Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Random Bouts Of Nausea

lisabarella

Recommended Posts

lisabarella Apprentice
lisabarella
Posted

Hi all,

I was diagnosed with Celiac Disease in July 2003 and have been on a strict gluten-free diet since. Recently (beginning April of 2006), I started having random nausea episodes. Within 10-15 minutes, I get severely nauseous, disoriented and can not sit up. I need to lay horizontally and take Phenergan (spelling) to get rid of the horrible symptoms. Six of the eight times have been followed by violent vomiting. For example, I was giving a presentation at Deep Roots Market on the gluten-free diet and it started at 8 PM. At 8:50 PM, I was laying on the floor at the food store, throwing up and threw up the entire way home. At 6:30 that night, I was on a spin bike teaching a class and feeling great. This is so WEIRD! This has occurred 8 times since last April and it is debilitating. I basically take the drugs to get rid of the nausea and then pass out for the next 12-20 hours. I am also shaky when these incidences occur. I have checked back and looked at the food that I have eaten and it has all seemed ok. One time, it actually happened at the doctors office and my HR was 104. (BTW: my HR resting is usually 55 ish because I am a runner). Tuesday (july 10th) this happened again while in Chapel Hill at a martini bar (drinking potato vodka!). Not sure if anyone has any ideas - but any type of "brain storming" would be great. I am generally healthy too. I run about 40-50 miles a week and teach SPIN and PUMP at the gym. Not sure what is going on and since it happens randomly, I can't prepare for it. Lisa

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Lisa,

That sounds awful--I'm so sorry this is happening to you.

This might be a longshot, but could it be an inner ear problem? Maybe check with an ENT to at least ask if your symptoms might indicate anything in that area.

I really hope you find the answer :)

Link to comment
Share on other sites
melrobsings Contributor
melrobsings
Posted

I have similar episodes but i don't barf. I feel like I'm going to. rarely I need to sit down and take a break. The barfing feeling is becoming more and more though...

I have taken Phenogrin and that is AWESOME stuff but it really knocked me out like a cheap date for about 8 hours. I also have my days of feeling great and feeling like crap. Some mornings I wake up feeling like I got hit by a mac truck. I'm a VERY active person too (dancer) and it's REALLY annoying. You are not totally alone.

Link to comment
Share on other sites
lfij Newbie
lfij
Posted
Lisa,

That sounds awful--I'm so sorry this is happening to you.

This might be a longshot, but could it be an inner ear problem? Maybe check with an ENT to at least ask if your symptoms might indicate anything in that area.

I really hope you find the answer :)

i'm sorry you're both not feeling well. I agree, you should both go to some type of doctor instead of here, if you're gluten free, it may not be just celiac you can blame it on. Esp. if you've been gluten-free for a long time.

Link to comment
Share on other sites
  • 3 weeks later...
lisabarella Apprentice
lisabarella
  • Author
Posted
Lisa,

That sounds awful--I'm so sorry this is happening to you.

This might be a longshot, but could it be an inner ear problem? Maybe check with an ENT to at least ask if your symptoms might indicate anything in that area.

I really hope you find the answer :)

Patti,

thanks for the kind words. I just had a CT abdominal and CT pelvis scan done and it looks like it might be SMA syndrome that is causing the symtoms. But, I am going to check out the inner ear stuff too and finally found a good GI in Greensboro that I am going to see on the 13th of August. Lisa

Link to comment
Share on other sites
lisabarella Apprentice
lisabarella
  • Author
Posted
I have similar episodes but i don't barf. I feel like I'm going to. rarely I need to sit down and take a break. The barfing feeling is becoming more and more though...

I have taken Phenogrin and that is AWESOME stuff but it really knocked me out like a cheap date for about 8 hours. I also have my days of feeling great and feeling like crap. Some mornings I wake up feeling like I got hit by a mac truck. I'm a VERY active person too (dancer) and it's REALLY annoying. You are not totally alone.

yes, that drug just makes you feel like your drank heavily and then you sleep and black in and out for 12 hours and still the next day I am sleepy. I am getting the symptoms checked out at all angles. Have you ever heard of SMA syndrome? Lisa

Link to comment
Share on other sites
jerseyangel Proficient
jerseyangel
Posted

Lisa,

Good to hear back from you--I wondered what happened.

Glad that you've been tested and are closing in on the problem. I've not heard of SMA syndrome. Take care, and continued good luck in figuring this thing out.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


fasterpkat Newbie
fasterpkat
Posted
yes, that drug just makes you feel like your drank heavily and then you sleep and black in and out for 12 hours and still the next day I am sleepy. I am getting the symptoms checked out at all angles. Have you ever heard of SMA syndrome? Lisa

Lisa,

Are you sure about SMA? One of the major characteristics of SMA is significant weight loss. Have you had that? Also, vertigo is not associated with SMA which it sounds like you have. You may want to look further before going with the SMA diagnosis.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,074
    • Most Online (within 30 mins)
      7,748
    Robert Noah
    Newest Member
    Robert Noah
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Nacina
      14 year old with Celiac & EOE still suffering...

      By Nacina · Posted

      Well, that's a big question. When he was seeing the nutrition response testing dr. that changed each time we went in. He hasn't been seeing him regularly for theist ten months. When he had a horribly week in March I started him back on the 4 that were suggested to keep him on. Those are: Standard Process Chlorophyll Complex gluten-free, SP A-F Betafood gluten-free, SP Tuna Omega-3 Oil gluten-free, And Advanced Amino Formula. He also takes a one a day from a company called Forvia (multivitamin and mineral) and Probiotic . Recently he had to start Vitamin D as well as he was deficient.  
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      14 year old with Celiac & EOE still suffering...

      By knitty kitty · Posted

      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      This forum might be the last hope I have in my life. Please I beg you

      By knitty kitty · Posted

      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      This forum might be the last hope I have in my life. Please I beg you

      By BluegrassCeliac · Posted

      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
×
×
  • Create New...