Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1):


Archived

This topic is now archived and is closed to further replies.

amiller1030

Ibs Vs Celiac Disease

Recommended Posts

I grew up in an Italian American family and ate Italian food all of my life.

I never had any problems.

Then in my 20s, my digestion and intestinal distress started to happen.

Fast forward about 20 years and I have full fledged IBS.

That is the name doctors give it - and they suggest putting me on anti-depressant pills, which I refused.

My first encounter with someone who actually listened was a naturapath who suggested that I not eat wheat and see what happens, also that I stick to a paleo diet.

Going off wheat and learning how to cook Asian cuisines (mostly Indian) fixed most of it. I will always have an irritable digestive system, or at least I started to have one in my 20s.

I fell of the wagon and a few years later the IBS flared up again.

And now, I realize that I have a massive gluten intolerance as well.

So I have realized that I must remove all gluten from my diet, not just wheat.

But, to my mind, IBS is a "diagnosis of exclusion" in so many ways.

I have found that western medical doctors mostly want to solve it will pills.

That just isn't an answer to me.

Without the wheat, I was almost asymptomatic, without the gluten I really feel good and truly healthy.

Just a few things to figure out that my own body likes and needs to avoid within the gluten-free universe.

But, yes, mostly, things are much better.

I have suggested to others with IBS that they try avoiding wheat as an experiment and see what happens but they are resistant.

Judging from the length of replies to this thread, it seems that a lot of people here were given that diagnosis and cure was to go gluten free.

~Allison


Long history of IBS, and stomach/intestinal problems. Low on iron for all of my life.

Low on energy, with aches and pains in my joints and in my whole body for as long as I can remember.

Mostly lactose intolerant for all of my life (except for yoghurt)

Diagnosed in 2003 by naturapath as wheat intolerant. Tried it then fell of the wagon. In Feb. 2010 tried going gluten-free.

Went back to the poison in March, 2010.

Tested negative for celiac in April, 2010 (based on negative biopsy and normal tTG test). IgA tested 30-40 percent higher than normal.

Not going to fight the diagnosis because I refuse to go back to the poison. Happily gluten-free for health reasons as of April 2010, and not looking back.

Share this post


Link to post
Share on other sites

Join eNewsletter

Definitely "D." Been battling with "IBS" for years. Things have never really added up though because I had so many other symptoms, neuro, joint pain, chronic fatigue, multiple infections and illness, respiratory (how DOES all of that fit with IBS----it DOESN'T)...finally, finally, finally, the light bulb goes on and guess what, just after a short time of gluten free eating I can feel my whole body smile and sigh with relief. Good bye forever IBS.

Share this post


Link to post
Share on other sites

Join eNewsletter

After a colonoscopy a couple years ago, in which the doctor found no problems, I asked, half-dopey from the sedatives, "Then why am I having so many problems with my intestines??" and he said, "You have IBS, you need a high-fiber diet" and left me a nice little pamphlet about IBS. The only mention of Celiac/sprue or gluten was when *I* brought it up in the pre-procedure meeting with him, and of course, since I'd been "off" gluten for the most part for a couple years prior, testing was sort of pointless by that time.

What is amazing is that most U.S. doctors don't even CONSIDER Celiac/gluten intolerance even if you complain for YEARS about G.I. problems and all the other related symptoms. My G.P. was absolutely disdainful about it when I told him I was going off gluten because I suspected I had a problem with it... Also, recently, after I'd had some gluten off and on for several months, when I had some lab tests done, I also persuaded him to include the Celiac panel. The results were negative, but the overall IgA was quite high, and he goes, "You might want to avoid flour..." (This, after I'd been telling him for YEARS that I was trying to avoid gluten because of relentless G.I. problems.)

So much for Western medicine and its helpfulness! :-(

P.S. Just had more lab tests done yesterday and am hoping to pinpoint further what's really going on (because G.P. could not account for the high IgA), but am LOATHE to consider a "gluten challenge" and resume all that pain & dysfunction just to PROVE that gluten is the culprit.


Thanks to Sarah at personalizedcause.com for allowing me to adapt their beautiful green Celiac Awareness ribbon as my "avatar" graphic.

Share this post


Link to post
Share on other sites

Join eNewsletter

I am another IBS person and had it for 30 years. Now this year I find out I am a Celiac. I always had constipation unless I was having an "IBS" episode. I think everyone who has IBS should be tested for Celiac.


Dx Celiac July 2010 by Endoscopy biopsy- had Endoscopy for another reason, not for possible Celiac

Lactose intolerant discovered August 2010

Hypothyroid Dx 2009. Sleep Apnea 2005

Share this post


Link to post
Share on other sites

Join eNewsletter

I am another IBS person and had it for 30 years. Now this year I find out I am a Celiac. I always had constipation unless I was having an "IBS" episode. I think everyone who has IBS should be tested for Celiac.

Me too! :-)


Thanks to Sarah at personalizedcause.com for allowing me to adapt their beautiful green Celiac Awareness ribbon as my "avatar" graphic.

Share this post


Link to post
Share on other sites

Join eNewsletter

Ok yall Ive never done this. Im 44 and have sufferd from "IBS" sence I was a kid so bad I would offten end up in bed. After the worce episode ever I finally went to a new DR. she ran some tests and I had low B 12 191. Nothing else was said. I was put on shots and put "Myself on the gluten-free diet and withinn 3 days the bloating stoped and I was not in pain . I have stayed on the diet now for 6 months. Back to the Dr. for more blood work and now cramping in my legs, still fatigued. So she says lets test for celiacs ? I say ive been on the diet for 6 months. She say, thats ok. Test was neg levels of 3. low b12 and now d. nothing else was said about that, though put back on shots. Oh by the way if I eat gluten my stomach swells to a 6 month pregnancy.She sugested the biopsy. What should I do? Im so tired now and I hurt . I need help. I am also a "c" with bouts of "d".

___________

Altho this post was from January, I'm going to answer it here because some people check the last page first :rolleyes:

Low levels of vitamin B12 are a classic symptom of celiac or gluten intolerance. At that point your doctor should have been testing you for the cause of it, instead of merely giving you the vitamin, and making you wait for months for followup.

In my opinion, more doctors should listen to patients who tell them that they get sick when they eat bread or wheat or gluten, irregardless of what tests say. The time to test is when they're still eating it.

Imagine what would happen if everybody who had IBS was told to do the following: one week of truly absolutely no gluten, with a printed menu handout of exactly what to eat for the week, to make it simpler, and avoiding restaurants, with a food diary sheet to fill out every night, as in "how did I feel today after eggs and fruit for breakfast, salad and rice for lunch, and a meat and vegetable dinner ?" Then followed it by a week of mandatory "toast/cereal for breakfast, wheat sandwich for lunch, and wheat pasta for dinner," with the same food diary to be filled out ? How did you feel today? And at the end of the two weeks, the next appointment ? Or it could be 2 weeks off of gluten, followed by two weeks on. Not six months later. The contrast in physical reactions would be very dramatic.

When staying on a gluten free diet for months at a time, eventually the blood tests and even the biopsies can come out "negative," even if you have the disease, because you have removed the gluten protein that was causing the auto immune reaction. You're healing. You still will have the genetics, however, if you wish to be tested for that. About 30% of the population carries the HLA DQ genes which show they can develop the disease, if triggered. About 1 in 100 have celiac or gluten intolerance. If you are in that 30% group, it's statistically much more likely your symptoms are pointing to celiac or gluten intolerance.

If you have been off of gluten for a period of months, you may then have a false negative on the biopsy- the doctors know this, yet they schedule the things anyway sometimes, and then you are Officially Not Celiac when the results come back "negative." This isn't helpful to anybody but the insurance companies and to the hospital/labs, which are getting paid for the procedures anyway.

No matter what, given the difficulty of getting an accurate diagnosis with the medical system we are are stuck with, the most important thing is, if you feel BETTER on a gluten free diet, you should stick with it and refine it so you are not getting cross contaminated. Many people find that once they master the gluten free diet, they feel dramatically better overall.

Other people may have to give up or cut back on soy or dairy or dairy lactose to get the full beneficial effect. A few react to nightshades or corn or even tapioca, a common gluten-free substitute. Others are accidentally cross contaminating themselves and haven't figured out the culprit yet.

To get the so- called "official" diagnosis, the insurance companies and the medical profession in the U.S. currently insists on 2 criteria, a positive blood test (celiac panel ) and a positive biopsy of the small intestine. They also will not, typically, do a biopsy without the positive blood test. Another positive test is doing a biopsy on the skin next to a DH rash outbreak, but you don't hear much about that, either, as not everybody gets the rash.

But if you have been thru the medical wringer, for years, and made a good faith effort to get yourself tested, if you have the symptoms, and have repeatedly been blown off, or told that you didn't have a positive panel, or that it is merely "fibromyalgia," or "IBS," or "AIYH"** yet if you respond dramatically to a gluten free diet, you should give yourself permission to stick to it.

**All In Your Head

Share this post


Link to post
Share on other sites

Join eNewsletter

Probably half the board :)

and the other half who know they have a gluten sensetivity are still told it's just IBS.

He will do well on a gluten-free diet. Possibly low carb to. That helps me a lot!


Started exhibiting symptoms 1979

DXed IBS 1987

Self Dx Gluten sensitive via elimination diet July 2010

Gluten free since July 12 2010

Carb&Sugar light August 2010

experimenting with being Grain light

Share this post


Link to post
Share on other sites

Join eNewsletter



Join eNewsletter