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TriticusToxicum

Anyone Else In Central Upstate Ny?

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Hi all, I am from Conklin, NY. Did anyone else get hit by the June flood. Boy it is hard being gluten-free in a FEMA trailer. Major break out of DH going on and it is miserable. Almost back in the house though

I'm from Oneonta, up the Susquehanna from you. I didn't get flooded out of my house, but the town of Oneonta and surrounding area was hammered. Much of the city was under water for the better part of a week. The sewage treatment plant was underwater and nonfunctioning until September (sorry about the raw sewage dumped into the river :ph34r: ) Many of the roads are still showing some damage from the flood.

I hope your situation turns around for you very soon.


Richard

"Not all who wander are lost" - J.R.R. Tolkien

Diagnosed 3/8/05

Sister also Celiac

Risus remedium optimum est

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I'm from Oneonta, up the Susquehanna from you. I didn't get flooded out of my house, but the town of Oneonta and surrounding area was hammered. Much of the city was under water for the better part of a week. The sewage treatment plant was underwater and nonfunctioning until September (sorry about the raw sewage dumped into the river :ph34r: ) Many of the roads are still showing some damage from the flood.

I hope your situation turns around for you very soon.

'Willi Wonka Chocolate River' as my 13 year old liked to call it has cleared up and behaving itself for the most part. Gave us a scare a couple times though when it creeped back up the bank. Things are finally moving along with a new crew working on the house. I will even have my very own gluten free kitchen pantry cabinet. With 4 kids it is hard to keep them out of my gluten-free snacks and especially the fruity pebbles.

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I'm from Albany!

And, does anyone have information on support groups around here? I know that there is one at St. Peter's Hospital but they only meet a few times a year, and I would love to go to a celiac disease group weekly/monthly. Maybe AmyMarie? Any in Saratoga?

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I've been to the grapefest in Naples...never knew you could/would make a grape pie!

NY/NYC - uh huh!

Pic is from the Catskills last year. I prefer the Adirondacks (call me a mountain snob! :lol: ), but the Catskills are closer (and easier on the knees!).

I was for the Bronx and really grew up in Greenwood Lake NY (on the Jersey border about 50 min. northwest of the city), a small country town. I absolutely know what you guys mean about NY/NYC, I moved to California in '89 - WOW, I just realized how long I have been living out here - yikes :huh:

People were so absolutely rude once they heard me talk, granted I did have a very strong Bronx accent, but they assumed I was what everyone stereo types NYC as - Honestly I can't remeber what I wanted to say/word I wanted to use.

But then on the other hand I thought of California as palm trees, beaches and the ocean, boy did I have a rude awakening when I moved in with my brother in Union City California!! I hated it here for the first year!!


IBS 1994

Endometriosis

Hashimoto's auto immune disease

Diverticulosis

Celiac disease April 2006 - neuro symptoms I am assuming from celiac disease

HLA DQ 2 (celiac disease) and HLA DQ 6 (GS) either way my parents made sure I had something!

Insomnia

Hyperflexibility

Daughter 6 y/o (5 at diagnosis) celiac disease via labs (all >100) and flattened biopsy. NO symptoms!!

Daughter 8 y/o with BM ="C" since birth and breast fed, osteopenia, SEVERE eczema up to 5 y/o, now on and off (-) via labs and biopsy. HLA DQ 2 and HLA DQ 8! and possibly ADHD.

Son 3 y/o also HLADQ2 AND DQ 8! Negative panel

Husband MEXICAN and he has DQ 8! His family refuses all and anything with celiac disease, same with his PCP!

"What doesn't kill us makes us stronger..." Right? I think that's the saying.

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I'm from Albany!

And, does anyone have information on support groups around here? I know that there is one at St. Peter's Hospital but they only meet a few times a year, and I would love to go to a celiac disease group weekly/monthly. Maybe AmyMarie? Any in Saratoga?

Hi there,

My sister lives downstate and has celiac disease, newly dx'd. I was 1st last April and she was in denial until mid-January 2007..

Anyway, my point is she may be moving up to the Albany area by this summer.

Have you called GIG or Celiac Sprue Assoc.? Their websites are where I found our support group.


IBS 1994

Endometriosis

Hashimoto's auto immune disease

Diverticulosis

Celiac disease April 2006 - neuro symptoms I am assuming from celiac disease

HLA DQ 2 (celiac disease) and HLA DQ 6 (GS) either way my parents made sure I had something!

Insomnia

Hyperflexibility

Daughter 6 y/o (5 at diagnosis) celiac disease via labs (all >100) and flattened biopsy. NO symptoms!!

Daughter 8 y/o with BM ="C" since birth and breast fed, osteopenia, SEVERE eczema up to 5 y/o, now on and off (-) via labs and biopsy. HLA DQ 2 and HLA DQ 8! and possibly ADHD.

Son 3 y/o also HLADQ2 AND DQ 8! Negative panel

Husband MEXICAN and he has DQ 8! His family refuses all and anything with celiac disease, same with his PCP!

"What doesn't kill us makes us stronger..." Right? I think that's the saying.

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Hi Everyone,

I am not in Upstate anymore but I loved reading this post. I went to school at Syracuse and LOVED it there. I worked at Song Mountain in Tully my senior year. Clearly the best job I've ever had (alright, most fun job anyway). I have family and friends in a lot of the places you mentioned :)

Just popping in to say "hey" and I love NY.


Visit to the er 4.1.06

blood test, positive for celiac disease 4.6.06

Endoscopy/biopsy/last day of gluten 5.25.06

Misdiagnosed for 2 decades. :( Feeling great now :)

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