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GlutenGuy36

By GlutenGuy36
in Coping with Celiac Disease

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GlutenGuy36 Contributor
GlutenGuy36
Posted

Have alot of neck pain at the base of the skull? Right where your skull and spine meet? Mine has been killing me. Some days are far worse than others. I have alot of issues with Celiac Disease and even though I have been gluten-free for 4 months with maybe one or two accidental "glutenings", I am still having that pain in my neck and it feels like my glands under my jaw and arms are swollen from time to time. I just had Ct scans on chest, abdomen and pelvis and they were all good so I didn't know if maybe my immune system is causing the glands to be swollen? I don't have a cold and I have had tons of CBCs done. All my blood work was fine. :)

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jerseyangel Proficient
jerseyangel
Posted

I had pain at the base of my skull for months before I was diagnosed and now only when accidently glutened. It was awful--like I'd been hit in the back of the head with a 2x4. It's actually one of the first things I feel the morning after I get a gluten reaction.

It was a while before it went away completely--hopefully as you are gluten-free longer and get the hang of the diet it'll subside

I also have diagnosed TMJ Disfunction (by ENT), and mine is always worse when glutened--has to be a tie-in there somewhere :D

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      Celiac flare years after diagnosis

      By trents · Posted

      Unless gluten exposure is happening on a regular basis, it is doubtful that blood antibodies would show up elevated in testing. It takes time for them to build up to detectable levels.
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      Celiac flare years after diagnosis

      By Russ H · Posted

      HI Nancy, In your first post, you said that you were diagnosed by biopsy and blood test - this is what I was referring to: the blood test is for antibodies that are made during active disease. After a period on a strictly gluten-free diet, the antibodies return to low level. It is a good way of checking for accidental exposure if symptoms persist. If you are reacting to foods that don't contain gluten, you may be reacting to something else. Alternatively, a condition called SIBO is common in people with coeliac disease, where there is an overgrowth of bacteria in the small intestine. This can be tested for with a simple breath test. The main treatment is with a course of antibiotic. Small Intestinal Bacterial Overgrowth (SIBO)
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      Celiac flare years after diagnosis

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      Celiac flare years after diagnosis

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      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
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