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maggie123

On My Way To Being Diagnosed

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New to this site. have been reading alot about celiac recently and need to know more.

I was diagnosed with hypothyroidism about 8 years ago. recently my sister was diagnosed with celiac disease. With her persistence I asked the doc to do the bloodtest on me and it came back positive.

I have an endoscopy next week.

Knowing what I know now I will not be surprised if endo is positive. for the past 8 years I have blamed my thyroid problems for joint pain, constipation, bloating, gas, general fatique weight that

just will not budge! It is all so clear to me now!

So, I look forward to gathering all the info necessary for me to regain my heslth back!

Maggie123

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Welcome Maggie,

You won't find a better place to learn about Celiac. You will find great help here.

You already have a diagnosis of Celiac with positive blood work. An endoscopy can also confirm with a biopsy and sometimes visibly.

Let us know if we can help you with anything.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Welcome Maggie!!

Kudos to your sister for being persistent!! And kudos to you for listening to your sister!! Lots of info here along with a lot of helpful and caring people. Tell your sister to check out this forum, too.


Janet

Experience is what you get when you didn't get what you wanted.

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I agree, if you have positive bloodwork, you are already diagnosed with celiac disease. An endoscopy is trivial at this point in terms of diagnosis, but it may be helpful to assess your damage. If you have any specific questions, don't hesitate to ask. Otherwise I definitely recommend doing some reading on this site, it's a great resource. Good luck,

-Brian


Celiac Sprue

Multiple Food Allergies

Diagnosed June 2006

Stopped Eating June 2007

IV Nutrition: 6/27/07 - Present

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New to this site. have been reading alot about celiac recently and need to know more.

I was diagnosed with hypothyroidism about 8 years ago. recently my sister was diagnosed with celiac disease. With her persistence I asked the doc to do the bloodtest on me and it came back positive.

I have an endoscopy next week.

Knowing what I know now I will not be surprised if endo is positive. for the past 8 years I have blamed my thyroid problems for joint pain, constipation, bloating, gas, general fatique weight that

just will not budge! It is all so clear to me now!

So, I look forward to gathering all the info necessary for me to regain my heslth back!

Maggie123

Boy, do I relate to what you are saying. While you are being tested, make sure you check for diabetes. I have Type 1 diabetes for 26 years, and I just found out that I have celiac. It effects about 12 -15% of of Type 1 diabetics. Like you said: it is all so clear to me now! :huh:

Mark

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I am glad to hear that you are seeking support so soon. I have been on a gluten, soy, dairy, corn, and tomato free diet for a year and a half now. I am just joining the forum tonight. I am still having health issues and am looking for some help and advice myself.

I have done so much research over the past year. Glutenfreegirl.com gives some great advice and links to other informative sites.

I hope you start to feel better soon.

:D

New to this site. have been reading alot about celiac recently and need to know more.

I was diagnosed with hypothyroidism about 8 years ago. recently my sister was diagnosed with celiac disease. With her persistence I asked the doc to do the bloodtest on me and it came back positive.

I have an endoscopy next week.

Knowing what I know now I will not be surprised if endo is positive. for the past 8 years I have blamed my thyroid problems for joint pain, constipation, bloating, gas, general fatique weight that

just will not budge! It is all so clear to me now!

So, I look forward to gathering all the info necessary for me to regain my heslth back!

Maggie123

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Welcome Maggie,

You won't find a better place to learn about Celiac. You will find great help here.

You already have a diagnosis of Celiac with positive blood work. An endoscopy can also confirm with a biopsy and sometimes visibly.

Let us know if we can help you with anything.

Thanks for all your support. i will definitely keep you posted. Question - Kraft crunchy peanut butter-

safe for me to eat? It has been a morning staple for me for quite sometime on toast.

This is a great site and I know I will benefit from all you veteran Celiacers.

Maggie 123

Canada

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Welcome Maggie!!

Kudos to your sister for being persistent!! And kudos to you for listening to your sister!! Lots of info here along with a lot of helpful and caring people. Tell your sister to check out this forum, too.

Had it not been for my sister I would never suspected celiac nor my doctor as he was quite surprised and I think he will really be surprised with endo results. He is a great doc but he

thinks this bloodwork was positive due to family markers showing up???I didnt say anything - the proof will be in the endo. It just goes to show that not all docs are familiar with this disease.

But it will be a learning curve for him and hopefully help others in his practice will benefit.

Big learning curve for me too!

Maggie 123

Canada

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Had it not been for my sister I would never suspected celiac nor my doctor as he was quite surprised and I think he will really be surprised with endo results. He is a great doc but he

thinks this bloodwork was positive due to family markers showing up???I didnt say anything - the proof will be in the endo. It just goes to show that not all docs are familiar with this disease.

But it will be a learning curve for him and hopefully help others in his practice will benefit.

Big learning curve for me too!

Maggie 123

Canada

If by some chance that endo comes back negative please ignore that result and do the diet anyway. The endo can miss a lot of us, so can the blood work but with a positive blood test you are already diagnosed. The proof is really in your response to the diet, don't let your doctor talk you out of it if the endo is not positive. There are doctors who with a positive on blood work but a negative on endo will tell folks it is okay to continue to eat gluten until the villi are damaged enough to show positive on endo. Don't let yours do that to you. You have found a great place for knowledge and support, welcome.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Welcome Maggie,

You won't find a better place to learn about Celiac. You will find great help here.

You already have a diagnosis of Celiac with positive blood work. An endoscopy can also confirm with a biopsy and sometimes visibly.

Let us know if we can help you with anything.

I need to know more about insomnia and the connection with celiac.

Any info on this. Thanks in advance.

Maggie 123

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I need to know more about insomnia and the connection with celiac.

Any info on this. Thanks in advance.

Maggie 123

Maggie, there is a whole section devoted to sleep. I would browse through some of those threads and/or do some searches.


Janet

Experience is what you get when you didn't get what you wanted.

animal0028.gif

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