Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Changes In Sleep Patterns


blueeyedmanda

Recommended Posts

blueeyedmanda Community Regular

I have never had a problem getting to sleep before I had celiac. I have been gluten free for about 3 years now. Since April I have noticed I have trouble falling asleep. I will toss and turn. I feel physically tired but as soon as I hit the pillow it is as if I am wide awake. Now here is the strange part, only happens during the work week.

Our usual bedtime is 11. We wake up between 6:15-6:30. Some nights I even take Tylenol PM. On the weekend..Fri/Sat night I can be half asleep by 11:30. It is driving me crazy. Last night I was so fed up, I was practically throwing pillows/blankets all over the house. I could not get comfortable to even begin to fall asleep. I felt so bad for John, he was doing everything he could to make me comfortable and calm but nothing would help. Tonight after work we are going to buy me some new pillows.

Anyone have this problem or have any suggestions?

I thought I was nervous about work, but things have been smooth at work since Jan so I am not sure what is causing this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Michi8 Contributor

I've got the same issue...I can be really tired, nodding off on the couch, but the minute I go to bed I'm tossing and turning. Or I fall asleep but wake frequently at night. On weekends I sleep in to catch up, but I will still wake up exhausted. I'm sure part of it is sleeping a different schedule on the weekends...it's really best to keep the same sleep schedule throughout the week to keep from resetting one's internal clock.

That said, I'm convinced that my sleep issues, plus my long list of other health complaints are thyroid and/or andrenal related. Unfortuantely, my labs are all "normal." I'm sure that I'm one of those people who have a normal looking TSH, but the number (2.49) is high for me. (I've read that anything over 1.5 should be considered hypo.)

Michelle

Guhlia Rising Star

Yeah, same here... I have a much harder time falling asleep now than I did pre-dx. I also have a very hard time staying asleep. I rarely feel well rested in the morning. I keep the same schedule all week long (stay at home mom) and it doesn't make a bit of difference for me. If you figure anything out, let us know. I would love to have a good night's sleep again. I always just thought that my sleep issues were related to becoming a mom. Maybe not though...

nowheatnomilk Rookie

good it's not just me... I'm up till 4:00 am sleep till 8:oo am. I guess Physical exercise should be a recommendition, I understand That now my body is absorbing nutriants so i am wondering if that might be why energy levels changing or starting to change.

Rosewynde Rookie

Have you tried some bed time routine to get you relaxed? I've always read some before sleeping. I frequently fall asleep with it still in my hands ; D If i try to go to sleep without reading it usually takes me a long while because my mind wanders over things I've done that day repeatedly. Maybe taking a brisk walk, hot shower, or hot cup of tea might help, I've heard of all of those being part of a bedtime routine.

blueeyedmanda Community Regular

Thanks everyone. I feel so much better knowing it is not just me. I am thinking of trying a relaxing bath/reading while in there tonight before bed. I will report back. I would also like to get my hands on some lavender oil, which they say relaxes you too.

KAG Rookie

Here are some ideas that might help you get to sleep. See if any might work for you. Fortunately I do not have sleep problems usually. I am back on gluten for awhile for testing and now I wake up in the middle of the night and can't get back to sleep. I have been taking a hot bath with lavendar and drinking something warm. It really helps. Also sleeping in complete darkness really helps.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

I never had any problems sleeping until 3-4 years ago, and then it was only once in awhile. About 2 years ago, suddenly I couldn't sleep through the night. Go to sleep but then wake in a couple of hours and couldn't get back to sleep.

Dr. checked and tried several things. Not sure I can remember them all. Cortisol levels was one--but it made me worse to treat that. L-tryptophan powder has helped. Doc said it helps about 50% of people. (The sleeping making protein in turkey).

For me it has seemed to be hormone related. Started going on low dose HRT and it helped but still fluctuates at times. Like I'll be fine for 6 weeks and then have 1-2 weeks where I need sleeping medication.

I've read with interest the celiacs who get over insomnia after gluten-free, but so far that's not me. Maybe eventually as I am only 2 months gluten-free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    2. - glucel replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    3. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

    4. - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,003
    • Most Online (within 30 mins)
      10,442

    michelinagiggles
    Newest Member
    michelinagiggles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @glucel,  There's a strong correlation between thiamine deficiency, hypoxia, and insomnia.  Thiamine is needed to help red blood cells carry oxygen.  In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular events.  Curiously, thiamine deficiency is correlated with excessive daytime sleepiness and oversleeping.   I found a combination of Tryptophan, Pyridoxine B 6, magnesium, and L-theanine works very well for inducing sleep.  Sometimes, I add Passion Flower Extract and/or Sweet Melissa.  There's no side effects the next morning with Passion Flower, it just induces sleepiness.  Sweet Melissa is groovy, and has anti-inflammatory effects on the digestive system.   I prefer to take 250 mg Benfotiamine and 100 mg Thiamine TTFD in the mornings and another dose of Benfotiamine at lunch.  I try not to take any thiamine after four p.m. because it keeps my brain so energized and wanting to think... Oh, I do take a combination of another form of thiamine (sulbutiamine), Pyridoxine and Cobalamine for a pain reliever sometimes, but I can sleep after taking that.  But thiamine does help regulate circadian rhythm.   Make sure you're getting Omega Three fats! They'll help you satisfy that late night carb craving with fewer carbs.  Flaxseed oil, olive oil, sunflower seed oil.  Nuts and nut butters, like walnuts and cashews, are good, too, if you can tolerate them.    Try taking the 100mg thiamine HCl before your aerobics and see if there's a difference.  Sweet dreams! References: Network Pharmacology Analysis of the Potential Pharmacological Mechanism of a Sleep Cocktail. ......(Skip to Section Four) https://pmc.ncbi.nlm.nih.gov/articles/PMC11201840/ Effects of Melissa officinalis Phytosome on Sleep Quality: Results of a Prospective, Double-Blind, Placebo-Controlled, and Cross-Over Study https://pubmed.ncbi.nlm.nih.gov/39683592/
    • glucel
      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
×
×
  • Create New...