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Would You Be Among The First To Give It A Try?


Molecular Dude

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Molecular Dude Apprentice

For those of you that are saying "No", I certainly understand your views. There is always risk with drug trials, and with medications even after they have been approved by the FDA. But, remember this is a HYPOTHETICAL secondary trial (I mentioned AT-1001 only as an example to start this thread). I probably wouldn't participate in a Phase I study either. But, the way I see it when it comes to Phase II, you can't win if you don't play! If it turns out well, you have helped both yourself and the world community. If not, at least you took a shot at bettering both yourself and the world.

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kevsmom Contributor

Several years ago, I was treated for a benign brain tumor. Afer undergoing two conventional surgeries, it was discovered that they could not remove all of it.

I was offered the chance to be the first patient at a local hospital to have non-invasive Cyberknife surgery. They brought me into the room where the surgery was to be done, and I could still smell the wet paint on the walls. The doctor who would be performing the procedure said to me "You will be the first person we will do this on - oh, we have done it before at other hospitals, but not here" :D.When they did it, a whole team from Stanford University was there to supervise and observe.

After the treatment, I got up off the table and went to work. A big difference from the conventional surgeries.

Without people who are willing to undergo trials, new ways of treatment would not be available.

Cindy

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kbtoyssni Contributor

Nope. Not for something like celiac that has an easy, non-drug treatment. I don't find the diet to be *that* hard. It's just what I do. I don't know what's in this drug, but the possibility of side effects and other toxin-related issues is enough to make me not want to take it.

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VioletBlue Contributor

Take a look at this thread and tell me what you think: Open Original Shared Link

Does that sound to like they're planning to sell this drug on down the line as an aid to help when people "accidentally" gluten themselves? "Do you dream about being able to eat pizza, pasta, cookies, cake and all of your favorite gluten-containing products again?" It doesn't to me. I sounds like they're invisioning a cure that involves a life long dependancy on a drug. Likewise, are the lactaid pills on the market sold for accidental lactose ingestion or are they sold to people with the understanding that now they can drink all the milk they want?

There is what the drug CAN be used for and then there is how a drug like this will evidtably wind up being marketed.

Violet

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Jodi Mills Apprentice
Take a look at this thread and tell me what you think: Open Original Shared Link

Likewise, are the lactaid pills on the market sold for accidental lactose ingestion or are they sold to people with the understanding that now they can drink all the milk they want?

Violet

Hi Violet, My boyfriend is lactose intolerant, And for the pills to work you are to take them before you eat/drink anything with lactose in it. They work up to 45 minutes, so if you take them and then eat an hour later they wont help at all. They dont cure his lactose intolerence completly, he still has some effects of the lactose, but is not nearly as bad as if he misses the pills completely.

If it were for accidental ingestion, then you would be able to take them anytime after ingesting lactose, but it says on his box to take them before eating.

hope that helps. havent gotten to look at that thread, but will when I am at home,(my house comp. is way faster than this one at work.)

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