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theceliachusband

Oh Canada!

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Another Canadian, from Vancouver. Nice to see there's a few of us here :)

I've been haunting the local Choices recently but found that Famous Foods on Kingsway has slightly better prices for most products plus they have a seriously WIDE range of flours!!!

I have positive dietary reaction but negative bloodwork, my GP wont go to a referral for the biopsy without the positive bloodwork :( problem is I had already reduced my gluten intake for about a week or so b4 the blood test (I told him, he said take it that day anyway) and had been relatively gluten lite, by accident really, for the past couple of years.

I'm going to go the Enterolab route at this point and then take the results to my GP to discuss...any other Canucks have a similar experience with their GP?

My blood work tested negative both times I was tested. So, I was not sent for an endo test. I was so fed up and very sick for such a long time, that going gluten-free was a last choice for me and I had no expectations since nothing else had worked. I had a positive dietary response within the first month of being gluten-free. I saw my GP at that point and she was so happy with the complete change in my health that she said to not eat gluten again. As far as she was concerned I had gluten-intolerance and possibly celiac disease but did not think it would be worth the health risks to eat gluten again just for the endo test.


Tapioca intolerant

First cousin dx'd with Celiac Disease

Grandmother died of malnutrition b/c everything made her sick... sounds like celiac to me.

Gluten-free since June 2005

Dx with IBS February 2005

Blood tests both negative (or inconclusive?) for celiac (in 2002 and 2004)

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Northern BC here (where it's a balmy -36C this am)...

I had a similar experience with my GP - I'm a pretty fit & otherwise healthy person & I think she just decided I couldn't have celiacs...but I call myself one. I had a negative blood test too, a negative H Pylori test and, while she did send me for a scope, she sent me for one to look at damage from reflux. I was very upset when I asked the guy who did the scope if there was gluten damage and he said he hadn't been looking for any, only reflux damage. :angry: And, as is common, I was limiting my gluten when I had the blood test and had to wait several months for the scope, during which I eliminated it altogether since I didn't know any better.

I fit the profile though - I have had "IBS" most of my life and some joint pain issues with no cause. I had a wicked virus that left me unable to eat for over a week and took me a year to totally recover from. It was during this year that I started eliminating gluten - due to headaches, stomaches, joint pain, fatigue, reflux, etc. It all fits the celiac diagnosis route - a big stress and the body's inability to cope with gluten. Now that I am gluten-free I feel much better, less pain, less stomach issues and little reflux (though I take Zantac). Unfortunately, I am also way more sensitive to gluten.

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Thank you both for the feed back! I'm finding this can be a very confusing condition so it's nice to hear from others :)


Enterolab:

Fecal Anti-gliadin IgA 11 Units (Normal Range <10 Units)

Fecal Anti-tissue Transglutaminase IgA 18 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal Anti-casein (cow

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Another Canadian here...it's actually my hubby that's been diagnosed with Celiac but I'm the shopper and cook, so he gets me to do all the research and then report back to him.

I'm very happy to have found this forum. It's been a great help to us.

Mrs_Mama

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I am from Toronto :)

If there are others from here, would like to know where are the places to shop for gluten free foods.


May 2009: IgG abnormal (not tested for full panel)

Sept 2009: Negative blood tests (I was on and off gluten)

Sept 21 2009: gluten free

Sept 21 2011: gluten free for 2 full years

Dec 2012: chronic fatigue and leaky gut.

Feb 2012: IgG reactions to almond, amaranth, sesame, sunflower, dairy, eggs, beans and of course gluten.

March 2012: modified GAPS diet.

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