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alisaT

Help! Pain In Left Side When Lying Down

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I wake up at night feeling like I can't breathe if I lay on my left side. This is what sent me to the ER in the first place prior to my celiac dignosis. I've been assured my heart is FINE. I've been gluten-free, seriously, since the fall. My Doc checked my pancreas, but blood tests came back neg. The pain is diabilatating. Has someone else had this? What has helped? :(

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I wake up at night feeling like I can't breathe if I lay on my left side. This is what sent me to the ER in the first place prior to my celiac dignosis. I've been assured my heart is FINE. I've been gluten-free, seriously, since the fall. My Doc checked my pancreas, but blood tests came back neg. The pain is diabilatating. Has someone else had this? What has helped? :(

Pain in my back and in my front lower left abdominon would wake me up at night it was so bad. I went through that for about a year on and off. 1 Cat Scan, 2 ultrasounds and a whole host of bloodwork eventually led me to Celiacs. Once I quit eating Gluten the pain disappeared. That day actually. That was 12 days ago and with the exception of eating some hidden gluten and experiencing some pain from that I am doing great.

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I wake up at night feeling like I can't breathe if I lay on my left side. This is what sent me to the ER in the first place prior to my celiac dignosis. I've been assured my heart is FINE. I've been gluten-free, seriously, since the fall. My Doc checked my pancreas, but blood tests came back neg. The pain is diabilatating. Has someone else had this? What has helped? :(

I'd ask them about your gall bladder, they might have looked at that allready, or not. That caused problems with my father's lungs from the infection of the dead gall bladder inside him.


Dx 3/23/07

Gluten free 3/27/07

Intolerant:

Gluten

MSG

Allergies:

Ragweed

Honeydew

Cantalope

Nickel (jewelry)

Dx'd Lymphocytic Colitis 6/16/08

I am a bad silly-yak!

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It was the pain in my left side and constant anemia that drove me to see a doctor in the first place. Of course, the doctor had no idea what was wrong and didn't order the right tests. After two years, I self-diagnosed for celiac and became well again. The pain in the side took quite a while to go away, and it comes back if I get inadvertently glutened. I do remember how I was unable to sleep on my left side because of how intense the pain was.

If you are being extremely careful about avoiding gluten, this pain should go away soon. If not, I would examine whether or not you are getting a small amount of gluten in your diet.

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Are you on any medications? I don't have this exact problem but I was prescribed a beta-blocker for a fainting problem a month ago and since I started it I haven't been comfortable sleeping on my left and that's my usual side, plus I had tenderness in the area around or under my left shoulder blade. It's hard to describe how I felt but it was very uncomfortable and my breathing was also affected by the meds. That plus an allergic reaction to the halter monitor sticky pads ended me up with pain to the right side of my left breast which ended me up in the ER. They said that some kind of lung disease? infection? something could be relieved by putting pressure on the same spot in the back, which is what I had been doing to get relief. Lung x-ray and all heart tests turned up fine. Nobody's even acknowledged or tried to explain why I had the tenderness and difficulty sleeping on that side. Now that I have stopped the meds, it's gone.


Me: GLUTEN-FREE 7/06, multiple food allergies, T2 DIABETES DX 8/08, LADA-Latent Autoimmune Diabetes in Adults, Who knew food allergies could trigger an autoimmune attack on the pancreas?! 1/11 Re-DX T1 DM, pos. DQ2 Celiac gene test 9/11

Son: ADHD '06,

neg. CELIAC PANEL 5/07

ALLERGY: "positive" blood and skin tests to wheat, which triggers his eczema '08

ENTEROLAB testing: elevated Fecal Anti-tissue Transglutaminase IgA Dec. '08

Gluten-free-Feb. '09

other food allergies

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I had a similar problem, my whole left side from my head down would ache so bad i couldn't stand it. At night it seemed to get worse, since I've been gluten free it has seemed to go away. It came back once or twice but i think that was from hidden gluten. :( wish i could offer some more help, but i would just check for hidden gluten

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