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Anxiously Awaiting

Rebecca150

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Rebecca150 Rookie
Rebecca150
Posted

I had my tests done on Tuesday and I am hoping I hear the results today....On one hand it would be really great to NOT have celiac but then on the other, if I do have it, at least there is something very simple and concrete I can do to make the tummy pain go away!

I did really good yesterday and the day before and didn't eat gluten anything. As far as I know. Tummy has felt pretty good but I will tell you what I am amazed about. I didn't need as much sleep last night as I usually do. I woke up this morning feeling pretty darned refreshed. Imagine that.

I figure if I DON'T have celiac, I will probably give the gluten free diet a go anyway. Just to see how I feel. But there would be wiggle room for the times when I can't stick to it faithfully. But if I DO have it, then I will be diligent about my diet. Honestly, I don't think it will be all that hard to stick to a gluten-free diet. Over the past few days I have eaten a huge variety of foods. And I feel pretty good.

Anyway, just wanted to throw my thoughts out there. I guess I am just anxious about getting my results back and I don't want to drive my family crazy talking about gluten free this or that! :-)

Rebecca

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DeerGirl Apprentice
DeerGirl
Posted

I had my tests done on Tuesday and I am hoping I hear the results today....On one hand it would be really great to NOT have celiac but then on the other, if I do have it, at least there is something very simple and concrete I can do to make the tummy pain go away!

Rebecca - I totally understand. Am waiting for my appt. with a specialist in a few weeks. And have the same thoughts you have.

I figure if I DON'T have celiac, I will probably give the gluten free diet a go anyway. Just to see how I feel. But there would be wiggle room for the times when I can't stick to it faithfully. But if I DO have it, then I will be diligent about my diet. Honestly, I don't think it will be all that hard to stick to a gluten-free diet. Over the past few days I have eaten a huge variety of foods. And I feel pretty good.

I too will try out the gluten-free diet regardless. One Dr of mine felt further testing was moot and I might as well go gluten-free now, but my concerns about secondary conditions make me want to get evaluated further, though part of me thinks..... is it really necessary? I'm on the fence, though I do have that appt with a specialist.

Anyway -- good luck either way with your test results! I'm sure the other *much* more experienced folk here will have good advice about trying out a gluten-free diet.

JerryK Community Regular
JerryK
Posted

Personally, I had Enterolab tests, which came out positive.

I had Blood tests that came out negative. I had gene tests that indicated I don't have the Celiac gene.

Since Enterolab is not accepted as mainstream medicine, you could argue that I don't have a problem and I don't need to be on a gluten-free diet, since I don't have Celiac.

The problem is, I have all the symptoms of Celiac and improved dramatically on a gluten-free diet. In my opinion, after months and months of denial, the only true test (aside from a biopsy) is if your symptoms go a way on the gluten-free diet.

Now with the current understand of Celiac/Gluten Intolerance, I may never know if I truly have Celiac. My dietary response was so dramatic, I couldn't ignore it. I was having D EVERY single day. I couldn't go for a run without getting the runs. After two months, the only D I've had is the morning after I cheated and had a cookie.

So, if you don't test positive, put it in perspective. All you'll really know is you don't test positive for Celiac, it doesn't mean you don't have it, it means they don't see any indication of it. If gluten makes you sick, your body doesn't like it. j

DeerGirl Apprentice
DeerGirl
Posted
So, if you don't test positive, put it in perspective. All you'll really know is you don't test positive for Celiac, it doesn't mean you don't have it, it means they don't see any indication of it. If gluten makes you sick, your body doesn't like it. j

JerryK -- in the end that's really it - if you feel better without gluten, then gluten-free is the way to go. Which is what I'll be doing in a few weeks regardless of testing outcomes to see how I do. Did you have extra-intestinal symptoms as well?

Rebecca150 Rookie
Rebecca150
Posted
  • Author

All my test are within normal range!

But I had a hot dog bun last night and my stomache had a slight ache in the middle of the night.

So, I may not have a diagnosible disease per se, but I don't think my body likesgluten!

I'm going for two weeks gluten free and then three days with it to see what my reaction is. I'd be more than happy to eat nothing but fruits, vegetable, seeds and nuts, lean meats, dairy and grains without gluten if it means I'll feel better!

Just wanted to let you all know. Thanks to everyone for responding to my questions over the past few days!

By the way, Jerry. I love your post script quote in your sig line.

DeerGirl Apprentice
DeerGirl
Posted
All my test are within normal range!

But I had a hot dog bun last night and my stomache had a slight ache in the middle of the night.

So, I may not have a diagnosible disease per se, but I don't think my body likesgluten!

I'm going for two weeks gluten free and then three days with it to see what my reaction is. ....

Rebecca -- good luck on your gluten-free diet trial. Did your doctor offer any advice on how to proceed from here?

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