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Joni63

Epstein Barr Virus/adrenal Fatiguee

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Hi,

I'm seeking information on these 2 problems. Just found out my EBV from when I had mononucleosis at age 14 is reactivated. ND said my numbers are way above the normal range. She doubled some of my supplements and told me it was the cause of my severe fatigue.

She also said one of my hormones is causing my adrenal glands to secrete more than it should. It's 2 points above normal. Is this considered adrenal fatigue? She told me to get a supplement for it which I cannot find. Anyone else taking a good supplement for AF? Has it helped with sleep problems?

If any of you has information about either of these subjects, please feel free to post it here.

Thanks,

Joni


Joni

Dx'd with Celiac Disease 8/01/07

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A good friend of mine's daughter is suffering from this too. She had mono when she was 5. This last year, she was diagnosed with crohn's disease, when they finally got the crohn's under control, then her epstein barr decided to flare. From what her doctor said, this happened because of the stress on her body from the crohn's disease, which makes perfect sense, to us. Her doctor says the only thing you can do is get as much rest as you can and hope for the best. It can take months for the fatigue to go away. This girl is a senior, with graduation in just a week or so. She has been dealing with this for about 4 months now.

I think the best advice is to get as much rest as you can, try not to overdo. I too, worry about this. I had mono at 14, and the eptein barr virus stays doormant in your system for the rest of your life, and can flare at any time, it will always show up in your bloodwork. My number stays around 9, hers was around 1000.


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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hey,

I am sorry. That is too bad. I had mono at 15. Years later my mom had a resurgance of EBV. It was bad for her. She hurt and was exhausted. She couldn't sleep well either. I ask her what she did. The only thing I remember is she was on an anti-viral medication for a while. She pulled through though.

Good luck


gluten . . . Kiss my grits!

pork and beef free- 1994

wheat free or wheat light- 2003

gluten free- January 2008

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A good friend of mine's daughter is suffering from this too. She had mono when she was 5. This last year, she was diagnosed with crohn's disease, when they finally got the crohn's under control, then her epstein barr decided to flare. From what her doctor said, this happened because of the stress on her body from the crohn's disease, which makes perfect sense, to us. Her doctor says the only thing you can do is get as much rest as you can and hope for the best. It can take months for the fatigue to go away. This girl is a senior, with graduation in just a week or so. She has been dealing with this for about 4 months now.

I think the best advice is to get as much rest as you can, try not to overdo. I too, worry about this. I had mono at 14, and the eptein barr virus stays doormant in your system for the rest of your life, and can flare at any time, it will always show up in your bloodwork. My number stays around 9, hers was around 1000.

What happened to your friend sounds similar to what I think happened to me. I was dx'd with Celiac and did great for a few months then felt horrible, achy legs, waking up feeling hungover, can't sleep and completely fatigued within an hour of waking up. I hope your friends daughter can get through her graduation fine, it is such a great yet stressful time for a senior. Maybe she can rest over the summer.

hey,

I am sorry. That is too bad. I had mono at 15. Years later my mom had a resurgance of EBV. It was bad for her. She hurt and was exhausted. She couldn't sleep well either. I ask her what she did. The only thing I remember is she was on an anti-viral medication for a while. She pulled through though.

Good luck

I wonder what kind of anti-viral she took? My ND told me to take something, but it has been discontinued so I have a call into her for another suggestion.

I take Isocort for my adrenals. It is a natural product. You can find it online.

I will check it out - thank you! Do you think it makes a difference? Does it help with fatigue or sleeping better?


Joni

Dx'd with Celiac Disease 8/01/07

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She called back and told me to take Goto Kola. Anyone have experience with this herb?

I'm hesitant to try the isocort. My cortisol levels haven't been tested yet. I think we are doing that in a month if I don't feel any better with my vitamin/mineral supplements and the Goto Kola.

Is exercise ok when you have reactivated EBV and Adrenal Fatigue? My ND said only yoga or walking, but I'm a runner and need to get back to running about 2 miles a day.


Joni

Dx'd with Celiac Disease 8/01/07

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I have both...EBV and adrenal fatigue. They are secondary problems to my Lyme disease. My EBV numbers are so high the lab results come back saying "high"...with no numbers! :o I take Valtrex and Olive Leaf Extract for it. My Dr isn't too concerned about the EBV because like I said, they are secondary to my Lyme.

Adrenal fatigue...I'm not taking anything for it right now. Other than immune boosters and a product called "NT Factor Energy" which I don't think specifically helps AF, but it does help with the energy problems.


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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OMGosh Kassandra. You and I have so many similar problems. Is your DHEA level high? She didn't test all my hormones yet, but that is coming soon if I don't feel better in a month or so. She said my Epstein-barr virus numbers were really high. I had some really bad symptoms in May - terrible leg aches, headaches, waking up feeling hungover, horrible fatigue, etc. At this point the only thing that remains is the fatigue and lack of energy.

I get the results Monday morning of all my vitamin/mineral levels so I'll know if my D and serum ferritin are rising. I'm hopeful since I am feeling a little better.

Is NT factor energy available OTC?


Joni

Dx'd with Celiac Disease 8/01/07

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hey,

My mom couldn't remember what she took, but she took it for a month and it worked.

good luck. That is too bad you are having these problems


gluten . . . Kiss my grits!

pork and beef free- 1994

wheat free or wheat light- 2003

gluten free- January 2008

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