Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need A Little Guidance


DinaB

Recommended Posts

DinaB Apprentice

So, I haven't posted here in a while because I've been trying to get my life back on track battling so many food allergies and intolerances. However, I do have a question and I am very confused. Most recently on a business trip I was glutened. I knew it instantly. Although I didn't get the gastro symptoms that I normally would get, I got a few new ones...blisters around my lips and a horrible itchy rash on my elbows that lasted for a week. The itching was so bad I didn't know what to do. While I am only gluten intolerant, is it possible to get DH without being Celiac?

Very confused.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient
So, I haven't posted here in a while because I've been trying to get my life back on track battling so many food allergies and intolerances. However, I do have a question and I am very confused. Most recently on a business trip I was glutened. I knew it instantly. Although I didn't get the gastro symptoms that I normally would get, I got a few new ones...blisters around my lips and a horrible itchy rash on my elbows that lasted for a week. The itching was so bad I didn't know what to do. While I am only gluten intolerant, is it possible to get DH without being Celiac?

Very confused.

Hi DinaB:

There has recently been a thread running here on the difference between gluten intolerance and celiac which you may well find interesting. A quick google should bring it up.

From what I have read here, if you do ln fact have DH then you have a positive celiac diagnosis. It is quite possible that your original testing, whether blood or biopsy, or both, was a false negative; many are. If it is really important to you I would suggest retesting. Also, if you have a biopsy taken immediately adjacent to the itchy lesion, DH can be diagnosed and therefore celiac. However, the biopsy must be taken while the lesion is active and so often it is hard to get an immediate appointment. A lot of doctors don't understand this.

Good luck with whatever you decide to do. While your itching sounds like DH it could also be eczema but this could also follow from a celiac diagnosis.

DinaB Apprentice
Hi DinaB:

There has recently been a thread running here on the difference between gluten intolerance and celiac which you may well find interesting. A quick google should bring it up.

From what I have read here, if you do ln fact have DH then you have a positive celiac diagnosis. It is quite possible that your original testing, whether blood or biopsy, or both, was a false negative; many are. If it is really important to you I would suggest retesting. Also, if you have a biopsy taken immediately adjacent to the itchy lesion, DH can be diagnosed and therefore celiac. However, the biopsy must be taken while the lesion is active and so often it is hard to get an immediate appointment. A lot of doctors don't understand this.

Good luck with whatever you decide to do. While your itching sounds like DH it could also be eczema but this could also follow from a celiac diagnosis.

Thank you so much for your quick response. I've had to blood tests, two endoscopies, and a gene test. The gene test was taken at a celiac center in NJ and was told that if that came back negative I would NEVER have Celiacs. I read so much conflicting information, though. I don't understand if I something that contains Wheat/Gluten I get blisters above my top lip, itchy on inside of thighs, arms and now new rash/blisters on elbows. I even had to change all of my lipsticks. This just doesn't make sense.

RiceGuy Collaborator

I just read that some additional genes have recently been associated with Celiac, so it may be that you might still be able to become Celiac even while not having the genes you were tested for.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,950
    • Most Online (within 30 mins)
      7,748

    Malik
    Newest Member
    Malik
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • MommaBear82
      Yes, it certainly can! My daughter has a reaction from just playing with Playdough. She doesn't get GI symptoms at first, just psychological mostly. It can get really bad. It's like night/day behavior. My daughter is eight, but started showing signs around 6.
    • cookiesyum
      The easiest way to remember the difference between the cholesterol types is HDL;   H=healthy equals healthy (omega 3, 7, limit 6 & 9 MCFA'S =Medium Chain Fatty Acids. 3= coconut oil, 7= sunflower oil, avocado. The higher your HDL the healthier you are & less likely to experience strokes, clogged arteries Etc. You can even use cold expeller pressed coconut oil on your skin and that is the best kind of coconut oil to eat as well. You want your HDL much higher than your LDL, it will help you stay healthy.   LDL;    L=Lousy. Meat fats, processed fats.  The higher your LDL is the more likely you will have strokes, clogged artery is, heart disease, fatty liver.   Then there's lipids... they are the culprit to be blamed for many heart attacks and things like that they are very small round particles that transport fats. You can have a low overall cholesterol reading and most of it be healthy cholesterol and have a ton of lipids and there's nothing you can do to change the lipid count. High number of lipids is very dangerous.   I'm going on statins is extremely dangerous if you ask me it's just completely my opinion, because I have seen so many of my elderly friends bleed to death internally because of the statins. I mean you wouldn't take all the oil and grease out of your car or a motorcycle and then try to drive it that way would you? You see that's what statins do they remove all of your bodies fats and it doesn't matter whether it's healthy fats or a lousy fats. It removes all of them and then your body can't function properly. You have to have fats to keep your skin supple and to stay warm. Your body also needs fats to digest & process certain nutrients, amino acids & vitamins.   Your brain is composed of fat so is that something you really want to remove with a pill every morning and night?   The thing about statins is that they also make the blood vessels and capillaries permeable. So this is how my friends who were on cardiac medication for a long time and statins ended up bleeding internally to death.   If you want to make sure that your heart is healthy, take odorless garlic at night and magnesium, vitamin K & calcium.     
    • pdm1981
      It's also a symptom of EPI.
    • Wheatwacked
      Yes.  Proportionately a small piece to a toddler is like a whole slice to an adult.  This is an important clue.  She was doing well, accidentally ate gluten and later the old behavior returned. I remember reading posts here of people reacting to a kiss from someone who had just eaten gluten. Recent research indicates that 40% of first degree relatives of someone with Celiac have undiagnosed Celiac Disease.  Father, mother, siblings.  There is a whole list of symtoms of "silent celiac".  Here is an article of symptoms possibly mistaken for other causes than Celiac Disease.  When I finally stopped gluten at 63 years old, I counted 19 things that improved, including lifelong mouthbreathing.  I never smelled bad things, so I as a kid, I learned to respond to the other kid's response in order to not seem weird. I really recommend you pursue testing for all the family if you can, and the whole family following GFD.  It is difficult at first, but the benefits will be worth it.  
    • Visionaerie
      I get these but where we are, they are called chicken potstickers. I would obviously suggest that it is the ginger in the product that is causing a stimulative digestive effect! So you might want to do what I do, just cook one of them with the rest of your meal so you don't have the same effect. I love the Feel Good products but they are on the expensive side. (I also drink Reed's ginger brew so in general, ginger is a friend of mine..when delivered at the right dose). Hope this helps and have a warm healthy week!
×
×
  • Create New...