Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Gwen B

Hives & Accidental Gluten Ingestion

Rate this topic

Recommended Posts

Has anyone had hives after ingesting gluten?

I am a new undiagnosed coeliac and gluten free for 2 months. I ate at PF Changs, Portland, OR and suffered a severe hive attack - swelling face, neck, faintness only stopped by swift ER treatment. I also suffered the usual stomache problems that had plagued me before going gluten-free.

I was skin tested for allergies and the only food related stuff I tested posative for was soy, not wheat. I have not been tested for coeliac properly since the doctors i have seen said it was unlikely after a low negative tTg score over a year ago. However they also said that if I felt better on this gluten-free diet that must be it! They also said that there may not be any reason that the histamin reaction was triggered by food. I don't like coincidence and cannot help suspecting that I reacted to the combination of soy and wheat from being accidentally given regular soy sauce and not the gluten-free sauce I asked for. I have had everything else that I ate that day subsequently without any effect, except of course gluten.

Anybody else had similar experience?

Share this post


Link to post
Share on other sites
Has anyone had hives after ingesting gluten?

I am a new undiagnosed coeliac and gluten free for 2 months. I ate at PF Changs, Portland, OR and suffered a severe hive attack - swelling face, neck, faintness only stopped by swift ER treatment. I also suffered the usual stomache problems that had plagued me before going gluten-free.

I was skin tested for allergies and the only food related stuff I tested posative for was soy, not wheat. I have not been tested for coeliac properly since the doctors i have seen said it was unlikely after a low negative tTg score over a year ago. However they also said that if I felt better on this gluten-free diet that must be it! They also said that there may not be any reason that the histamin reaction was triggered by food. I don't like coincidence and cannot help suspecting that I reacted to the combination of soy and wheat from being accidentally given regular soy sauce and not the gluten-free sauce I asked for. I have had everything else that I ate that day subsequently without any effect, except of course gluten.

Anybody else had similar experience?

I am not too sure about the celiac aspect but I as far as wheat allergies go, you should have a blood allergy test. I do not test positive for wheat on the skin test however I test VERY positive for it on the blood test. I also suffer from severe hives every so often when I have been glutened. You really should have another allergy test!

Share this post


Link to post
Share on other sites

If I understand your post correctly, you have tested positive for Soy allergy and then had a hive reaction after eating at a chinese resturant with Soy sauce. My guess is your hives were triggered by the soy if that is a confirmed allergy. Some allergies become worse over time, I would not ever risk eating soy again if I were you!

Kat.

Share this post


Link to post
Share on other sites
If I understand your post correctly, you have tested positive for Soy allergy and then had a hive reaction after eating at a chinese resturant with Soy sauce. My guess is your hives were triggered by the soy if that is a confirmed allergy. Some allergies become worse over time, I would not ever risk eating soy again if I were you!

Kat.

I have eaten soy yogurt since the hive incident and not suffered anything but a little gas. I'm already doing gluten-free, lactose and cassein, I'm not sure I want to add to the list! The allergist said that the soy protein that affects me when I drink soy milk may be destryed by heating and therefore inoccuous when eaten as cooked food. Is soy yogurt heated?

I'm thinking I should get blood allergy testing.

Share this post


Link to post
Share on other sites

Gwen B,

By the sounds of your allergic reaction, you need to ask for an epi-pen. You need to have one with you at all times, if you had to go to the ER, that's bad.

Also, I would ask for another allergy test because you may have developed a new allergy.

Share this post


Link to post
Share on other sites
Gwen B,

By the sounds of your allergic reaction, you need to ask for an epi-pen. You need to have one with you at all times, if you had to go to the ER, that's bad.

Also, I would ask for another allergy test because you may have developed a new allergy.

Thanks for the info. I now have an epi-pen and am summoning up the courage to bug my doctor again about the allergy. I feel somewhat let down by their indifference and hate going back to the docs with yet another complaint!After all they gave me one blood test for celiac and a skin test for the allergies and they were both negative for wheat!

I am supposed to go away and contact them again if I have another hive attack.

Share this post


Link to post
Share on other sites
Gwen B,

By the sounds of your allergic reaction, you need to ask for an epi-pen. You need to have one with you at all times, if you had to go to the ER, that's bad.

Also, I would ask for another allergy test because you may have developed a new allergy.

Thanks for the info. I now have an epi-pen and am summoning up the courage to bug my doctor again about the allergy. I feel somewhat let down by their indifference and hate going back to the docs with yet another complaint!After all they gave me one blood test for celiac and a skin test for the allergies and they were both negative for wheat!

I am supposed to go away and contact them again if I have another hive attack.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
I enjoy listening to Ted Talks.  I found this one on dementia.  The take?  No success in developing drugs to stop dementia, so they are looking for ways to prevent it through diet!  Food can heal!   https://m.youtube.com/watch?v=f0WCb23KPEw Interesting!  
  • Blog Entries

  • ×
    ×
    • Create New...