Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

New Here And Question About Enterolab Results


lanam80

Recommended Posts

lanam80 Newbie

Hi everyone

I'm new here. Just today recieved my enterolab results.

I have definite gluten sensitivity (yaay! I seriously felt like celebrating. I feel vindicated.) and my number was quite high :

Gluten Sensitivity Stool Test

Fecal Antigliadin IgA 150 (Normal Range <10 Units)

With a number that high and autoimmune thyroid disorder, would you consider yourself celiac? or "just" gluten sensitive? I've seen lots of posts with WAY lower numbers than that. Has me wondering how much possible damage is done on my intestines.

I really do want a definitive answer. I dont' want to go around saying I'm celiac if I'm not, but I also don't want to minimize it by saying 'sensitive' or 'intolerant' you know?

I am going to stay gluten -free though, just this is sooo new to everyone around me, they act like still it's not a 'big deal'.

Thanks in advance.

M


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenWrangler Contributor

Your high number only indicates that your body responded to gluten by releasing A LOT of antibodies. It could just be the way your body responds to gluten, but it does not indicate how severe your condition is. Personally, I really don't think that there's a difference between Celiac Disease and Gluten Sensitivity. My opinion is that Celiac Disease is just a more advanced case of Gluten Sensitivity. Either way, you have to be gluten-free. So it really doesn't make much of a difference. Good luck,

-Brian

ravenwoodglass Mentor

Brian put it so well I don't have anything to add other than agreement.

Panopticism Rookie

Well, I dunno about the similarity between the two... wouldn't gluten sensitivity be more of a... sensitivity, intolerance, inability to digest, etc.

Whereas, Celiac Disease is where your liver goes into fight mode and releases antibodies and tries to fight gluten, thinking it's a seriously harmful intruder?

I always just assumed that, from a scientific standpoint, gluten sensitivity was like lactose intolerance. I haven't heard of too many people dying in their 50s from cancer that was probably related to damage done to the intestines as a result of lactose intolerance...?

This does appear to be happening with Celiac disease.

Please, correct me if I'm wrong.

mftnchn Explorer

My caution would be that Enterolab does not diagnose celiac. Gluten sensitivity can be caused by other things besides celiac, and could be temporary or not depending on the cause. So I think it is wise to keep that in mind, especially if the gluten-free does not result in a complete resolution of your health concerns. There are some on the board who have discovered other causes and are no longer gluten-free.

I have a clinical diagnosis of celiac, since I didn't have blood tests or biopsy. I have kept my diagnosis tentative in my mind while still being very careful about being gluten-free in every way. 11 months out, my doctors and I are convinced, and I am now confortable about telling people I am celiac.

In my case, with people I was close to, I explained more about the process of discovery and trial of the diet. With others, I just said I was celiac or said that I am very sensitive to gluten and have to strictly avoid it.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442

    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...