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shan

Just Lost It

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Just found out that there is no heartbeat, and i am going to lose my baby... do you think, even though i got a negative on the celiac blood work, that it is possible i am still a celiac? I know i am clutching at straws, but i guess i just need answers... I was gluten light for 7 weeks and then went back fully on gluten and lost it, or rather it stopped developing at 8 and half weeks. :(

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Oh I'm so very sorry. I don't even know what to say. Nothing can make up for what has just happened to you.

Blood tests will generally not show a positive if you were just eating gluten lightly.

Were you previously diagnosed with Celiac?


~~Angie~~

DX'd With Narcolepsy In 1995

Dx'ed With Celiac On 12-18-06

Positive Biopsy On 2-1-07

DX'd With Pernicious Anemia 4-24-07

Daughter Has DH, so I suspect she also has Celiac!!

"If Alcoholism was Celiac Disease they would make us drink ourselves into kidney failure before they would admit we had the disease"

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Oh Shan, I am so sorry. I had eight miscarriages and had no clue what gluten was at the time. Yes, miscarriages are one common symptom of celiac disease. Your blood test result could well have been a false negative (those blood tests are not very accurate and yield false negatives all the time). I understand how sad you must be right now.

Please, before you try again, be on the gluten-free diet for at least six months beforehand to make sure your intestine can heal enough to actually absorb essential nutrients. Because miscarriages happen with women with celiac disease because they don't absorb the nutrients needed to support themselves and a baby at the same time.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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I'm so sorry you are going through this. I agree with Ursa about gluten/pregnancy.


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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I hope you don't mind me saying a prayer for you today.

I'm very sorry for what you're going through, & hope you take care of yourself in the days

& weeks to come.

My understanding is that gluten intolerance/celiac are often implicated in miscarriage or infertility.

I also know that tests can be falsely negative, as all of my blood tests were negative even though

I had been eating gluten heavily every day for over 6 weeks (after being gluten free for 4 months).

Good luck to you & your family.

Horsegirl


Diagnosed Fibromyalgia & osteoarthritis in multiple joints 12/06

Diagnosed gluten intolerant through dietary trials 8/07

Enterolab positive for gluten, casein, soy, egg

Serologic equivalent: HLA-DQ 1,1 (Subtype 6,6)

Gluten free 8/10/07

Casein free 8/27/07

Soy & egg free 9/8/07

Eggs back again (whoo hoo!) 11/08

Diagnosed chronic fatigue syndrome 12/09

Starting various supplements/vitamins in hopes of feeling better!

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I'm so very sorry.

For your information, my brother's blood work and endoscopy came back normal. But if he eats gluten, he gets quite sick. I'd trust your body's response far more than I would a test. And you can't just go gluten light -- you have to be completely gluten-free at *LEAST* 3 weeks before you may notice a change. It took me 2 weeks initially to feel better, and then by 3 weeks it was a big change.


"I'm not telling you it's going to be easy. I'm telling you it's going to be worth it." - Art Williams

Currently gluten-, casein-, soy- and nightshade-free.

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Thanks for your replies, i did actually go gluten free, and didn't see any change, and when i tried gluten again it didn't bother me, but when i had (less than a whiskey shot of) wine, that is when i knew what it was ;) I knew it was the alcohol that was bothering me and not gluten, so i just went back on gluten, just slowly, coz i actually liked the gluten free diet :)

Should i ask the gi for a biopsy, or is it not worth it and i am just overreacting coz of what is happening to my body?!

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Everyone has different opinions about this, if you want to have a "real" diagnosis, you may want to get a biopsy. All people who have miscarriages aren't necessarily Celiac, BUT if you noticed a reaction to gluten, then you may want to try to get diagnosed. It's up to you!


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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