job applications, and they include it in a list of disabilities. I am inclined to say no on such a question, simply because I don't consider myself disabled from celiac disease. I have it, but am currently not disabled.

I do not see how Blue Shield could decline any health care if you were to answer no on the question, and I am trying to think of any advantage to answering no. If you say yes, then she's likely got this disability due to celiac disease hanging over her should she ever need private health insurance, but I'm not sure how this would affect things, other than it possibly making it more expensive.

I wish I had an easy answer here, and asking your company might not be the best way to go either.

trents Grand Master

We recently had a thread where somebody informed us that having celaic disease is one of the medical conditions that qualify for benefits under the American Disabilities Act or some such government program. I wish I could lay my hands on it but I don't remember what the thread topic was.

GodsGal Community Regular

I was looking at it recently myself. I could be wrong, but my understanding is that while celiac disease is covered under the ADA, it doesn't necessarily mean that the person who has celiac disease is eligible for disability benefits. I don't know if it is the same in every state. In my state I would only be able to get disability benefits if I was physically unable to work. But it does protect from things like workplace discrimination. So, in my state, I have celiac disease, but I am not considered to be disabled.

trents Grand Master

If I recall correctly, the context of the thread I referred to was awarding food prizes at a public school. And the gist of the law was that entities had to provide safe food alternatives for celiacs.

Scott Adams Grand Master

Here is the last article we did on this topic, and it's likely time for us to do a more updated version:

 

JIsom Newbie

I declared I had celiac when hired because my jobs often required a lot of travel. I am always careful and carried food with me, but I wanted my employers to know I could get sick simply by eating in a restaurant and if I did get sick, it could affect my travel schedule. Flights could be missed, meetings missed etc. They were always understanding but I felt it gave me a measure of protection, just in case. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SS7 Newbie

Hi everyone,

Thanks for all the input. Scott I agree with you and I'm hesitant to put her as "disabled" in case it causes future issues with getting new insurance coverage should she need to get private insurance in the future. I think I'm going to answer "No" and if the insurance ever asks more questions in the future then I can give them that information and see what they will do. After all, this is definitely something new and there is literally no information about this anywhere that I could find.

Just some notes for everyone else in case they look up the same thing in the future.

This is about:

  • Someone that has already got the job and that they are at a point of signing up for the insurance plans that the employer is offering.
    • In this particular case, I am not Celiac, but my wife who is going to be on my insurance plan is.

This is not about:

  • Someone looking for disability benefits through unemployment or benefits in general for not being able to work due to Celiac disease.
  • Someone applying for a job and the job application asking if you have any disability,
    • In a few cases during my job application process, I did see Celiac listed as a disability in the application.

Hope to see more feedback on this. I will try my best to report back with an update in case the insurance does flag something in the future.

Wheatwacked Veteran

Is she on disability? If not, I think she is no more disabled than someone with other allergies, bee stings for example. 

SS7 Newbie
6 minutes ago, Wheatwacked said:

Is she on disability? If not, I think she is no more disabled than someone with other allergies, bee stings for example. 

She is not and I agree.

DonnaNM Rookie

I have Celiac disease and follow your forums. 

I don't want to talk out of place so if this does not meet this websites guidelines, please delete. 

The ADA is a federal civil rights law that prevents discrimination against people with disabilities. There is more, but please visit their site for more info. 

One case happened in 2012 that specifically addressed Celiac disease and food service at Lesley University in Massachusetts. The link is: https://archive.ada.gov/q&a_lesley_university.htm. it is interesting.  

Personal opinion: I would also be careful listing a spouse as having a disability.  There may be too many unknown unintended consequences.  

All my best. 

trents Grand Master
42 minutes ago, DonnaNM said:

I have Celiac disease and follow your forums. 

I don't want to talk out of place so if this does not meet this websites guidelines, please delete. 

The ADA is a federal civil rights law that prevents discrimination against people with disabilities. There is more, but please visit their site for more info. 

One case happened in 2012 that specifically addressed Celiac disease and food service at Lesley University in Massachusetts. The link is: https://archive.ada.gov/q&a_lesley_university.htm. it is interesting.  

Personal opinion: I would also be careful listing a spouse as having a disability.  There may be too many unknown unintended consequences.  

All my best. 

Good read, DonnaNM. Thanks!

  • 4 months later...
Nicole4 Newbie

Did you end up marking her? I am a few months away from my jobs annual look at insurance and benefits to make any changes and now I’m wondering if it’s going to ask about health as I have Blue Cross as well. My son was diagnosed with celiac, scoliosis and Gilbert’s since I signed last year.

SS7 Newbie

Hi @Nicole4,

I ended up not marking her due to the replies here and my own research.

  • I tried looking everywhere for information related to this on government websites or insurance websites and wasn't able to find anything solid.
  • I even called a third party insurance agent and they didn't know the answer. What they said was similar to what "Wheatwacked" said earlier, that if she's not collecting disability, then she is not considered disabled by the insurance.
  • Based on the lack of information out there and it being a fairly new thing (in the law system), I decided to put that burden of finding out on the insurance company for now.

So far she hasn't had any doctor visits other than the regular checkup but I will due my best to update back here if insurance does flag anything.

I'm sorry I couldn't be more helpful, best of luck to you!

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    2. - glucel replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    3. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

    4. - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,004
    • Most Online (within 30 mins)
      10,442

    Bothy
    Newest Member
    Bothy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @glucel,  There's a strong correlation between thiamine deficiency, hypoxia, and insomnia.  Thiamine is needed to help red blood cells carry oxygen.  In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular events.  Curiously, thiamine deficiency is correlated with excessive daytime sleepiness and oversleeping.   I found a combination of Tryptophan, Pyridoxine B 6, magnesium, and L-theanine works very well for inducing sleep.  Sometimes, I add Passion Flower Extract and/or Sweet Melissa.  There's no side effects the next morning with Passion Flower, it just induces sleepiness.  Sweet Melissa is groovy, and has anti-inflammatory effects on the digestive system.   I prefer to take 250 mg Benfotiamine and 100 mg Thiamine TTFD in the mornings and another dose of Benfotiamine at lunch.  I try not to take any thiamine after four p.m. because it keeps my brain so energized and wanting to think... Oh, I do take a combination of another form of thiamine (sulbutiamine), Pyridoxine and Cobalamine for a pain reliever sometimes, but I can sleep after taking that.  But thiamine does help regulate circadian rhythm.   Make sure you're getting Omega Three fats! They'll help you satisfy that late night carb craving with fewer carbs.  Flaxseed oil, olive oil, sunflower seed oil.  Nuts and nut butters, like walnuts and cashews, are good, too, if you can tolerate them.    Try taking the 100mg thiamine HCl before your aerobics and see if there's a difference.  Sweet dreams! References: Network Pharmacology Analysis of the Potential Pharmacological Mechanism of a Sleep Cocktail. ......(Skip to Section Four) https://pmc.ncbi.nlm.nih.gov/articles/PMC11201840/ Effects of Melissa officinalis Phytosome on Sleep Quality: Results of a Prospective, Double-Blind, Placebo-Controlled, and Cross-Over Study https://pubmed.ncbi.nlm.nih.gov/39683592/
    • glucel
      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
×
×
  • Create New...