Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1):


Archived

This topic is now archived and is closed to further replies.

chenal52000

Ceoliac,hashimotos Thyroidits And Diabetes Type1

Recommended Posts

hi im a coeliac and have been one for years my mum is the diabetic which she has had since she fell pregent with me and now my 8 yr old daughter has hashimotos thyroiditis what i would like to know if there is a family history of coeliacs and diabetes which there is as you can see will my daughter be likely to be at a higher risk of getting these other auto immune diseases as well she has just been diagnosed this week and i have to wait until december to see the specialist can anyone help it would be much appricated

Share this post


Link to post
Share on other sites

Join eNewsletter


Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


If one has an autoimmune disease - yes you are at higher risk to develop other autoimmune disease. It is not a certainty. When one family has 2 or more members with autoimmune endocrine diseases or if one person has more than 1 autoimmune disease - it is called polyendocrine autoimmune syndrome.

In my family -we are both 3 members, each with 2 or more autoimmune disease. Please get her checked for celiac if she has Hashimotos.


Sandy

Type 1 diabetes - 1986

hypothyroid -1993

pernicious anemia

premature atrial beats

neuropathy

retinopathy

daughter is: age 15

central hypotonia and developmental delay

balance issues (rides an adult 3 wheel bike)

hypothyroid 1996

dermatographia - a form of angioedema 2002

celiac 2004 - by endoscopy

diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet

recovered from Kawasaki (2003)

lactose intolerant - figured out in Oct/06

Gilberts syndrome (April/07)

allergy to stinging insects

scoliosis Jan 2008

nightshade intolerance - figured out April 2008

allergy to Sulfa antibiotics

son is 13

type 1 diabetic - 2003 diagnosed on his 9th birthday

celiac - 2004 by endoscopy

lactose intolerant - figured out Nov/06

Share this post


Link to post
Share on other sites

Join eNewsletter

Yep, I've got all three...

At least I think so. I have low thyroid, and am on Eltroxin, but I am not certain if low thyroid automatically denotes hashimoto's, i.e., an autoimmune attack on the thyroid gland. What other reason could there be for the thyroid not producing enough of the hormone?


Emily

diagnosed type one diabetic 1973

diagnosed celiac winter 2005

diagnosed hypothyroid spring 2006

But healthy and happy! 253.gif

11 year-old Son had negative blood panel, but went on gluten-free diet of his own volition to see if his concentration would improve, his temper abate, and his energy level would increase. Miraculous response!

The great are great only because we are on our knees.

--Pierre Joseph Proudhon (1809-1865)

Share this post


Link to post
Share on other sites

Join eNewsletter


Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.

Diagnosed June 2006 with adrenal insufficiency.

Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.

Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.

Trialled Dairy Free Diet and reacted positively to that challenge in January 07.

News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !

Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

Share this post


Link to post
Share on other sites

Join eNewsletter

Yep, I've got all three...

At least I think so. I have low thyroid, and am on Eltroxin, but I am not certain if low thyroid automatically denotes hashimoto's, i.e., an autoimmune attack on the thyroid gland. What other reason could there be for the thyroid not producing enough of the hormone?

The other reasons include euthyroid sick syndrome - when the body is fighting an illness or dealing with severe stress - it suppresses normal thyroid function - the thyroid gland is normal but not producing normal levells of hormone.

The other cause would include a pituitary/hypothalmus problem - if something has affected the pituitary gland - it does not produce TSH so the thyroid gland itself is normal but never gets "told" to make any hormone. There are a few reasons this would occur in the pituitary gland...

hope this helps.

They know right away if it is pituitary or not - a very low T4 witha low TSH tell them that the TSH is not being made

Sandy


Sandy

Type 1 diabetes - 1986

hypothyroid -1993

pernicious anemia

premature atrial beats

neuropathy

retinopathy

daughter is: age 15

central hypotonia and developmental delay

balance issues (rides an adult 3 wheel bike)

hypothyroid 1996

dermatographia - a form of angioedema 2002

celiac 2004 - by endoscopy

diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet

recovered from Kawasaki (2003)

lactose intolerant - figured out in Oct/06

Gilberts syndrome (April/07)

allergy to stinging insects

scoliosis Jan 2008

nightshade intolerance - figured out April 2008

allergy to Sulfa antibiotics

son is 13

type 1 diabetic - 2003 diagnosed on his 9th birthday

celiac - 2004 by endoscopy

lactose intolerant - figured out Nov/06

Share this post


Link to post
Share on other sites

Join eNewsletter

georgie,

what is armour thyroid? I was diagnosed with Hashimotos in 1999. I was always on synthroid. Now that I am gluten-free, my TSH has stablized, and I no longer take meds, but.........I recently went for my bloodwork and it shows that my T3 is too low. The Dr says no meds unless the TSH starts to drop. Does this sound right? You know, I just don't trust the Drs anymore. I have seen several endos in the past, and I think that one was worse than the other. I mean the endocrine system isn't that huge of an area, so you would think that there would be an expert out there....anywhere??? I also have 2 nodules, one inside the other, and it would be nice if they could shrink. Janet

Share this post


Link to post
Share on other sites

Join eNewsletter

georgie,

what is armour thyroid?

Its a Thyroid med that has been around for over 100 years. Its dessicated pigs thyroid - standardised now to USP standards for consistancy. It has 38mcg T4 , and 9mcg T3 in each 60mg tablet( 1 grain). Its not an exact match to what our own Thyroid produces but is very close. People that don't get better on Synthroid often have an amazing response to Armour - perhaps because it is a complete med with T4,T3,T2,T1 and calcitonin in it. Another advantage is that Armour can be used sublingually , and therefore can avoid the malabsorption problems that many Celiacs have with meds.

My Thyroid nodules disappeared after a year of taking Armour. Most people with thyroid disease feel best when Free T3 sits at the top of normal , and Free T4 sits mid range. Not sure what your Dr is talking about .... :rolleyes:

They know right away if it is pituitary or not - a very low T4 witha low TSH tell them that the TSH is not being made

Where were you when I needed you :D It has taken my Drs 20 years to work this out with me. All they tested was TSH and cos it was low and normal - they said I didn't have a thyroid problem. Eventually found a holistic Dr that treats to symptoms and she found I had Thyroid Antibodies - so that was proof and Thyroid meds started. Now .12 months later... have had an MRI and an old skull fracture has been found ....probable Pituitary damage .... and all those years of low TSH make sense now ....


Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.

Diagnosed June 2006 with adrenal insufficiency.

Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.

Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.

Trialled Dairy Free Diet and reacted positively to that challenge in January 07.

News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !

Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

Share this post


Link to post
Share on other sites

Join eNewsletter

I just wanted to say that I love Armour Thyroid! I tried Synthroid for about 4-6 months, and actually felt worse! Once I switched to Armour, the difference was amazing. I still get my blood work done at least every 4-6 months, since I have Hashimoto, my levels have varied. I may add Cytomel in soon too, for extra T3, since mine has been low. I noticed a big difference when I started taking the Armour sub lingually also. Also, adding Selenium supplements has helped with my thyroid levels too.

I still have a big nodule on my thyroid after being on Armour for 4 yrs, but it doesn't bother me too much, just feel the lump sometimes when I swallow, or feel like I have a sore throat sometimes.


Katie

Gluten free since July 2005

Lactose Free since 1994

Soy free since May 2007

Dairy free since September 2007

Hypothyroid & Hashimoto

Share this post


Link to post
Share on other sites

Join eNewsletter

It's Armour for me too after 12 years on synthetic T4 :D

Getting back to your question...auto-immune diseases do run in packs....and families..........I have Hashimoto's Disease , Celiac and still fighting to get a diagnosis of Pernicious Anaemia........same old story blood tests "in range" who cares if they are at the very bottom of the range and you feel like cr*p, have finger tingles and falls

My great grandmother had RA her son (my gluten-free) had RA he married my grandmother who was a type 1 diabetic, 3 of my aunts had RA/ Type 1 diabetes it skipped a generation with my Mum but I have auto-immune diseases, my son was daignosed early this year with type 1 diabetes when he was 30 and my daughter has lichen planus an auto-immune skin disease very similar to psoriasis


Diagnosed Eczema 1964 aged 16 but with what I know now from research am sure it was Dermatitis Herpetiformis

Diagnosed Irritable Bowel Syndrome 1969 at age 21 but had it from age of 12 many painful episodes over the years( was probably Coeliac all along)

Diagnosed Hashimoto's Disease/Hypothyroid November 1994

Low B12 November 2006

Low B12 (still!) July 2007 Docs are happy with results just above low end of normal..*sigh*....still need to resolve it

Gluten free since October 2006 after failing gluten challenge

Diagnosed Hiatus Hernia and Los Angeles Grade A reflux via endoscopy October 2007

Diagnosed with Coeliac Disease via same endoscopy / biopsy October 2007 (took them long enough!) despite being gluten-free damage still evident although had been taking iron tablets for iron deficiency without realizing they contained gluten. Subsequent blood tests show :Positive Anti-Gliadin IgA EIA antibodies, Positive Endomysial antibodies ,Positive tTG IgA antibodies of 300 ("normal" range 0-15)

Auto-immune disease goes back at least 5 generations in my family (and counting) Mainly Type 1 diabetes and rheumatoid arthritis.

Number 1 Son has Type 1 diabetes ..diagnosed March 2007 at age 31, number 2 son aged 24 is A/I disease free so far ,daughter has lichen planus ( similar to psoriasis) diagnosed 2003 at age 17 am now wondering if it is DH but with flippancy of the young she won't get any testing done

Share this post


Link to post
Share on other sites

Join eNewsletter



Join eNewsletter