Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Epstein Barr Virus/adrenal Fatiguee


Joni63

Recommended Posts

Joni63 Collaborator

Hi,

I'm seeking information on these 2 problems. Just found out my EBV from when I had mononucleosis at age 14 is reactivated. ND said my numbers are way above the normal range. She doubled some of my supplements and told me it was the cause of my severe fatigue.

She also said one of my hormones is causing my adrenal glands to secrete more than it should. It's 2 points above normal. Is this considered adrenal fatigue? She told me to get a supplement for it which I cannot find. Anyone else taking a good supplement for AF? Has it helped with sleep problems?

If any of you has information about either of these subjects, please feel free to post it here.

Thanks,

Joni

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

A good friend of mine's daughter is suffering from this too. She had mono when she was 5. This last year, she was diagnosed with crohn's disease, when they finally got the crohn's under control, then her epstein barr decided to flare. From what her doctor said, this happened because of the stress on her body from the crohn's disease, which makes perfect sense, to us. Her doctor says the only thing you can do is get as much rest as you can and hope for the best. It can take months for the fatigue to go away. This girl is a senior, with graduation in just a week or so. She has been dealing with this for about 4 months now.

I think the best advice is to get as much rest as you can, try not to overdo. I too, worry about this. I had mono at 14, and the eptein barr virus stays doormant in your system for the rest of your life, and can flare at any time, it will always show up in your bloodwork. My number stays around 9, hers was around 1000.

Link to comment
Share on other sites
fedora Enthusiast

hey,

I am sorry. That is too bad. I had mono at 15. Years later my mom had a resurgance of EBV. It was bad for her. She hurt and was exhausted. She couldn't sleep well either. I ask her what she did. The only thing I remember is she was on an anti-viral medication for a while. She pulled through though.

Good luck

Link to comment
Share on other sites
loraleena Contributor

I take Isocort for my adrenals. It is a natural product. You can find it online.

Link to comment
Share on other sites
Joni63 Collaborator
A good friend of mine's daughter is suffering from this too. She had mono when she was 5. This last year, she was diagnosed with crohn's disease, when they finally got the crohn's under control, then her epstein barr decided to flare. From what her doctor said, this happened because of the stress on her body from the crohn's disease, which makes perfect sense, to us. Her doctor says the only thing you can do is get as much rest as you can and hope for the best. It can take months for the fatigue to go away. This girl is a senior, with graduation in just a week or so. She has been dealing with this for about 4 months now.

I think the best advice is to get as much rest as you can, try not to overdo. I too, worry about this. I had mono at 14, and the eptein barr virus stays doormant in your system for the rest of your life, and can flare at any time, it will always show up in your bloodwork. My number stays around 9, hers was around 1000.

What happened to your friend sounds similar to what I think happened to me. I was dx'd with Celiac and did great for a few months then felt horrible, achy legs, waking up feeling hungover, can't sleep and completely fatigued within an hour of waking up. I hope your friends daughter can get through her graduation fine, it is such a great yet stressful time for a senior. Maybe she can rest over the summer.

hey,

I am sorry. That is too bad. I had mono at 15. Years later my mom had a resurgance of EBV. It was bad for her. She hurt and was exhausted. She couldn't sleep well either. I ask her what she did. The only thing I remember is she was on an anti-viral medication for a while. She pulled through though.

Good luck

I wonder what kind of anti-viral she took? My ND told me to take something, but it has been discontinued so I have a call into her for another suggestion.

I take Isocort for my adrenals. It is a natural product. You can find it online.

I will check it out - thank you! Do you think it makes a difference? Does it help with fatigue or sleeping better?

Link to comment
Share on other sites
loraleena Contributor

It helps with fatigue some.

Link to comment
Share on other sites
Joni63 Collaborator

She called back and told me to take Goto Kola. Anyone have experience with this herb?

I'm hesitant to try the isocort. My cortisol levels haven't been tested yet. I think we are doing that in a month if I don't feel any better with my vitamin/mineral supplements and the Goto Kola.

Is exercise ok when you have reactivated EBV and Adrenal Fatigue? My ND said only yoga or walking, but I'm a runner and need to get back to running about 2 miles a day.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confusedks Enthusiast

I have both...EBV and adrenal fatigue. They are secondary problems to my Lyme disease. My EBV numbers are so high the lab results come back saying "high"...with no numbers! :o I take Valtrex and Olive Leaf Extract for it. My Dr isn't too concerned about the EBV because like I said, they are secondary to my Lyme.

Adrenal fatigue...I'm not taking anything for it right now. Other than immune boosters and a product called "NT Factor Energy" which I don't think specifically helps AF, but it does help with the energy problems.

Link to comment
Share on other sites
Joni63 Collaborator

OMGosh Kassandra. You and I have so many similar problems. Is your DHEA level high? She didn't test all my hormones yet, but that is coming soon if I don't feel better in a month or so. She said my Epstein-barr virus numbers were really high. I had some really bad symptoms in May - terrible leg aches, headaches, waking up feeling hungover, horrible fatigue, etc. At this point the only thing that remains is the fatigue and lack of energy.

I get the results Monday morning of all my vitamin/mineral levels so I'll know if my D and serum ferritin are rising. I'm hopeful since I am feeling a little better.

Is NT factor energy available OTC?

Link to comment
Share on other sites
fedora Enthusiast

hey,

My mom couldn't remember what she took, but she took it for a month and it worked.

good luck. That is too bad you are having these problems

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,091
    • Most Online (within 30 mins)
      7,748

    Grammar B
    Newest Member
    Grammar B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...