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For The "real" Teens


Kassie

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sarahann324 Newbie

i live in PA.

  • 2 weeks later...

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  • Replies 126
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swimchicky Newbie
Yay that's awesome! I'm from the bay area :)

i'm from the bay area too! i never knew there were other celiacs up here! has anyone been to the celiac conference at stanford university? they stopped holding it a few years ago, but it was great while it lasted! also, check out the blog on my profile! (it's a link)

swimchicky a.k.a. tan celiac girl

  • 1 month later...
Yellow Rose Explorer

I'm from Texas originally but I moved to Nebraska four years ago.

  • 2 weeks later...
Angels~Exist Newbie

I'm from Missouri...probably the only one! :lol:

Endevor Newbie

I'm from Wyoming, but go to school in Idaho.

LBethanyC Newbie

I'm from Canada. :).

  • 2 weeks later...
MasterGberry Newbie

I am from LA in California. Anyone else from around here?


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  • 5 months later...
SJR Newbie

Indiana :)

  • 4 weeks later...
flowerpower12 Rookie

I used to live in Idaho!

Thats my home..I'm in OK for now but we're working on getting home..we cant really do that though until I'm better and we find out whats goingon with me..

Im not diagnosed yet but I think I might have it.

Who knows.

Rebecca Madrid Newbie

I'm from Canada. :).

Whereabouts?? I'm from Ontario, but living in Newfoundland for school and was diagnosed about 3 weeks ago.

  • 2 weeks later...
gintare519 Newbie

hi guys. i was just wondering where you guys are all from. everyone seems to be like from the east and i don't know anyone around the west with it. i live in idaho. so where do u guys live? just thought i would ask

~Kassie~

Wisconsin! xD

the cheese state. with lots of bakeries. O.O

  • 1 month later...
B R I A N A Apprentice

Hey,

My names Briana and I'm seventeen.

I'm actually living in the overpopulated Southern California.

I'm planning on going to college in Colorado and I'm also thinking about Idaho.

In addition to celiac disease I have a dairy allergy, am a vegetarian, and have hypoglycemia.

If you ever have any questions or just want to talk feel free.

My email is:

Brii_1992@yahoo.com

Eilidh Newbie

what part of the bay area i am from palo alto. you should join the bay area celiac teens support group!

Hey I'm from B.C. Canada...

Anyone from Canada?

  • 5 weeks later...
Rebecca Madrid Newbie

anyone frommm cannnada?

Ontario you?

Rebecca Madrid Newbie

i'm from canada! ontario

Me too!!

Where in ON?

  • 3 weeks later...
Hineys <3 Newbie

im from tennessee

Tennessee? That's kinda closer to me. I'm from Kentucky and everyone on here seams to be from other side of the continent. lol

Hineys <3 Newbie

Indiana :)

Where about in Indiana? Cuz I live in Kentucky but go to Madison Indiana all the time.

Hineys <3 Newbie

Im from Kentucky and No one besides my family has it around here, and besides my brother, Im the youngest!

  • 3 weeks later...
SoFLO Newbie

My name is Doug. I'm a 19 year old college student living in Miami, FL (lived here all my life). Only one of my family and friends who has celiac, makes it tough.

manpriya Newbie

i am from india.............any teen from india on dis site????????????

zombietommie Newbie

I'm from Western WA just north of Seattle.

I know two celiacs, but I have multiple intolerances/allergy thingies.

eeyore Collaborator

I'm from Raleigh, NC ...

  • 1 month later...
fiwen30 Newbie

19 y/o female from Derby, UK here. Coeliac and non-meat eater. Anyone else in the area?

  • 2 months later...
Mikki.G Newbie

anyone frommm cannnada?

hey im from ontario!! where are you from??

  • 1 month later...
Katah Newbie

Canada, Ontario. :-)

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  • Recent Activity

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    • Dora77
      For some context: I have type 1 diabetes (T1D) (since 11 years) and celiac disease(since 4 years) For about a year now, I’ve been experiencing permanent floating and undigested stools. I’ve had a pancreas elastase test done. The first result was extremely low at 44, but a second test came back at 236. My doctor said that since one result is normal, it rules out pancreatic insufficiency because, according to them, elastase levels would always stay low if that were the issue. However, could the 236 have been a false result? My doctor also thinks I don’t have pancreatic insufficiency because I’m able to gain weight. I also get hgh injections as my bone age is younger than my real age, this also contributes to weight gain, so I dont know if weight gain can rule out malabsorption. But maybe if I had real malabsorption I wouldnt gain any weight even with hgh? For celiac, I’m on a gluten-free diet, but there might b small cross-contamination from things like pepper labeled as “may contain gluten.” or sausages which dont have gluten ingredient but say may contain. My doctor said that small amounts like this wouldn’t harm me and even mentioned that an occasional small exposure to gluten may not do much damage (which seems questionable since I thought even tiny amounts could be harmful). She also said that when Im older (Im m17) I could try eating small amounts of gluten and do antibody blood tests to see if I can tolerate small amounts or not. For reference, I’m asymptomatic when it comes to celiac, so I have no idea if I’ve been “glutened” or not. My first concerning celiac blood test was semi high IgA, then 3 months later we did a check up and my IgA was high so it was confirmed celiac. Since than I’ve had celiac antibody tests done yearly to see how my diet is going, and they’ve been negative, but I’ve heard those aren’t always reliable. I’ve never had a follow-up endoscopy to confirm healing. I also always kept eating „may contain gluten“ food. (I live in Germany so I dont know if „may contain gluten“ is as risky as in the usa but I suppose both are as risky) These stool issues started around the same time I was doing excessive heavy lifting at the gym. Could stress or lifting have triggered this, or is that less likely since the symptoms persist even after I stopped lifting? Occasionally, I’ll feel very mild stomach discomfort, but it’s rare and not severe. My doctor (also a dietist) said floating, undigested stools could still be “normal,” but that doesn’t seem realistic to me. Could this be impacting my vitamin or protein absorption? I also did a fructose intolerance breath test and had a high baseline of 20 ppm, but it never increased—only decreased over time. I fasted for 12 hours and didn’t eat fructose beforehand, but my stomach didn’t feel completely empty during the test. Could this mean the test was inaccurate? For lactose intolerance, I did the breath test but only fasted 10 hours and had eaten lactose prior because I wasn’t aware of the proper diet restrictions. My results were: 14, 12, 15, 25, 35, 40, 40 ppm—which would be considered positive. But given that I didn’t fast long enough or follow the right diet, could this result be unreliable? Has anyone else dealt with similar symptoms? What ended up being the cause for you? And sorry for the long text!
    • TerryinCO
      The Docs' and NP haven't committed to Celiac determination yet but say go gluten-free diet because...  And I have with improved physical results - feeling better; overall functions better, and more energy.  Still 10 pounds down in weight but I still have BMI of ~23.  It's been just over a month now gluten-free diet.  I'm fortunate I get along with diary/milk well and most other foods. I wanted ask about this site's sponsor, gliadin X.  If this is legit, seems like a good product to keep on hand. Though it says it's only a safety for incidental gluten contact - not a substitue for gluten-free diet. What's your input on this? This may be sensitive subject since they're a sponsor. I've used resources here and other sites for information, gluten-free food/product lists. So thank you for all that support. That's it for now - Stay warm...  -2F this morning in Colorado!
    • cristiana
      I did suffer with gastric symptoms before diagnosis, but got all sorts of weird and wacky symptoms after going gluten free.   Things got much better once my antibodies fell to normal levels, but it took years (please don't panic, many people's go to normal levels relatively quickly when following a gluten-free diet). Causes of the symptoms you mention that I also experienced were iron supplements, a temporary dairy intolerance (this is common in coeliacs and should pass when your gut heals properly), and eating oats, as mentioned above.  Other symptoms I got were musculoskeletal pain after diagnosis, but again, once my coeliac blood tests were normal, I had no more pain. I did notice patterns emerging in foods that I reacted to and learned to steer clear of them, then gradually reintroduced them when my gut healed, such as soya, pure oats and dairy products.    You might like to keep a food diary. Cristiana
    • Jy11
      Well the conflicting results continue as the biopsy has come back negative. 😵‍💫 Waiting to discuss further but I really don’t know what to think now? Eight biopsy’s were taken from duodenum which surely should be sufficient if it was coeliac? 
    • Pasballard
      I have Celiacs and want you to be aware of the amount of weight you can potentially put on if you rely on gluten free snacks, bread etc.,they  are high in carbs.  I put on 25 lbs in a short amount of time.  Whole Foods are the best way to go but I struggle with this.  The cost of gluten free is also a problem.  I love black licorice but most have gluten.  My favorite chili seasoning as well.  The list is endless.  I take  Advil liquid gels and had no idea until I read this.  I hope you do better than I have done.  I feel I am destined to suffer daily no matter what.  My aunt didn’t take care of herself and died from complications.  I hope you can get on a good routine.
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