Prediagnosis

[Hebie]

Hello!

I got my bloods take in November last year because I had been suffering on an off for two years, and then I got really sick before I decided to go to the doctor haha. I got all my bloods taken and the doctor said I was definitely celiac, no doubt about it. Because I was so sick I cut gluten completely out of my diet because I was in so much pain and I was struggling at my work which is a really active job, and there was no sign of an endoscopy appointment in the near future.

But now I have my endoscopy soon and I started to eat gluten again for it, none of the terrible pain or symptoms have come back, can the disease go dormant? is that a thing?

I'm also worried because I was gluten-free for quite some time after my bloods were taken that the disease won't show in the endoscopy? \ I keep getting told by the doctors how important an official diagnosis through the endoscopy will be vital for future treatment (whatever that is?)

Anyway.. I am just speculating endlessly w/o actually knowing the facts

[trents]

@Hebie, we do get anecdotal reports of celiac disease going into remission but it usually comes back at some point. To render valid testing for the endoscopy/biopsy you should be eating 10g of gluten (an amount found in approximately 5 slices of bread) daily for at least two weeks and preferably longer. When is your endoscopy scheduled for?

[Scott Adams]

Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy:

Quote

"...in order to properly diagnose celiac disease based on serology and duodenal histology, doctors need patients to be on gluten-containing diets, even if they are causing symptoms, and this is called a "gluten challenge."

• Eat gluten prior to celiac disease blood tests: The amount and length of time can vary, but is somewhere between 2 slices of wheat bread daily for 6-8 weeks and 1/2 slice of wheat bread or 1 wheat cracker for 12 weeks 12 weeks;
• Eat gluten prior to the endoscopic biopsy procedure: 2 slices of wheat bread daily for at least 2 weeks;

and this recent study recommends 4-6 slices of wheat bread per day: