Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Anyone Eating Oats?


Mayam

Recommended Posts

Mayam Apprentice

Hi,

I know the reasons why we are currently not approved to eat oats, but is there anyone here who eats oats? If so, where do you get them from so that they are not "contaminated"? I've heard some things about Irish oats. Any problems from eating them or other oats?

Thanks in advance,

Rachel - gluten-free since 2003 (diagnosed by bloodwork and biopsy)

daughter age 6 - gluten free since 2003 (diagnosed at 3 - bloodwork and biopsy)

daughter age 4 - gluten-free since 2004 (positive bloodwork, negative biopsy, 2 genetic markers at age 22 mos.)

son age 1 1/2 gluten-free since birth

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Rachel,

My family eats oats, but I don't know if we have celiac or allergic/intolerant. I have not had them for the last 1 1/2 months. The rest of my family just went gluten free with the exception of oats and I will be including them soon. Reading the home page for celiac.com it seems as if oats are not as bad as thought but still affect some people. We don't know if the family is wheat or gluten intolerant. Just sent out kits to Enterolab recently. It may be something you would have to test out.

I have read that contamination isn't a real issue but I don't know about that. I order mine from Azure Standard.

Link to comment
Share on other sites
VydorScope Proficient
Hi,

I know the reasons why we are currently not approved to eat oats, but is there anyone here who eats oats? If so, where do you get them from so that they are not "contaminated"? I've heard some things about Irish oats. Any problems from eating them or other oats?

Thanks in advance,

Rachel - gluten-free since 2003 (diagnosed by bloodwork and biopsy)

daughter age 6 - gluten free since 2003 (diagnosed at 3 - bloodwork and biopsy)

daughter age 4 - gluten-free since 2004 (positive bloodwork, negative biopsy, 2 genetic markers at age 22 mos.)

son age 1 1/2 gluten-free since birth

Open Original Shared Link sells oats they calim are not contimated.

Outside of that all major brands (Quacker, Macanes, etc) all were tested and found to be continmated.

I am not willing try them with my son, when he is old enouhg to understand I will let him make that call.

Link to comment
Share on other sites
chrissy Collaborator

we have ordered the oats that vincent mentioned-----my girls do not appear to have a problem with them, but they have not had a lot of them. recently, when i was in the hospital with my daughter, a nurse came in to talk to me because she had been told my kids had celiac. she has 2 children that have had celiac for 20+ years. she said her kids never had a problem with oats.

oats are one of the foods that people just have to try to see whether or not they are a problem for them. i'd be really interested to see the results of the blood work of someone who has been eating oats for awhile.

Link to comment
Share on other sites
Celia the Celiac Apprentice
Hi,

I know the reasons why we are currently not approved to eat oats, but is there anyone here who eats oats? If so, where do you get them from so that they are not "contaminated"? I've heard some things about Irish oats. Any problems from eating them or other oats?

Thanks in advance,

Rachel - gluten-free since 2003 (diagnosed by bloodwork and biopsy)

daughter age 6 - gluten free since 2003 (diagnosed at 3 - bloodwork and biopsy)

daughter age 4 - gluten-free since 2004 (positive bloodwork, negative biopsy, 2 genetic markers at age 22 mos.)

son age 1 1/2 gluten-free since birth

Well,

I take what's called "Berry Green" It's an Organic Drink of fruits and vegetables. It says that there's organic oats in it. I've emailed the company and I'm waiting for a reply on this. But to just eat oats from anything out of any grocery store or actually cook with it....no

Link to comment
Share on other sites
mamaw Community Regular

We eat oats and I ordered from the company in Wyoming (glutenfreeoats) , there is also cream hill in Canada that sells them. No problems for us but you should start out very slow when adding then to your diet. I think I actually liked the Cream Hill better but being in the US it was cheaper to order from a US company.....

mamaw

Link to comment
Share on other sites
VydorScope Proficient

My understanding of the facts is this..

All mainnstream oat sources are contimated with gluten from wheat. If you have celiac disease you will get damage/etc from the wheat gluten, after all thats what celiac disease is. Some ppl may not think they react due to diferent levels of sensitivity. But the gluten is there, and that makes them off limits to anyonne that has celiac disease

If pure oat can truly be found, they do NOT have gluten naturaly. They do have a different protien , and some ppl with celiac disease will react to that protien, complete with damage to intestins, just like they do gluten.

Thats the facts as I understand them. If I had celiac disease I would prbly try the gluten-free oats, but with caution.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mayam Apprentice

Thank you for the input. I'm contemplating slowly adding oats into my diet and seeing what happens. Not sure yet - I'm kind of afraid, but we'll see. I'm not comfortable experimenting on my children though - I'll let them try, if they want, when they're old enough to decide and/or tell me how they're feeling.

Thanks again

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Braver101 posted a topic in Coping with Celiac Disease
      0

      Constant sweating with celiac disease

    2. - Tlbaked13 replied to djmu's topic in Related Issues & Disorders
      10

      Peripheral Neuropathy

    3. - trents replied to djmu's topic in Related Issues & Disorders
      10

      Peripheral Neuropathy

    4. - Tlbaked13 replied to djmu's topic in Related Issues & Disorders
      10

      Peripheral Neuropathy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,483
    • Most Online (within 30 mins)
      7,748

    Sweet Potato
    Newest Member
    Sweet Potato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Braver101
      Does anyone else get soaking wet sweats just out of nowhere? I’m not in menopause, there’s nothing wrong with me except celiac disease and my thyroid, and I’m taking my medicine. I am 18 days gluten-free but I cannot stop sweating and it makes me freezing cold and I’m soaking wet and changing my clothes literally as I’m changing my clothes the new clothes are soaking wet and nobody will help me. Please somebody out there help me. 
    • Tlbaked13
      Sometimes I end up spitting out a drink of water! But for the most part I do ok with the liquids that I've been sticking to which Is hardly anything carbonated (meaning diet soda mainly)  I drink alot of tea which I make myself lipton cold brew sweetened with half sugar and half Splenda, smoothies when I could in the beginning but made with milk so I'm now using orange juice instead of the milk but it doesn't workout real often I drink black coffee in the mornings with no trouble usually and I've been experimenting with some juices but the sugar content is a set back I'm not a huge water fan but will drink it unfortunately where I live I can't do the tap water I'm the only one who has a problem with it apparently but for some reason I just can't...unless I'm using it in coffee or tea and the tea even took me some time to stand yes I have thought about boost/ ensure but they are very costly for someone who is scrapping the bottom at this time 
    • trents
      Do you believe your swallowing is a manifestation of your neuropathy? I'm thinking if you are having trouble getting food down you need to focus on consuming things that have a high nutritional density so that whatever you are able to get down counts for something. Have you looked at Boost and other high protein/high calorie shake products?  They are fortified with vitamins and minerals as well. Do you have any trouble with aspiration of liquids? For celiac testing purposes, the guidelines are calling for daily consumption of about 10gm of gluten - the amount in about 4-6 slices of bread - in order to ensure valid testing. That sounds like it would be a challenger for you.
    • Tlbaked13
      Thank you and I am aware that I should be eating a "normal" diet until tested it's kind of been trial and error for my diet or more like just ERROR! I about 1-3 bites a meal I'm to a point that 99 percent of the time I'm having trouble swallowing just about everything occasionally I find either something or a very small window of time that allows me to get very little of something! I am basically getting zero nutrition what so ever because I take one bite of the meal that I usually just slaved over just to end up tossing it when it's all said and done...did anyone else ever experience anything like this?  I am more then open to suggestions! It is taking a very extreme toll on me and my body forsure 
    • JustGemi
×
×
  • Create New...