Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Anyone Else In Central Upstate Ny?


TriticusToxicum

Recommended Posts

TriticusToxicum Explorer
Hi all, I am from Conklin, NY. Did anyone else get hit by the June flood. Boy it is hard being gluten-free in a FEMA trailer. Major break out of DH going on and it is miserable. Almost back in the house though

I'm from Oneonta, up the Susquehanna from you. I didn't get flooded out of my house, but the town of Oneonta and surrounding area was hammered. Much of the city was under water for the better part of a week. The sewage treatment plant was underwater and nonfunctioning until September (sorry about the raw sewage dumped into the river :ph34r: ) Many of the roads are still showing some damage from the flood.

I hope your situation turns around for you very soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jcgirl Apprentice
I'm from Oneonta, up the Susquehanna from you. I didn't get flooded out of my house, but the town of Oneonta and surrounding area was hammered. Much of the city was under water for the better part of a week. The sewage treatment plant was underwater and nonfunctioning until September (sorry about the raw sewage dumped into the river :ph34r: ) Many of the roads are still showing some damage from the flood.

I hope your situation turns around for you very soon.

'Willi Wonka Chocolate River' as my 13 year old liked to call it has cleared up and behaving itself for the most part. Gave us a scare a couple times though when it creeped back up the bank. Things are finally moving along with a new crew working on the house. I will even have my very own gluten free kitchen pantry cabinet. With 4 kids it is hard to keep them out of my gluten-free snacks and especially the fruity pebbles.

  • 3 months later...
MegNY Newbie

I'm from Buffalo too!

CanadianKaren... The Library -- good times!

--Meg

  • 3 weeks later...
SocietyInDenial Newbie

I'm from Albany!

And, does anyone have information on support groups around here? I know that there is one at St. Peter's Hospital but they only meet a few times a year, and I would love to go to a celiac disease group weekly/monthly. Maybe AmyMarie? Any in Saratoga?

jacqui Apprentice
I've been to the grapefest in Naples...never knew you could/would make a grape pie!

NY/NYC - uh huh!

Pic is from the Catskills last year. I prefer the Adirondacks (call me a mountain snob! :lol: ), but the Catskills are closer (and easier on the knees!).

I was for the Bronx and really grew up in Greenwood Lake NY (on the Jersey border about 50 min. northwest of the city), a small country town. I absolutely know what you guys mean about NY/NYC, I moved to California in '89 - WOW, I just realized how long I have been living out here - yikes :huh:

People were so absolutely rude once they heard me talk, granted I did have a very strong Bronx accent, but they assumed I was what everyone stereo types NYC as - Honestly I can't remeber what I wanted to say/word I wanted to use.

But then on the other hand I thought of California as palm trees, beaches and the ocean, boy did I have a rude awakening when I moved in with my brother in Union City California!! I hated it here for the first year!!

jacqui Apprentice
I'm from Albany!

And, does anyone have information on support groups around here? I know that there is one at St. Peter's Hospital but they only meet a few times a year, and I would love to go to a celiac disease group weekly/monthly. Maybe AmyMarie? Any in Saratoga?

Hi there,

My sister lives downstate and has celiac disease, newly dx'd. I was 1st last April and she was in denial until mid-January 2007..

Anyway, my point is she may be moving up to the Albany area by this summer.

Have you called GIG or Celiac Sprue Assoc.? Their websites are where I found our support group.

powderprincess Rookie

Hi Everyone,

I am not in Upstate anymore but I loved reading this post. I went to school at Syracuse and LOVED it there. I worked at Song Mountain in Tully my senior year. Clearly the best job I've ever had (alright, most fun job anyway). I have family and friends in a lot of the places you mentioned :)

Just popping in to say "hey" and I love NY.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 years later...
Kre8sioN Newbie

Newburgh, Ny (town of) new here, adjusting

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia commented on Scott Adams's article in Summer 2026 Issue
      1

      New Study Finds 1 in 10 Celiac Patients May Have Additional Autoimmune Disorders (+Video)

    2. - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      1 Year Elimination Diet journey

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      1 Year Elimination Diet journey

    4. - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      1 Year Elimination Diet journey

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      1 Year Elimination Diet journey

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,058
    • Most Online (within 30 mins)
      10,442

    Sandi Barnes
    Newest Member
    Sandi Barnes
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      makes sense. sometimes you learn one path and never question it until you see someone take a different path
    • xxnonamexx
      Interesting I read that toasted kasha groats have nutty flavor which I thought like oatmeal with banana and yogurt. Yes quinoa I have for dinner looking to switch oatmeal to buckwheat for breakfast. I have to look into amaranth 
    • Aretaeus Cappadocia
      I've never tried bananas or yogurt with kasha. It would probably work but in my mind I think of kasha as being on the savory side so I always add butter, peanut butter, or shredded cheddar cheese. Next time I make it I will try yogurt and banana to see for myself. Amaranth has a touch of sweet and I like to pair it with fruit. Quinoa is more neutral. I eat it plain, like rice, with chicken stock or other savory things, or with coconut milk. Since coconut milk works, I would think yogurt would work (with the quinoa). I went to the link you posted. I really don't know why they rinse the kasha. I've eaten it for decades and never rinsed it. Other than that, her recipe seems fine (that is, add the buckwheat with the water, rather than wait until the water is boiling). She does say something that I forgot: you want to get roasted/toasted buckwheat or you will need to toast it yourself. I've never tried buckwheat flakes. One potential issue with flakes is that there are more processing steps and as a rule of thumb, every processing step is another opportunity for cross-contamination. I have tried something that was a finer grind of the buckwheat than the whole/coarse and I didn't like it as much. But, maybe that was simply because it wasn't "normal" to me, I don't know.
    • xxnonamexx
      The basic seems more like oatmeal. You can also add yogurt banana to it like oatmeal right. I see rinsing as first step in basic recipes like this one https://busycooks.com/how-to-cook-toasted-buckwheat-groats-kasha/ I don't understand why since kasha is toasted and not raw. What about buckwheat flake cereal or is this better to go with. 
    • Scott Adams
      Celiac disease can have neurological associations, but the better-described ones include gluten ataxia, peripheral neuropathy, headaches or migraine, seizures, cognitive symptoms, and, rarely, cerebral calcifications or white-matter changes. Some studies and case reports describe brain white-matter lesions in people with celiac disease, but these are not specific to celiac disease and can have many other explanations. A frontal lobe lesion could mean many different things depending on the exact wording of the report: a white-matter spot, inflammation, demyelination, a small old stroke, migraine-related change, infection, trauma, vascular change, seizure-related change, tumor-like lesion, artifact, or something that resolved on repeat imaging. The word “transient” usually means it changed or disappeared, which can happen with some inflammatory, seizure-related, migraine-related, vascular, or imaging-artifact situations.  Hopefully they will find nothing serious.
×
×
  • Create New...