Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Can Anyone Help?

GFqueen17

By GFqueen17
in Coping with Celiac Disease

Recommended Posts

GFqueen17 Contributor
GFqueen17
Posted

I'm not sure whats going on....the other day I randomly, out of the blue, had terrible D....and ever since then ive had terrible C! before all this happened everything was completely fine and normal! whats going on?!

(I know its a weird question but there seems to be alot of people on this forum who know alot about these issues)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ang1e0251 Contributor
ang1e0251
Posted

Did you start a new bottle of medication or supplements? Have been close to a remodeling project or craft project? Buy new makeup or personal care products? Did you eat a new gluten-free processed food product?

All of these could have hidden gluten or lactose that could be affecting you. Have you changed your coffee or tea? Think back and let us know. Someone will have thoughts for you.

Lori T. Newbie
Lori T.
Posted
I'm not sure whats going on....the other day I randomly, out of the blue, had terrible D....and ever since then ive had terrible C! before all this happened everything was completely fine and normal! whats going on?!

(I know its a weird question but there seems to be alot of people on this forum who know alot about these issues)

Did you eat out??? Big problems start there. Even the most innocent looking/prepared food could have been contaminated, even in your own home if you share it with non-gfs. My son has mixed serving spoons from their spaghetti to mine and for me that is enough to do it. Still very sensitive. If I eat something contaminated, I get sort of the same thing. Will get the diarrhea almost within the hour and then go for hours on and off. Then the next day, feel lousy and be constipated. They say some toothpastes can be non-gluten-free. Don't know about the accuracy of this one because when I started the diet, checked everything that went in or on my body by calling the companies. Sounds rough, but found some offenders in my stuff and had to toss it. Good luck. Let us know how you are doing and if you found the offender.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Russ H
      - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      5

      Celiac flare years after diagnosis

      HI Nancy, In your first post, you said that you were diagnosed by biopsy and blood test - this is what I was referring to: the blood test is for antibodies that are made during active disease. After a period on a strictly gluten-free diet, the antibodies return to low level. It is a good way of checking for accidental exposure if symptoms persist. If...
    2. Scott Adams
      0

      New Study Finds 1 in 10 Celiac Patients May Have Additional Autoimmune Disorders (+Video)

    3. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr. https://my.clevelandclinic.org/health/diseases/morgellons-disease
    4. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      5

      Celiac flare years after diagnosis

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    5. trents
      - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      5

      Celiac flare years after diagnosis

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,048
    • Most Online (within 30 mins)
      10,442
    nvdw
    Newest Member
    nvdw
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Russ H
      Celiac flare years after diagnosis

      By Russ H · Posted

      HI Nancy, In your first post, you said that you were diagnosed by biopsy and blood test - this is what I was referring to: the blood test is for antibodies that are made during active disease. After a period on a strictly gluten-free diet, the antibodies return to low level. It is a good way of checking for accidental exposure if symptoms persist. If you are reacting to foods that don't contain gluten, you may be reacting to something else. Alternatively, a condition called SIBO is common in people with coeliac disease, where there is an overgrowth of bacteria in the small intestine. This can be tested for with a simple breath test. The main treatment is with a course of antibiotic. Small Intestinal Bacterial Overgrowth (SIBO)
    • Aretaeus Cappadocia
      Skin issues

      By Aretaeus Cappadocia · Posted

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      Celiac flare years after diagnosis

      By trents · Posted

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
×
×
  • Create New...