Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Bloating


MsHeart&Soul

Recommended Posts

MsHeart&Soul Newbie

I got diagnosed about 4 years ago with Celiac Sprue. Joined Celiac Association in Omaha, Nebraska. I am still learning, I try to be careful of things I eat. But I always had a flat tummy and all but I now get so bloated under my breast area, it's so uncomfortable, plus in about 5 years I put on about 25 pounds. I am only 5'3 so it feels like more.

My gastro doctor wants me to have another CT Scan pelvicc dye and all, I get panic attacks when I have that done now..So it's hard for me and very expensive....Have any of you had any other tests that may help? Where my stomach meets the intestinonal area there is a vert tender area, it comes and goes but my doc wants to see what's going on?

Again I try to be careful but realize that sometimes the tinest thing can trigger reactions in my body. If you have any suggestions for me please write! Thanks so much..............xo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I find that I get bloated by a lot of things other than gluten. You may need to do an elimination diet to find out if you have other intolerances besides celiac disease. It's not too likely they will be as numerous as mine, but most people with celiac disease have other intolerances as well. The most common ones seem to be dairy and nightshades (potatoes, tomatoes, peppers, eggplant), soy, corn, but it could be anything.

I would start out testing the foods high in lectins (for more info, follow the link in my signature). Start by eliminating them all for at least two weeks, and see how you feel. Then test one group at a time.

I would try that first, before doing any more invasive tests.

Hope this helps.

lisaemu Contributor
I got diagnosed about 4 years ago with Celiac Sprue. Joined Celiac Association in Omaha, Nebraska. I am still learning, I try to be careful of things I eat. But I always had a flat tummy and all but I now get so bloated under my breast area, it's so uncomfortable, plus in about 5 years I put on about 25 pounds. I am only 5'3 so it feels like more.

My gastro doctor wants me to have another CT Scan pelvicc dye and all, I get panic attacks when I have that done now..So it's hard for me and very expensive....Have any of you had any other tests that may help? Where my stomach meets the intestinonal area there is a vert tender area, it comes and goes but my doc wants to see what's going on?

Again I try to be careful but realize that sometimes the tinest thing can trigger reactions in my body. If you have any suggestions for me please write! Thanks so much..............xo

I agree with paying attention to possible other intollerances, especially to dairy since a lot of people with celiacs seem to have that problem. Do you use a lot of gluten free subsitututes, like bread and muffins and such? A lot of them seem to be pretty high in calories and low in fiber, which can lead to eating more. I struggle with bloating too, and am trying to figure out what its from as well. Good luck!

  • 2 weeks later...
deena647 Apprentice
I agree with paying attention to possible other intollerances, especially to dairy since a lot of people with celiacs seem to have that problem. Do you use a lot of gluten free subsitututes, like bread and muffins and such? A lot of them seem to be pretty high in calories and low in fiber, which can lead to eating more. I struggle with bloating too, and am trying to figure out what its from as well. Good luck!

Hello, I get bloated in my lower abs. When I first started eating gluten free, about 4 months now my tummy and body felt lighter, now I have been feeling heavy. I do not eat alot of the sweets and I drink lactaid milk and use lactaid cheese, I also do not eat the gluten free flours, so I am so confused on my bloated feeling.

I love JESUS and I know He is with me......Deena

  • 8 months later...
Guest CarBear
I got diagnosed about 4 years ago with Celiac Sprue. Joined Celiac Association in Omaha, Nebraska. I am still learning, I try to be careful of things I eat. But I always had a flat tummy and all but I now get so bloated under my breast area, it's so uncomfortable, plus in about 5 years I put on about 25 pounds. I am only 5'3 so it feels like more.

My gastro doctor wants me to have another CT Scan pelvicc dye and all, I get panic attacks when I have that done now..So it's hard for me and very expensive....Have any of you had any other tests that may help? Where my stomach meets the intestinonal area there is a vert tender area, it comes and goes but my doc wants to see what's going on?

Again I try to be careful but realize that sometimes the tinest thing can trigger reactions in my body. If you have any suggestions for me please write! Thanks so much..............xo

I think I gained 20 pounds while I was first sick and unaware of my Celiac Disease. Slowly I have lost the weight, but now I am dealing with gallbladder/kidney issues and the HORRIBLE and DISGUSTING bloating feeling has reared its ugly head, although I am still religious about following my diet.

debb Newbie

Look for gluten in unexpected products. I found that I felt great at first, then after about 6 months I began feeling bloated again. A celiac friend told me about hidden sources of gluten that she had found, malt, caramel color and flavors sometimes, msg and more. Look on the celiac.org website. Another big one that I never thought about is beauty products. Sure enough many of my hair products contained wheat protein. Out they went! I still have occasional bouts of bloating and I am pretty sure it is related to eating hidden gluten in some form, it seems to be everywhere. I also found that my reaction time is slower than many, it may often take a day or even two for me to feel the effects of eating a food with gluten in it....I have a very sluggish system!

hathor Contributor

Have you been using any sugar-free products containing sorbitol? That makes some people bloat.

I agree that an elimination diet might be called for if you can't identify the problem. You can either take things out one at a time or start out with a diet without the usual irritants and then add things in one and a time and see how you do. I can find a link for the latter approach if you are interested. Or you can google and see what you find.

Have you noticed the tenderness after particular foods? How well are you digesting things in your stomach? Do you sometimes have the food just sit there and not move out, particularly a high fat meal? If you are having digestive issues higher up (you mention under the breast area), particularly in response to fat, it may be a gall bladder problem. This is something I dealt with before I changed my diet.

Yes, it was akin to the old joke, "Doctor, doctor, it hurts when I do this" ... "Then don't do that." I told him the foods that made my stomach hurt and he told me not to eat them. Yes, that's why he gets the big bucks :rolleyes:

I suggest keeping a food diary and seeing if you can find some pattern to your symptoms. Other than eliminating gluten, did your diet change in any other way? Any changes close to when you started bloating or has that been there a long time?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Just another broken record saying "see if you can identify other foods causing this problem". Milk (lactose intolerance) is a *very common* culprit, but *MANY* other things can cause it as well.

Mayflowers Contributor

Being 25 pounds overweight would make one feel pretty bloated. I'm 40 pounds overweight. :blink:

flowergirl Rookie

After going gluten free there were still many things that made me bloated and caused green diarhea. :ph34r: You'll see in my signature that I avoid gluten free processed foods (like flours etc), soy, sugar and dairy. Things are much better now. When I'm not glutened, my tummy is flat more than 50% of the time. Last month we celebrated because for the first time in 7 yrs I can wear a size 12 jean. (I used to toggle between 14 - 18) Now it doesn't fit anymore... yesterday I managed to slip into a size 10. :rolleyes::lol:

Best wishes with indentifing the nasties and no-no's. I know it's hard but it can be done. I agree with the others. The elimination diet and a diary is the way to go. ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Dermatitis Herpetiformis
      4

      Skin issues

    2. - Aretaeus Cappadocia commented on Scott Adams's article in Additional Concerns
      1

      This Common Blood Pressure Drug Can Mimic Celiac Disease Symptoms

    3. - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

    5. - Scott Adams replied to Richard Rusnak's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      I was diagnosed with celiac 15 years ago.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during the same time I was dealing with covid, digestive issues, eyes and skin.Considering I " should  be fine" not consuming gluten/wheat, taking vitamins for sibo and STILL feeling terrible.It has to be parasites. I also take individual eye drops prescribed, could there be an issue there? Anyways my pcp thinks I need therapy because again they don't acknowledge my digestive issues because in my records it shows im fine, hintz the reason I had to go back to bay area hospital:(  I thought skin issues maybe sibo related but I feel and have seen and seriously trying not to think about it because it's disgusting. 
    • Aretaeus Cappadocia
      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
    • Scott Adams
      I love Middle Eastern food and eggplant, and here is another version we shared some time back:  
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Scott Adams
      This may not be the cause, it's pure speculation on my part, but for 10-15 years I had a tingling/burning/electric-like shock sensation that emanated from my right-neck upward across the right-side of my head. I was worried about having a stroke or something so got all sorts of tests done, including an MRI, which found not much--only a minor degenerative disk in my neck--which I just accepted as the cause. Fast forward to when I was ~45 and I was hit with shingles in the EXACT place that this sensation would travel--I ended up with a very painful case of shingles that felt like the right-side of my head had been set on fire, and had the blistering and pain that ran along the exact path of nerves that I had felt this sensation travel along for the prior 10-15 years. For me, that time period was a shingles pre-cursor, and all those feelings were likely inflammation in my nerves. Needless to say I've not had this since getting my shingles vaccines at 50.  Your situation could very well be something else, but I just wanted to mention this possibility because your symptoms sound similar to what I experienced. I'm not sure if you're in the age range to get a shingles vaccine, but it may be something to consider.
×
×
  • Create New...