Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Ceoliac,hashimotos Thyroidits And Diabetes Type1

chenal52000

By chenal52000
in Related Issues & Disorders

Recommended Posts

chenal52000 Rookie
chenal52000
Posted

hi im a coeliac and have been one for years my mum is the diabetic which she has had since she fell pregent with me and now my 8 yr old daughter has hashimotos thyroiditis what i would like to know if there is a family history of coeliacs and diabetes which there is as you can see will my daughter be likely to be at a higher risk of getting these other auto immune diseases as well she has just been diagnosed this week and i have to wait until december to see the specialist can anyone help it would be much appricated

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2kids4me Contributor
2kids4me
Posted

If one has an autoimmune disease - yes you are at higher risk to develop other autoimmune disease. It is not a certainty. When one family has 2 or more members with autoimmune endocrine diseases or if one person has more than 1 autoimmune disease - it is called polyendocrine autoimmune syndrome.

In my family -we are both 3 members, each with 2 or more autoimmune disease. Please get her checked for celiac if she has Hashimotos.

Link to comment
Share on other sites
elye Community Regular
elye
Posted

Yep, I've got all three...

At least I think so. I have low thyroid, and am on Eltroxin, but I am not certain if low thyroid automatically denotes hashimoto's, i.e., an autoimmune attack on the thyroid gland. What other reason could there be for the thyroid not producing enough of the hormone?

Link to comment
Share on other sites
chenal52000 Rookie
chenal52000
  • Author
Posted

thank yous all for your help i asked the doctor if this could happen if she could develope coeliac or diabetes but he wasnt sure i will ask the specialist when we go in december

Link to comment
Share on other sites
Nancym Enthusiast
Nancym
Posted

Celiacs are at a higher risk of developing other autoimmune disease, those ones you listen in particular.

Link to comment
Share on other sites
georgie Enthusiast
georgie
Posted

Definately a link with autoimmune diseases.

Open Original Shared Link

Open Original Shared Link

Link to comment
Share on other sites
2kids4me Contributor
2kids4me
Posted
Yep, I've got all three...

At least I think so. I have low thyroid, and am on Eltroxin, but I am not certain if low thyroid automatically denotes hashimoto's, i.e., an autoimmune attack on the thyroid gland. What other reason could there be for the thyroid not producing enough of the hormone?

The other reasons include euthyroid sick syndrome - when the body is fighting an illness or dealing with severe stress - it suppresses normal thyroid function - the thyroid gland is normal but not producing normal levells of hormone.

The other cause would include a pituitary/hypothalmus problem - if something has affected the pituitary gland - it does not produce TSH so the thyroid gland itself is normal but never gets "told" to make any hormone. There are a few reasons this would occur in the pituitary gland...

hope this helps.

They know right away if it is pituitary or not - a very low T4 witha low TSH tell them that the TSH is not being made

Sandy

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Janeti Apprentice
Janeti
Posted

georgie,

what is armour thyroid? I was diagnosed with Hashimotos in 1999. I was always on synthroid. Now that I am gluten-free, my TSH has stablized, and I no longer take meds, but.........I recently went for my bloodwork and it shows that my T3 is too low. The Dr says no meds unless the TSH starts to drop. Does this sound right? You know, I just don't trust the Drs anymore. I have seen several endos in the past, and I think that one was worse than the other. I mean the endocrine system isn't that huge of an area, so you would think that there would be an expert out there....anywhere??? I also have 2 nodules, one inside the other, and it would be nice if they could shrink. Janet

Link to comment
Share on other sites
georgie Enthusiast
georgie
Posted
georgie,

what is armour thyroid?

Its a Thyroid med that has been around for over 100 years. Its dessicated pigs thyroid - standardised now to USP standards for consistancy. It has 38mcg T4 , and 9mcg T3 in each 60mg tablet( 1 grain). Its not an exact match to what our own Thyroid produces but is very close. People that don't get better on Synthroid often have an amazing response to Armour - perhaps because it is a complete med with T4,T3,T2,T1 and calcitonin in it. Another advantage is that Armour can be used sublingually , and therefore can avoid the malabsorption problems that many Celiacs have with meds.

My Thyroid nodules disappeared after a year of taking Armour. Most people with thyroid disease feel best when Free T3 sits at the top of normal , and Free T4 sits mid range. Not sure what your Dr is talking about .... :rolleyes:

They know right away if it is pituitary or not - a very low T4 witha low TSH tell them that the TSH is not being made

Where were you when I needed you :D It has taken my Drs 20 years to work this out with me. All they tested was TSH and cos it was low and normal - they said I didn't have a thyroid problem. Eventually found a holistic Dr that treats to symptoms and she found I had Thyroid Antibodies - so that was proof and Thyroid meds started. Now .12 months later... have had an MRI and an old skull fracture has been found ....probable Pituitary damage .... and all those years of low TSH make sense now ....

Link to comment
Share on other sites
Sugarmag Newbie
Sugarmag
Posted

I just wanted to say that I love Armour Thyroid! I tried Synthroid for about 4-6 months, and actually felt worse! Once I switched to Armour, the difference was amazing. I still get my blood work done at least every 4-6 months, since I have Hashimoto, my levels have varied. I may add Cytomel in soon too, for extra T3, since mine has been low. I noticed a big difference when I started taking the Armour sub lingually also. Also, adding Selenium supplements has helped with my thyroid levels too.

I still have a big nodule on my thyroid after being on Armour for 4 yrs, but it doesn't bother me too much, just feel the lump sometimes when I swallow, or feel like I have a sore throat sometimes.

Link to comment
Share on other sites
nutralady2001 Newbie
nutralady2001
Posted

It's Armour for me too after 12 years on synthetic T4 :D

Getting back to your question...auto-immune diseases do run in packs....and families..........I have Hashimoto's Disease , Celiac and still fighting to get a diagnosis of Pernicious Anaemia........same old story blood tests "in range" who cares if they are at the very bottom of the range and you feel like cr*p, have finger tingles and falls

My great grandmother had RA her son (my gluten-free) had RA he married my grandmother who was a type 1 diabetic, 3 of my aunts had RA/ Type 1 diabetes it skipped a generation with my Mum but I have auto-immune diseases, my son was daignosed early this year with type 1 diabetes when he was 30 and my daughter has lichen planus an auto-immune skin disease very similar to psoriasis

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,090
    • Most Online (within 30 mins)
      7,748
    Nicole K
    Newest Member
    Nicole K
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Denise I
      Celiac Dietician

      By Denise I · Posted

      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      14 year old with Celiac & EOE still suffering...

      By Posterboy · Posted

      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
    • trents
      Recently Diagnosed Celiac- Need advice

      By trents · Posted

      I'll answer your second question first. The single best antibody test for monitoring celiac blood antibody levels is the tTG-IGA and it is very cost effective. For this reason, it is the most popular and often the only test ordered by physicians when checking for celiac disease. There are some people who actually do have celiac disease who will score negatives on this test anyway because of anomalies in their immune system but your wife is not one of them. So for her, the tTG-IGA should be sufficient. It is highly sensitive and highly specific for celiac disease. If your wife gets serious about eating gluten free and stays on a gluten free diet for the duration, she should experience healing in her villous lining, normalization in her antibody numbers and avoid reaching a celiac health crisis tipping point. I am attaching an article that will provide guidance for getting serious about gluten free living. It really is an advantage if all wheat products are taken out of the house and other household members adopt gluten free eating in order to avoid cross contamination and mistakes.  
    • Anmol
      Recently Diagnosed Celiac- Need advice

      By Anmol · Posted

      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Recently Diagnosed Celiac- Need advice

      By trents · Posted

      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
×
×
  • Create New...