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TeachK71

Pelvic Pain

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Hi!

It has almost been two years since I have been diagnosed with Celiac Disease. Last November I woke up and had about one hour of off and on pelvic pain that was very serious (post period, too early to be ovulation). Went to the doctor that day, they did a pevlic exam and urine test and said if it happened again to come back. Almost four months went by and I have been having some pain, but nothing serious.

Just two weeks ago had another morning bout of severe pain. Went to the doctor, she thought it might be a cyst on the ovary and just last week I had a transvaginal and transabdominal ultrasound. I found out today both came back completely normal. They even did some STD tests to rule that out, but my husband and I are monogomous.

So, she said if it returns again, they would bring me back in and check out some gastointestinal stuff and maybe a colonoscopy...which I just had in APril of 2003 when I was diagnosed with celiac.

Could this pelvic pain be a related disorder to celiac disease?

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I have that too! I never even thought about it being related to celiac disease. I had it a few months ago for two or three months in a row, then it subsided. I had it again a few days ago. Very sharp and painful. I thought maybe I was having ovarian cysts again but I'm on the pill to help those anyway so maybe that's not what it is....

Sorry I can't help, just wanted you to know you're not alone!

Ann

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Me three. Similar story, had a doctor check me for cysts, said he didn't think I had any, felt around, etc. No scans or xrays. Was on the pill at the time and he changed it to another kind. Well, I have been off the pill for 4 years now (it never helped in that department) and I still get this from time to time. Still told no cysts. My mom has one that comes and goes.

I dunno. I do have several hormone problems, low progesterone, slow liver, high estrogen. I figure it's related to that. I also figure at this point that maybe all my food sensitivites have given my liver too much to do so that is why I have hormone problems and as I continue on the right diet this may all level out, eventually. I hope. :)

Not alone, don't know if it's related though...

Stephanie

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Hmm. I also have had recurring pelvic pain that can incapacitate me. The pain also includes my "undercarriage" and is just miserable. It is a feeling of swelling in addition to pain. This might only happen a few times in the course of a year. It always seemed to come out of the blue, but I noticed after a while, that it usually follows a time of physical exertion, as in lifting or pushing something that evidently is too heavy for me. I had wondered if it was a prolapsed uterus, since after the birth of my second child at age 32, I had that condition, although at the time, I didn't have any of this pain. Medication set me right again, but the doctor told me that one day, I might have to have a hysterectomy. I never considered Celiac.

Does this ring a bell for any of you?

Paula

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I have that pain too. I have had multiple ultrasounds to check for cysts and problems. All of them negative. I was told 10 years ago that my uterus was tipped the wrong direction, but none of my doctors since seem to think my uterus is in the wrong position. They tell me it isn't prolapsed, but I swear it feels like it is falling out half the time! I also had problems with stress incontinence. My ureter was sagging (not an actual prolapsed bladder) and I had bladder repair surgery 6 weeks ago to repair that. The incontinence is gone, but I was hoping that would help with the pain, it hasn't. I don't always have the severe pain every month, but at least once every 2-3 months, and I get these sharp stabbing pains in my cervix and near my ovaries fairly often. I worry about it, but my pap tests come back normal and the doctors keep telling me I'm fine. So why do I have these pains! I am thinking about going to a different GYN to see if they can fix me. Maybe I'd feel better if I did have a hysterectomy, but I'm so young that they haven't even considered it yet. And evidently I'm not "sick" enough to warrant the surgery... :( That worries me. How much pain do I have to be in before the doctors will sit up and take notice. I guess I need to become a complainer and run to them for every ache and pain that I have.

God bless,

Mariann

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I'm not sure if my 'pelvic pain' is similar to what all of you have described, but when I get dairy or soy contamination, I experience what feels like severe menstrual cramps. However, I went through menopause 8 years ago and all my gynecological exams are normal. During my last 'contamination' episode I experienced "waves" of that cramping pain. I never figured out what I had eaten, but decided that's as close as I'll ever come to labor pains. :o I ONLY experience those menstrual cramping like pains when I have dairy, soy (or occasionally gluten) contamination.

BURDEE

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I get cramping in my lower abdomen too when I get gluten. I used to get it from dairy, but not anymore. It feels different that the pelvic pain I get. It feels more like my intestines are so swollen and tender, and the cramping seems to come on more when I have the increased amount of gas from the gluten contamination. I can tell the difference between the two, but they both hurt!

God bless,

Mariann

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