Gluten Problem, Not Celiac Disease?

[jjis]

Not sure where to put this. For the last few years I have lost weight, doctors did blood work and the usual tests. Found nothing except low Vitamin D. I did not have Celiac according to all the tests but he put me on a Gluten Free diet and vitamin D supplements. I gained a couple of pounds after starting the diet and supplements.

Is it possible to have problems with Gluten and not have Celiac? I started eating some Gluten foods again just to test and with eating regulary I'm again not gaining any weight.

[lizard00]

It's possible to have a problem with gluten and not have Celiac... but your unexplained weight loss and vitamin deficiency are pretty classic symptoms. Especially the weight gain when following the diet. What tests did they do on you? It is not uncommon for them to be negative.

[jjis]

It's possible to have a problem with gluten and not have Celiac... but your unexplained weight loss and vitamin deficiency are pretty classic symptoms. Especially the weight gain when following the diet. What tests did they do on you? It is not uncommon for them to be negative.

They've done complete blood work, several blood malabsorption blood tests, all have been normal except the vitamin d. I've had a colonoscopy, upper GI with small bowel and an endoscopy. A biopsy was done and nothing was found.

[Ursa Major]

Apparently you have a gluten sensitivity without destroyed villi (at least not yet). In order for you to stay healthy, you need to be on a gluten-free diet. As simple as that.

[Rpm999]

plenty of people on here, including possibly myself, have/had gluten bother them for other reasons...you could have candida or parasites (huge things that most people overlook) causing issues with it all, maybe even lyme (not trying to scare you) but when you have untreated/chronic issues, it's more common than anything to have some intolerances because of the weakened immune...villi damage is specific to celiac, so i'd look at some other things...some people are so sick for so long that once an intolerances come up, they jump on it and think it's the answer...hell, that's an instinct, but everyones different, if there's underlying things your can be on the best diet known to man and still have issues because that's just a band-aid over it...you'll just have to check around and see

if gluten is bothering you for whatever reason, you can keep eating it like a maniac and keep losing weight/gain weight when off it, that's been the case for some people i've seen on here who had underlying issues like i said, and once those are helped, it's a burden off of the immune and you're not sensitive....plus a vitamin deficiency isn't a big hint, could be cause of anything going on in your body....most humans have magnesium deficiencies, so you can imagine that it isn't hard to gain other ones when sick for a while

[PatBrown]

I have had Celiacs without major symptoms for years. When I had my first child I got a rash on my elbows. It didnt go away so the dermatoligist did a biopsy. He said my body was making an allergic reation to something in itself. That was 27 years ago. I started having bowel symptoms about four years ago. Two and a half years ago I was finally diagnosed by the guy who did an endoscopy(for reflux). I also was on and off iron poor. When off of the gluten the reflux went away. I am sure the rash that I had 27 years ago was HD. I feel much better and have gained some weight since being diagnosed. You could indeed have celiacs. If not eating gluten makes you feel better, dont eat it. Have you had the blood test for celiacs(the blood protein one)?