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- Nicbent35 replied to Nicbent35's topic in Related Issues & Disorders2Gluten intolerance in toddler?
That’s a good thought, I didn’t think of that aspect of waiting longer! Thanks -
- trents replied to Nicbent35's topic in Related Issues & Disorders2Gluten intolerance in toddler?
Thanks for reporting back @Nicbent35! You seem to understand the options and the risks. So, it is a decision you will just have to make. But you don't have to make it right away. You might consider keeping her gluten-free for a while yet. I would give it six months before considering adding gluten back in. Make sure the improvement you are seeing is due to...- 1
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- trents replied to jkinloch's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3
Difficulty with doctors
If you have been on a strict gluten-free diet for several years, it would be normal for testing to show no evidence of celiac disease. No gluten, no inflammation. No inflammation, no antibodies and healing of the small bowel lining would result. Personally, I think the doc gave you bad advice and I feel confident that trialing a return to gluten consumption... -
- Nicbent35 posted a topic in Related Issues & Disorders2
Gluten intolerance in toddler?
So my daughter is almost 4, i posted in here before about taking her off gluten myself as an experiment due to behavioral issues she was having (very angry and extreme tantrums). I started gluten-free Feb 8th, I’m happy to report it’s like I have a different kid. She has an occasional tantrum now but the kind that I expect out of a 3 year old. At the... -
- jkinloch replied to jkinloch's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3Difficulty with doctors
Yes, in 2017 I had all of the blood tests and several endoscopies. All of these indicated Celiac Disease. I have had endoscopies every few years since, and my last one was a year ago. This is a new GI doctor for me. The results he put into my medical record said, "No evidence of Celiac Disease". Today, he recommended that I start eating gluten again...
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That’s a good thought, I didn’t think of that aspect of waiting longer! Thanks
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Thanks for reporting back @Nicbent35! You seem to understand the options and the risks. So, it is a decision you will just have to make. But you don't have to make it right away. You might consider keeping her gluten-free for a while yet. I would give it six months before considering adding gluten back in. Make sure the improvement you are seeing is due to removing gluten and not something else that will pass such that you see a reversion to former behavior and symptoms.
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If you have been on a strict gluten-free diet for several years, it would be normal for testing to show no evidence of celiac disease. No gluten, no inflammation. No inflammation, no antibodies and healing of the small bowel lining would result. Personally, I think the doc gave you bad advice and I feel confident that trialing a return to gluten consumption would not be the advice that the vast majority of GI docs would give you. If I were you, I would seek a second opinion before resuming gluten consumption.
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So my daughter is almost 4, i posted in here before about taking her off gluten myself as an experiment due to behavioral issues she was having (very angry and extreme tantrums). I started gluten-free Feb 8th, I’m happy to report it’s like I have a different kid. She has an occasional tantrum now but the kind that I expect out of a 3 year old. At the same time I also started giving her a magnesium supplement, probiotics regularly, and a supplement to help with her constipation. I also changed some methods with how I was dealing with her tantrums…problem now is I’m wondering should I try to put her back on gluten and see how she does?? I never consulted with a doctor, never got her tested..I just did this on my own. But I have to admit I’m scared to screw up the progress we have made and scared to return to that old behavior. But at the same time, I don’t want her to have to live gluten free if it’s not necessary. Any words of wisdom with those more experienced with this? Someone suggested I try her on non-gmo gluten because she may not react to that? Let me make clear tho, I’m very willing to continue to keep her off gluten if that’s what’s best but it’s hard to know at this point.
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Yes, in 2017 I had all of the blood tests and several endoscopies. All of these indicated Celiac Disease. I have had endoscopies every few years since, and my last one was a year ago. This is a new GI doctor for me. The results he put into my medical record said, "No evidence of Celiac Disease". Today, he recommended that I start eating gluten again to see if I get sick from it. I did not misinterpret him or my family practitioner. I asked several times if his diagnosis actually meant that my Celiac Disease is well controlled. He said no. I'm absolutely gob-smacked.
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