Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Becoming Gluten-free Increases Sensitivity?


Shawn

Recommended Posts

Shawn Apprentice

Hi -

I've been off of gluten for 1 and 1/2 months now, and it seems the longer I'm off, the more sensitive I am. The slightest hint of anything makes me itch! And I'm allergic to sulpha drugs (like Dapsone). Any ideas as to what to do? It's so frustrating.

I am trying to be very vigilant (I think). Today I had popcorn at the movies, and made sure that the butter topping was just butter, but I started itching afterwards! From popcorn that must have had a speck of something on it!! That would not have made me itch a couple of weeks ago.

What are your ideas?

Thanks,

Shawn :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ladybugpumpkin Contributor

You may want to contact the company that makes the popcorn. I know that Kerasote theaters in Indiana do not have Gluten Free Popcorn. I contacted the company, and strangely enough...it was the SALT that has the gluten in it...not the butter. He suggested that I call the manager in advance and they could clean the popcorn maker and make some without the salt. However, I don't do that because it seems like a lot of trouble and I'm not sure they'd REALLY clean it anyway. Just a little insight. Hope you figure out what's doing it!

CarlaB Enthusiast
You may want to contact the company that makes the popcorn. I know that Kerasote theaters in Indiana do not have Gluten Free Popcorn. I contacted the company, and strangely enough...it was the SALT that has the gluten in it...not the butter. He suggested that I call the manager in advance and they could clean the popcorn maker and make some without the salt. However, I don't do that because it seems like a lot of trouble and I'm not sure they'd REALLY clean it anyway. Just a little insight. Hope you figure out what's doing it!

Really? I never reacted to Kerasotes popcorn ... I read the popcorn and the butter, but you're right, never looked at the salt they use. It is the salt they use or the salt you can put on it yourself? I THOUGHT I had checked it out there ... I'd read the salt ingredients myself if I still lived there ... I find that one hard to believe ... not that I don't believe YOU, I just am having trouble believing that the person you spoke with knew what they were looking for.

Shawn, your theater has REAL butter??? I know a small, local theater around here that does, but I thought that was pretty rare ... lucky you!!!

I did become hypersensitive to gluten once I got off it. I have had to go to a very simple diet of meat and veggies, with a little fruit for some time. A lot of people need to do this to heal. It might help you for a while .... then you can add things in one at a time and see how you react. Lots of time other sensitivities show up once you eliminate gluten.

Rusla Enthusiast

Theater's have not used real butter for decades. Maybe the staff says that is what it is but it isn't. Their buttered popcorn always made me sick. They refer to it as a butter topping meaning it is not butter. If by some fluke of fate it is real butter you could be reacting to the casein in the butter which, for many Celiacs causes the same reaction as gluten.

Shawn Apprentice

Hi - thanks for your replies. It was indeed real butter (it was an indy theatre and they let me read the ingredients). It had just been popped and smelled irresistible. However, I didn't think of the salt. I definitely reacted to SOMETHING. I'm out in Seattle. You can always come out here for real buttered popcorn. As I said, it was an indy theatre, and they always seem to have "real" ingredients.

Milk products, eh? Never reacted to them before. I feel like miss high maintenance. And I was high maintanance before this whole thing started!

I'll have to pop my own Newman's popcorn next time I go to a movie. Then I'll be safe!

Thanks again,

Shawn

CarlaB Enthusiast

Most theaters don't use real butter, but we have one here in Cincy that does, too. They even charge extra for it. It's worth it, too!! ;)

ladybugpumpkin Contributor

Yeah, the salt thing was a little weird. The person who responded was indeed talking about the salt that is already on the corn...not the kind you add after you get it. He sent me the list of ingredients and while I can't remember exactly what the ingredient was, it was a "no-no" for sure! So, I don't eat the popcorn anymore.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Do you happen to still have the email they sent you?

ladybugpumpkin Contributor

Unfortunately, I don't. Sorry.

CarlaB Enthusiast
Unfortunately, I don't. Sorry.

I was just curious what the questionable ingredient was.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 commented on Scott Adams's article in Summer 2026 Issue
      5

      Court Ruling Raises Big Questions About "Gluten-Free" Food Safety in Retirement Communities (+Video)

    2. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      6

      Skin issues

    3. - Scott Adams replied to N Young's topic in Doctors
      1

      Frustrated with Providers

    4. - Jmartes71 replied to Jmartes71's topic in Dermatitis Herpetiformis
      6

      Skin issues

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,116
    • Most Online (within 30 mins)
      10,442

    DiDi53
    Newest Member
    DiDi53
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      I’m sorry you’re going through all of this. It sounds very stressful, especially when you feel that your symptoms are not being taken seriously. Until you are seen next week, it may help to keep the focus very practical: take clear photos of the skin sores, write down a timeline of symptoms, list all medicines, eye drops, supplements, implants/leak history, and any test results, and bring that to the dermatologist. If there is drainage, spreading redness, fever, worsening pain, eye involvement, or signs of infection, that needs prompt medical care. I would be cautious about assuming parasites or staph without testing, and also cautious with new supplements or putting vitamin C directly on sores, since irritated skin can get worse. A dermatologist can culture lesions, biopsy if needed, and refer to infectious disease if the findings point that way. On the celiac side, I understand your concern for your son, but being HLA-DQ2 positive does not by itself mean he has celiac disease; it means he has a genetic risk. If he is eating gluten now, this is actually the best time for proper celiac blood testing before he tries a gluten-free diet. His symptoms, weight, congestion, and family history are worth discussing with a gastroenterologist, but he should not be told he has celiac based only on HLA status. For your own care, try to keep pushing for objective testing and clear documentation in your records, because that is often what gets doctors to take the next step.
    • Scott Adams
      You are not being unreasonable. A negative celiac blood test after 25 years gluten-free does not rule out celiac disease, because the antibodies usually fall once gluten is removed. It may simply show that your gluten-free diet is working. I would ask the doctor to add a clear note to your chart stating that the test was done while you were strictly gluten-free, that you have a long history of dermatitis herpetiformis and strong clinical response to the gluten-free diet, and that celiac disease remains your working diagnosis unless properly reassessed with a supervised gluten challenge, which you may not want or need at this stage. This should help prevent future confusion. It is understandable to feel frustrated, especially after decades of being dismissed, but this may be fixable with a calm conversation and a chart correction rather than changing doctors.
    • Scott Adams
      These articles may be helpful:    
    • Jmartes71
      I went to ER on the 30th because I didn't want to wait and saw dr at desk for intake. I went for NOTHING!. ER Dr was very nice but made it seem as if I was a nut case rater than coming in for real issues calmly explaining its staph! Staph,  by look no blood test, no skin test. No looking in my nose and throat was given a prescription for jock cream and some pills ! I made the mistake of saying Im waiting on Infectious disease. She asked how did I get referral and I said I did it online.The next day I checked the status and it was denied! I did get  a referral to the dermatology office i went to last year that over charged me and did a biopsy on me stating inconclusive! I went to another dermatologist and he stated I should see Infectious disease at place i put in referral. With that I contacted that dermatologist and waiting to see if he thinks dermatology or Infectious disease is the route.I do have appointment for dermatology next week.Until then i did purchase Zahler paraGuard advance intestinal  flora support  from Sprouts. Im also very alarmed that the fact celiac isn't addressed properly infact its downplayed. When I had my son tested for HLA-DQ2 and it came out positive because he is eating everything and he is extremely skinny but he isn't dealing with severe diagestive issues because thats all he knows NOW or yet because he is still young 21.I too didn't know any difference when i was that age because thats all we know.Life changes will get him in latter years im afraid because what im dealing with.That scares me.The specialist we went to was only about congestion he is getting.He is getting congestion because he is eating what he isn't supposed too! Zero talk about celiac and HLA-DQ2 positive. Only talk was he is congested because we live in the Valley! They wanted to do surgery! I did write again to our district leader considering when I did call, the guy stated he knew all about celiac. I really wanted to tell him NO YOU DON'T but held my tongue. For my skin sores the cream given didn't do anything because ive also had in past.Ive been putting liquid vitamin c on it and taking vitamins which is making a little difference just with the last few days of doing.
    • N Young
      I have been Gluten Free for 25 years and havent eaten gluten knowingly during that time.   Such a rocky life, I have had issues since I was 16 when physicians stated I needed to see a psychiatrist. I am now 70 years old. I also had Dermatitis herpetiformis. I had negative tests on biopsy, blood test etc but no doctor mentioned that I needed to do a gluten challenge. I went on an elimination diet and found relief on the Dermatitis within a month. I have no doubt that I am celiac and very sensitive now. Now my issue is that I changed physicians due to retirement and he performed a blood test and included a celiac test. I was very upset because I did not request the test and had not been eating gluten for 25 years. Of course the test was negative.  My question - Will this cause me any issues with health treatment if my records now have that I dont have celiac? I like this physician and I am appalled that he performed the test. (he told me his brother is also celiac).  I feel that we are still living in the dark ages. I dont want to cause problems because I rarely need health treatment since I live a fairly healthy lifestyle.  Since I am at this age and been through so much getting to this point am I being unreasonable for being upset? I am not expecting to see this physician for another 2 months.  Need to know if I can expect issues with future treatments. How can a physician not know about the gluten challenge this day and age?   
×
×
  • Create New...