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I'dratherbecycling

Aaaaaaaaarrrrrrggggghhhh!

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Argh, Chelsea... I get that ALL the time, people asking me if I'm pregnant (I'm not). That has to be one of the worst insults. I just look them dead in the eye and say "nope, I just got fat." Then I give them a withering smile and walk away. Hopefully that keeps them from every embaressing anyone else like that. Ugh.

My sweet grandfather asked if I was pregnant on my wedding day <_<


Alright, don't worry even if things end up a bit too heavy

We'll all float on, alright

Well we'll float on good news is on the way...

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VENTING: I'm fed up and sick of these types of comments, too... (pardon the puns).

I'm one of the 'naturally' thin-since-youth celiacs, but I did gain weight (20 pounds) in my young 20's, and then lost it (plus 15 more!), pre-awful-clinical symptoms developing (It's NOT unusual, btw, for a celiac to gain weight before the 'typical' problems of losing too much and of trying to keep it on/gain it back set in! Perhaps when the initial damage begins, one's body tries to pack on the pounds to ward off starvation? Maybe this explains celiacs who gain weight?).

Anyway...

My own sister keeps saying "Since you self-diagnosed..." to me, as she keeps trying to act around our family like I don't 'really have it!'...she completely ignores the facts (that she well knows) that a GI doc also diagnosed me via blood testing after I was over 50 days gluten-free, and that I have one of the genes for celiac.

My sister-in-law isn't much better...As she continues to eat crap, and too much of it, and gets fatter, too (as my sister is doing), she keeps telling me to eat more, and says so in a way to try to make me feel unattractive for being thin (you have to hear the intonation to know what I mean...)...She does this to me ALL the time, even though I eat (and she sees me eating) a completely normal amount of food for a woman, including goodies, and I do NOT ever go hungry.

I just thought.... perhaps those who eat too much are being driven by their own food allergies, etc...

Well...we seem to agree that we get these types of comments mainly because the people who make them do not want to take responsibility for their own health issues, and seem to be trying to deflect attention away from their own nagging inner voices...

I wish I could e-mail this thread to them both...but, then they'd hate me...

So... I just accept that there are few people that REALLY 'get it' outside of other celiacs...and that's life.... :(

I've REALLY enjoyed reading this thread...nice to know I'm not the only one getting these rude, non-loving, remarks...thanks to the thread starter!


"Get busy living

or get busy dying."

From: The Shawshank Redemption

--------------------------------------------------------------

gluten-free since Jan 1 '05

Positive response to diet within days, felt 'alive again' within 2 weeks

Feb 22 '05:

Diagnosed "Celiac Sprue, and IBS" by a GI doc, Dr. David Lin of Danville, CA

via blood testing 53 days after I began the gluten-free diet on my own:

Test results at 53 days POST going gluten-free were:

Gliadin AB IgA = 29.9

Since 30+ = positive for Celiac Disease when ingesting gluten, my doc

diagnosed me with Celiac Sprue then and there.

Gliadin AB IgG was 5.6 at that point

-------------------------------------------

Endoscopy with biopsies, AND colonoscopy with biopsies were done,

only to rule out other possible GI problems (especially intestinal

lymphoma) - My doctor told me the results indicated "no current damage

found" - and that as long as I stay gluten-free, I don't need another

biopsy for ten years.

Follow-up blood testing was done about one year later, by the same

Gastro doc, in Nov '05:

Gliadin AB IgA =26, Gliadin AB IgG <1

Blood testing done again by him, 5 months later (March '06)

He then told me my tests results were back to normal, and "Keep up the

good work! You can't argue with success!" :-)

I now see him one time per year for routine testing to make sure I am

staying gluten-free.

------------------------------------------------------------------------------------------

ADDTIONALLY:

I was also diagnosed as positive for antibodies and autoimmune

response to gliadin by Enterolab, via stool specimen taken 56 days

gluten-free

and I have one of the two genes that 'cause' Celiac Disease:

"HLA-DQ8," via Enterolabs cheek cell test kit

---------------------------------------------------------------------

I began a COMPLETE 'Gluten-free Casein-free' diet in Nov '05, due to:

"positive" for casein antibodies from Enterolab (in Feb '05)

and

"positive" for casein IgG (Elisa) via York Labs' finger-prick blood

test, Sept '05

and continued 'stomach pains,' although nothing compared to before

going gluten-free....

UPDATE: ALL remaining symptoms disappeared within weeks of going gluten-free&CF!

**********************

My PAST illnesses I believe are attributable to Untreated Celiac Disease:

Recurrent ear and throat infections in childhood

Frequent childhood stomach aches, underweight, picky eater

Tooth enamel problems/excessive cavities in childhood

Diagnosed in 20's with non-allergic rhinitis

Two spontaneous abortions (childless)

IBS diagnosis at age 28 (all better post going gluten-free and casein-free)

["Horrible" digestive problems from ages 32-47 - excess gas,

diarrhea gone post gluten-free!]

Reflux diagnosis at age 35 ('reflux' gone post gluten-free)

ADHD diagnosis at age 38 and at age 48 (not as bad with Gluten-free Casein-free diet)

Broke elbow in 2 places, age 39

Osteopenia diagnosed at age 44 (bone scan revealed thinning of spine -

taking Calcium and Vit D now)

Fibromyalgia diagnosis at age 40 (fatigue and pain all gone post gluten-free!)

Minor depression with anxiety diagnosed at age 42 (taking Paxil)

Skin cancer - squamous at age 43 and pre-melanoma at age 45

Adult acne (this, too, went away, but only after going dairy-free)

Topical dermatitis (so bad I needed steroid shots) diagnosed at age 46

(That's gone now, too!)

Excessive bruising of skin began at age 45:

I was told by derm doc AND family physician "That's just thin, aging

skin, nothing you can do about that" (GUESS WHAT?! ...NO unusual

bruising POST going gluten-free! I can now wear skirts and shorts

again!)

SO many years of being sick...

Hopefully, others will benefit from Science, and the increasing media

attention being given to Celiac Disease and gluten-based illnesses,

and will not have to go through what I, and others on here, have had

to go through.

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"SINCE YOU'RE SELF-DIAGNOSED"???????????????!!!!!!!!!!!!! So it doesn't count that since you've been gluten-free your life has gotten tremendously better? You're not as sick as you were? AND the fact that the GI doc has diagnosed you, as well???? Holy mackerel -- my sister and I are really, really, close. If she said something like that to me, I'd probably slug her! Chair or no chair!

I don't get many comments like that, probably because I AM in the chair. People are shocked, though, when I tell them that gluten put me there.

Because I don't have the GI symptoms, though, I have had people say that "they thought that celiac patients were really skinny." Gee, thanks. I have found out, though, that the lymphedema that I have from the autonomic dysfunction . . . it is throughout my legs, INCLUDING my thighs, and in my abdomen. I actually lost one size in jeans after a therapy treatment!

I think that people are basically uninformed about Celiac, and in most cases, ignorant. If anyone had to go through what you guys go through for three days, they would take back EVERYTHING they have ever said about wanting to have your disease. I can't imagine. I had IBS -- that was my diagnosis after the colonoscopy and endoscopy, also -- but now because of the brain thing, that's gone -- and another problem has developed (won't go into it). Just the IBS was bad . . . what you are going through is on the scale of AWFUL.

I am so sorry that people are SO insensitive as to say things like that. With all that you have to deal with, that is the LAST thing you need to have presented to you. I applaud your ability to bite your tongue, although I would imagine that at times you bite it until it bleeds. You are much better than the people making those comments. Just try to remember that . . . . . xoxoxoxoxoxoxLynne


Lynne

Courage does not always roar. Sometimes it is the quiet voice at the end of the day that says, "I'll try tomorrow".

"There's not a word yet, for old friends we've just met. Part Heaven, part space, or have I found my place? You can just visit, but I plan to stay, I'm going to go back there some day." Gonzo, in the Muppet Movie

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I'm slightly overweight, not skinny, but still have the same symptoms, pain, etc. I'm one of those people who has always been slightly overweight, not obese, and can't seem to lose that last 20 pounds no matter how much I exercise, how sick I get or how little I eat.

I've heard an equally frustrating comment several times. It goes like this: "You can't eat wheat or milk or eggs or soy? Oh my gosh, if I couldn't eat those things I'd be SOOOO skinny!" Then they look at me with a kind of sheepish "Oops" look. I try to laugh it off and say that when I first found out about my food restrictions I did lose a lot of weight (and was almost anorexic), but that it came back on as soon as I discovered what I could eat.

Don't you know that skinny = healthy in most people's mind?

Dear lonewolf,

I am having difficulty losing weight as well. It is better now that I have gone gluten-free. Pilates has really helped, and it is easy on my fibromyalgia. The frustration of having gluten intolerance or celiac is unreal. I was barely taking in 1,200 calories a day and 30 grams of fat and walking briskly 20 minutes a day, five days a week, and still did not lose a single pound after three months! Naturally, the doctor blamed me for it. Yeah, there is no such thing as thyroid trouble, adrenal gland burnout, or yeast candida that make you fat when it is not your fault. And doctors are smart too! LOL! Hey, how many doctors does it take to screw in a lightbulb? None! They would not know where to put it! :lol:

Sincerely,

NoGluGirl


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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NoGluGirl,

In all seriousness, have you been checked for a thyroid problem? I have hypothyroidism, triggered by Celiac's of course, and I had an extreme weight problem. Nowadays, after being given synthroid, my frame has gone from 185 to 142. I think you should be tested right away. I was actually diagnosed 6 years after getting Celiac's. It is something that gives you chronic fatigue, so are you suffering from this? Please check into it. If you test positive, then your weight will come down. Good luck! :)

Vicki

11 years and still counting

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NoGluGirl,

In all seriousness, have you been checked for a thyroid problem? I have hypothyroidism, triggered by Celiac's of course, and I had an extreme weight problem. Nowadays, after being given synthroid, my frame has gone from 185 to 142. I think you should be tested right away. I was actually diagnosed 6 years after getting Celiac's. It is something that gives you chronic fatigue, so are you suffering from this? Please check into it. If you test positive, then your weight will come down. Good luck! :)

I agree that you should get your thyroid checked. I discovered I had low thyroid at the same time I found out all my food intolerances. My weight went down really fast and I think I lost over 40 pounds, but I did just about have an eating disorder because I was so afraid to eat anything. I've been on the thyroid (Armour, with brief stints on Synthroid and Levoxyl) for just over 10 years now and I have to say that it doesn't help keep the weight off anymore.

I teach PE, coach basketball and exercise regularly, and still carry extra weight. My husband teases me that I'm very "famine resistant" and it there's ever a famine I'll be a long-term survivor. I have to keep reminding myself that I am healthy and that's more important than being skinny.


Liz

Started Specific Carbohydrate Diet on 8-16-09 because son was diagnosed with Ulcerative Colitis and want to give him moral support.

Diagnosed with Minimal Change Nephrotic Syndrome in 2003. Discovered that going completely gluten-free put me in remission.

I would have despaired unless I had believed that I would see the goodness of the Lord in the land of the living. Psalms 27:13

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I teach PE, coach basketball and exercise regularly, and still carry extra weight. My husband teases me that I'm very "famine resistant" and it there's ever a famine I'll be a long-term survivor. I have to keep reminding myself that I am healthy and that's more important than being skinny.

This is absolutely true. People who tend to put on weight in times of plenty have undoubtedly been better able to survive through famines and continue to procreate, while people who started a long famine with no excess weight were undoubtedly likely to die off quicker. So plump people pass their genes on to their children, who also have the ability to withstand famines. Unfortunately, for the first time in the existence of humans, there are no famines to keep us plumpies from bloating up and staying that way.

We are designed only to procreate successfully and pass our genes on to the next generation. It's a nice fluke if our bodies hang together to a ripe old age.


Nothing

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