Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

New Here!


Chrisser

Recommended Posts

Chrisser Explorer

Hi everyone, just joined the site but have been lurking around for a few days trying to get as much info as possible. I was just diagnosed as gluten-intolerant last Friday and immediately went gluten-free. It's been a VERY difficult first few days. I had low blood sugar problems way before I went gluten-free, and it's been more difficult the last few days regulating my blood sugar. I had never in my life eaten wheat bread until a few weeks ago because I knew it was healthier and would help with the blood sugar, but then that's when I started getting sick. I have had digestive issues since a child, had my first GI workup when I was about 7, but it was chalked up to IBS and having the "family stomach." Well now it just might be a family gluten problem.

Anyway, I've found some good information so far. It's far easier to read posts than read labels. Right now my biggest problem is just coming up with variation in my diet and looking for different flavoring. I'm already so sick of chicken. I also feel the sickest at night...after dinner I usually feel really sick to my stomach and get leg pain. I also haven't had much of an appetite, have gotten periods of hot flashes, shakes, clamminess, etc. On Friday my doctor just told me to go gluten free. He didn't inform me of this 2-week detox period that your body goes through when eliminating foods from your diet, nor did he inform me that he wants to see me again around the 2-week mark. I only found all this out when I called in this morning when I though I was gonna die from the physical symptoms.

Anyhoo, enough rambling. I look forward to learning more from all of you. I probably won't post very much since I'm still in the beginning learning stages (except from questions, of course).

Oh, what do you all eat for breakfast?? I don't like eggs, and I've always been a breakfast food breakfast person. I need a good balance of protein and fiber to help keep my blood sugar balanced out throughout the rest of the day.

Thanks! B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Welcome!

For breakfast you can eat things not traditionally meant for breakfast if you don't like eggs. Like chicken (or another meat that you're not sick of) and veggies, leftovers from the night before, etc. Or you can eat something like a Lara Bar or Nectar Bar with some nut butter on it.

I'm sure you've figured out by now that white bread is also made from wheat flour, it just doesn't have the whole grain in it. Or maybe you meant that you didn't eat bread at all and added it to your diet because of it's health benefits ...

You'll learn a lot here. You'll feel better as time goes on. The first couple weeks are tough.

ravenwoodglass Mentor
Hi everyone, just joined the site but have been lurking around for a few days trying to get as much info as possible. I was just diagnosed as gluten-intolerant last Friday and immediately went gluten-free. It's been a VERY difficult first few days. I had low blood sugar problems way before I went gluten-free, and it's been more difficult the last few days regulating my blood sugar. I had never in my life eaten wheat bread until a few weeks ago because I knew it was healthier and would help with the blood sugar, but then that's when I started getting sick. I have had digestive issues since a child, had my first GI workup when I was about 7, but it was chalked up to IBS and having the "family stomach." Well now it just might be a family gluten problem.

Anyway, I've found some good information so far. It's far easier to read posts than read labels. Right now my biggest problem is just coming up with variation in my diet and looking for different flavoring. I'm already so sick of chicken. I also feel the sickest at night...after dinner I usually feel really sick to my stomach and get leg pain. I also haven't had much of an appetite, have gotten periods of hot flashes, shakes, clamminess, etc. On Friday my doctor just told me to go gluten free. He didn't inform me of this 2-week detox period that your body goes through when eliminating foods from your diet, nor did he inform me that he wants to see me again around the 2-week mark. I only found all this out when I called in this morning when I though I was gonna die from the physical symptoms.

Anyhoo, enough rambling. I look forward to learning more from all of you. I probably won't post very much since I'm still in the beginning learning stages (except from questions, of course).

Oh, what do you all eat for breakfast?? I don't like eggs, and I've always been a breakfast food breakfast person. I need a good balance of protein and fiber to help keep my blood sugar balanced out throughout the rest of the day.

Thanks! B)

I eat either Yoplait yogurt on top of Ener-G Granola or when in a hurry will have Carnation Instant Breakfast (the powder not the ready made and none of the Malt flavor) and put a handful of a couple different kinds of nuts and some raisens in a bag and run. I have diabetes from not being diagosed until 15 years after the worst symptoms began and haven't had too hard of a time keeping it under control. I had hypoglycemia for years before that. The hardest part for me is remembering to eat. <_< Ask any questions you need to and welcome to the boards. Make sure everything you use is gluten free even if you don't eat it. The worst will be over soon for you I hope.

maggee Newbie

Welcome, I'm new here as well and have gotten more info here about celiac / gluten free foods than anywhere else.

For breakfast we like to focus on fresh fruit (you may have to be careful about amt with blood sugar issues). If you are ok with nuts spread some nut butter on a piece of fruit or rice cakes / gluten-free crakers. In the colder months we like millet or quinoa (mix with fresh or frozen fruit and add a little maple syrup or agave necter).

I hope this helps.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    2. - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    3. - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    4. - Wheatwacked commented on Scott Adams's article in Origins of Celiac Disease
      19

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

    5. - trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,189
    • Most Online (within 30 mins)
      10,442

    Lhughes327
    Newest Member
    Lhughes327
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
×
×
  • Create New...