Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Die Off Symptoms


terps19

Recommended Posts

terps19 Contributor

When you start on the GFDF diet is there a peroid that you experience die off symptoms from the gluten and casien trying to exit the body? For the past two days I have had a headache, stomach discomfort, and nausea and I hope it is just from the gluten and casien exiting my body. ANyone else have this happen as well?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lister Rising Star

in my opinon yes, i still dont feel right and its been 3 weeks now, Also there is atleast what seems to be die off of bactera that gets passed as well, judging by the black specks that are in a abondence, you will probably notice everytime u go to the bathroom you feel alot better for a bit, im just now starting to have some normel days where i feeel almost like myself again

mommida Enthusiast

There are some articles that explain wheat has an opiate type affect on certain persons. Opium is addictive, and these persons will suffer withdrawal symptoms when they go gluten free and/or casein free.

L.

dionnek Enthusiast

I have been gluten-free for 10 days now and have started getter annoying headaches for the past 3 or 4 days. I've attributed this to gluten withdrawal :P

Lisa Mentor

Your body needs to adjust. It all depends on how bad the intestinal damage is/was. Even though you may be gluten free and dairy free, you insides are still damaged and it will take some time to heal itself.

For headaches, I take aleve, and for stomach upset, it take zantec 75 or 150 when the bloating and gas gets bad.

Healing will take quite sometime depending on your damage, sometimes up to a years time.

Healing is a slow process and it will not happen over night. Be patient with your self and take every day as it comes. Make sure that you check your soaps and shampoos and facial creams that they are not gluten.

Just remember, that it took a long time for the damage to occure, it will take some time for the healing process to happen. I was dx in August and I try my best to be gluten free and at home is a non issue, socially it is very hard for me.

Good luck to you and please always feel free to ask away. We have all been there and one's experience is anothers knowledge.

Lisa

terps19 Contributor

Well I am glad that people are experiencing die off symptoms. It makes me feel a bit better. There is no significant damage done to my intestines so I hope healing does not take years at it does for some. On average at what point do you start to feel better? One month point, 2 months, 6 months? Just so I can get an idea of what I am getting myself into.

jerseyangel Proficient

Hi Terps--I didn't feel well at all when I first went gluten-free. I had been sick for years, and for the first 3 months gluten-free I felt tired, foggy, stomach issues--pretty much like a wet dishrag! Around the 4th month, I seemed to turn a corner. I'm almost at the 1 year point, and having worked through my additional intolerances, am just now feeling a lot better. It does take time--don't get discouraged! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



terps19 Contributor

How did you find your additional intolerances? Did you take Dr Fine's tests through Enterolab? I know some on this forum have taken them as well as me. I tested positive for gluten and casien and nothing else (soy, eggs, and yeast). So I hope I dont have additional intolerances.

jerseyangel Proficient
How did you find your additional intolerances? Did you take Dr Fine's tests through Enterolab? I know some on this forum have taken them as well as me. I tested positive for gluten and casien and nothing else (soy, eggs, and yeast). So I hope I dont have additional intolerances.

I found them through trial and error. I did my own version (after seeking advice from my allergist) of an elimination diet. It took me about 6 months. I did look into having blood testing done for the intolerances, but in the end deceided not to.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    3. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    4. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    5. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442

    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...