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IMWalt

gluten-free And Caffeine

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OK. I can live without gluten for the most part. I am getting used to the gluten-free bread I bake, and I like the gluten-free beer, Redbridge.

One thing I have noticed since going gluten-free is that caffeine really seems to affect me more. I have one cup of coffee now and I get a headache and the jitters. I really enjoy coffee, and can get by with decaf, but I prefer regular most of the time.

Is this a normal response? I never drank a lot of coffee, but I could have a couple cups with no problem.

Thanks

Walt


Daughter diagnosed via positve blood work 09/2005 - she had negative biopsy

Sister Dx via bloodwork

Nephew has daughter with celiac disease Dx'd at age 6 months

Me - negative blood and biopsy, but HUGE dietary response. No question in my mind.

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try doing a search on 'caffeine' on this forum

I seem to remember someone citing a study that celiacs tend to be more sensitive to caffeine than the average population

I have always been a bit caffeine sensitive, and since going gluten-free am slightly more so. But since I wasn't drinking coffee anyway, mostly just means avoiding chocolate (don't worry, test that one out every few weeks to see where I'm at!) and checking at restaurants whether there's any caffeine source in a sauce (one restaurant soaked the lentils for their soup in coffee before cooking them).

I know many people seem to have stages of healing, 6mos and 2yrs get mentioned a lot, so perhaps at some future point your caffeine tolerance will increase again??


gluten-free (except unintentionally) from 7 Dec 2007

3 gluten-free cousins and counting (1 gold standard, 1 pos blood/no endo, 1 self/dietary diagnosed)

suspect mother was celiac (also, cousin suspects my mother's twin is celiac)

Feb 08 testing 'normal range' for gluten antibodies, IBD and food allergies

Staying off gluten - dietary reaction is compelling for me!

"Hi, I'm the gluten-free diner at your table."

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Caffene has always given me a headache before and after gluten free. I only eat a little bit of chocolate once in awhile. You might consider living caffine free. I never have to track down a cup of coffee because I need a caffine fix.


Phyllis

Gluten Free - 30 years

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I got way more sensitive after going gluten free. Even to green tea. I use to drink some caffeine every day. I had to give it up. Now I can have a little green tea when I need a boost in the morning after food.


gluten . . . Kiss my grits!

pork and beef free- 1994

wheat free or wheat light- 2003

gluten free- January 2008

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Oh please....say it ain't so! LOL

You took away my bread, my beer, my pasta, my pizza....NOT MY COFFEE!!!!

I sure hope I don't get more sensitive to caffeine, I love my coffee, though I have to admit to cutting way back to 1-2 cups a day from my former 5!


Sue

positive Biopsy diagnosis May 2008

allergic to strawberries and grapes

Mom to peanut allergy kid.

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Oh please....say it ain't so! LOL

You took away my bread, my beer, my pasta, my pizza....NOT MY COFFEE!!!!

I sure hope I don't get more sensitive to caffeine, I love my coffee, though I have to admit to cutting way back to 1-2 cups a day from my former 5!

HAHA. I agree. I have never been a big coffee drinker, and in fact have usually gone a couple days a week without coffee just so I did not get addicted to it. However, I used to be able to have a few cups with no ill effects. Now a couple cups makes me feel sick all day.

As for beer, try Redbridge. I'm geting to really like it.

For pizza, I really like the crust recipe in Annalise Robert's baking cookbook. I make a few at a time and freeze them. I give some to my daughter and even her non-celiac disease roomates like them.

Walt


Daughter diagnosed via positve blood work 09/2005 - she had negative biopsy

Sister Dx via bloodwork

Nephew has daughter with celiac disease Dx'd at age 6 months

Me - negative blood and biopsy, but HUGE dietary response. No question in my mind.

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I got way more sensitive after going gluten free. Even to green tea. I use to drink some caffeine every day. I had to give it up. Now I can have a little green tea when I need a boost in the morning after food.

Darn. That must be me as well. My head hurts, I get all jittery, and it lasts all day. I used to get jittery if I drank too much caffeine, but the headaches are new.


Daughter diagnosed via positve blood work 09/2005 - she had negative biopsy

Sister Dx via bloodwork

Nephew has daughter with celiac disease Dx'd at age 6 months

Me - negative blood and biopsy, but HUGE dietary response. No question in my mind.

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Oh this is a good sign! It means you're actually absorbing your food again. I had the same thing happen and it sucked. But now I milk down my coffee so it's really half milk and half coffee and that seems to be an okay amount for me.


Gluten Free since 2003

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Guest sru_gal_8504

being a college student i need caffinee lol. cant live without. i j ust do it anyway.

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I drink like 3 sodas a day...which is so unhealthy I know...but I can't eat so many other things and I'll be danged if I'm going to give up my soda too.....I don't have reactions to it though that I've noticed, I know that a lot of people are more sensitive than myself though... i don't know how people can do it, living caffiene free...I'd be a walking zombie

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I never could drink coffee like anyone else, and I figured that one out very young, at 18. The celiac thing just happened to me this year, and I am still undiagnosed. But coffee is delicious and the bigger burden for me will be no more coffee ice cream, or ice cream of any sort (just for now, I hope). I've always been more of a tea drinker.


-First overt but unrecognized symptoms after reintroducing dairy and wheat to my diet after a 2-month absence, 2002.

-First appearance of chronic aphthous stomatiti, 2002.

-Giardia infection and treatment with albenzole, 2005.

-Persistent symptoms and treated for Giardia again with Flagyl twice (without testing), 2006.

-Dx milk allergy from a blood test, April 2007.

-Also presented for anemia, high white blood cell count, and candida in the same test. Dx IBS, April 2007.

-Response to diet and self-diagnosis through overwhelming symptoms and possible genetic link (hypothyroidism, fibromyalgia runs in the family), April 2008

-Currently learning to go gluten-free (April 2008), and coping with new sensitivities.

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