New diagnosis and neurological symptoms

[Soleihey]

Recently diagnosed with celiac as a 31 year old female. Besides hair and weight loss, been experiencing more neurological symptoms such as muscle cramps, spasms, twitching, bilateral tremors. Been gluten free for about 3 weeks and have had symptoms for approximately 4 months. Did anyone else have similar symptoms? And how long did it take for them to resolve? No B12 or electrolyte deficiencies present.
 

Already has work up for all other neuro conditions and negative. 

 

[trents]

Welcome to the forum, @Soleihey!

Undoubtedly, you are experiencing vitamin and mineral deficiencies. Superficial serological vitamin and mineral deficiency testing often does not tell the whole story as it only measures what's floating around in the blood, not what is actually getting into the tissues and being used by them. There are more in depth tests that can be helpful in this regard but symptoms are probably more of a barometer and much cheaper.

Realize that by the time symptoms develop, you have probably had celiac disease for years previous to that. Vitamin and mineral deficiency symptoms are often slow to develop. It often takes around 10 years for adults to get a proper celiac diagnosis. 

My suggestion would be for you to begin a regimen of high potency B-complex, 5-10k IU of D3 daily, zinc, 400 mg of magnesium glycinate daily. Costco's Kirkland Signature and Nature Made product lines are excellent choices if you live near a Costco. Make sure all supplements are gluten free. Choline bitartrate is another smart supplement add in.

[Scott Adams]

The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.

   This article might be helpful:

 

 

[Maggieinsc]

I get really awful muscle spasms when my magnesium runs low. I take Trace Mineral Drops. I get it from Amazon for a few days and they go away. You can also buy them at Health, Food stores like Whole Foods sprouts.  Magnesium pills don’t work like the liquid form which works fairly quickly. It doesn’t take very long for them to come back if I forget to take it or don’t take it.

Our food lacks magnesium and has for years.  Magnesium is essential for the electrical functioning of our body also building bones. The government has known that our soil has had next to no magnesium in it since 1936. No magnesium in the soil means no magnesium in our food. So you get muscle cramps - that’s the most obvious symptoms, heart palpitations. I had those too, long gone since I started taking magnesium. Muscle cramps are gone again. Those will return when I don’t take the Trace Mineral Drops. Also contains chloride, sodium, potassium, sulfate, lithium and boron and is the easiest form -liquid - for your body to absorb the minerals. Worst side effect is that you will get diarrhea if you take too much so you have to find a happy balance, but worth it to get rid of the horrible cramps and the muscle spasms. 

[Jean Marie]

My initial symptoms when I was diagnosed 8 years ago were severe cramps in my calves at night, joint pain and cancker sores in my mouth.  Once I went gluten free, my symptoms subsided in about a week.  If I accidentally ingest gluten now, I get violently ill with abdominal pain, nausea and constant vomitting.