Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Im Worried About My Mom


HelpinOhio

Recommended Posts

HelpinOhio Explorer

Im 18 years old and suspect that I have Celiac.

About a year ago my mom told me that she was diagnosed with Celiac Disease when she was younger. Possibly around 25 years ago. Her main problem was just the stereotypical Celiac Disease symptoms, Diarrhea whenever she ate gluten and stomach pains.

When my mom got older she started eating gluten again because it didnt bother her stomach anymore. Supposedly her doctor said she can stop with the gluten free diet if it doesnt cause any symptoms. Based on what I have learned about Celiac Disease, this doctor was very stupid for saying that. I heard that your supposed to go gluten free for life. Even if it doesnt cause any noticeable symptoms it can still damage your intestine and increase your risk of getting cancer a lot. My mom has problems with her tooth enamel, headaches, dry skin, her hair barely grows. She lives a normal life but is not completely together mentally. She also has hypoglycemia and thyroid disease. I believe that all of that is caused or worsened by her eating gluten. Im worried about her. Personally I think that she should not be eating any gluten at all.

What are your thoughts on this?

and what should I do?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Your right, she does need to go back on the diet. A lot of the issues she is having could well be related to celiac. It used to be thought that people outgrew celiac but that is not the case. While you can't force her back on the diet you can try and educate her. Can you encourage her to come here? There is also a lot out there on the web. The NIH has a lot info. As does the celiac sprue association and the homepage here. Here are a couple links-

Celiac Sprue Association=

Open Original Shared Link

National Institute of Health Celiac Awareness Campaign-

Open Original Shared Link

  • 1 month later...
Gfresh404 Enthusiast

Ravenwood is right, your mom really needs to go back on the diet. Also, explain to your mother that just because she is not experiencing any GI symptoms does not mean that damage is not being done. Many people with Celiac Disease are actually asymptomatic or only have minor annoyances.

She may not ever experience any symptoms but she very well could develop a serious complication from untreated Celiac such as cancer.

lovegrov Collaborator

You can't quit the diet when you have celiac. Celiac is for life.

richard

psawyer Proficient

Celiac disease requires a completely gluten-free diet for life. It does not "go away." You can not "grow out of it." If a person has celiac disease, gluten causes damage to the body, even if observable symptoms do not present themselves.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Nicbent35's topic in Related Issues & Disorders
      8

      3 year old gluten intolerance?

    2. - Visionaerie replied to ARSTONE's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Feel Good gluten free chicken soup dumplings

    3. - ognam posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutening symptom? oily stool

    4. - plumbago replied to plumbago's topic in Related Issues & Disorders
      9

      Anyone else with very high HDL?

    5. - ognam replied to Tyoung's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increasing symptoms after going gluten free


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,944
    • Most Online (within 30 mins)
      7,748

    Visionaerie
    Newest Member
    Visionaerie
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Proportionately a small piece to a toddler is like a whole slice to an adult.  This is an important clue.  She was doing well, accidentally ate gluten and later the old behavior returned. I remember reading posts here of people reacting to a kiss from someone who had just eaten gluten. Recent research indicates that 40% of first degree relatives of someone with Celiac have undiagnosed Celiac Disease.  Father, mother, siblings.  There is a whole list of symtoms of "silent celiac".  Here is an article of symptoms possibly mistaken for other causes than Celiac Disease.  When I finally stopped gluten at 63 years old, I counted 19 things that improved, including lifelong mouthbreathing.  I never smelled bad things, so I as a kid, I learned to respond to the other kid's response in order to not seem weird. I really recommend you pursue testing for all the family if you can, and the whole family following GFD.  It is difficult at first, but the benefits will be worth it.  
    • Visionaerie
      I get these but where we are, they are called chicken potstickers. I would obviously suggest that it is the ginger in the product that is causing a stimulative digestive effect! So you might want to do what I do, just cook one of them with the rest of your meal so you don't have the same effect. I love the Feel Good products but they are on the expensive side. (I also drink Reed's ginger brew so in general, ginger is a friend of mine..when delivered at the right dose). Hope this helps and have a warm healthy week!
    • ognam
      Has anyone had Steatorrhea (oily/fatty poop) as a temporary glutening symptom or should I be concerned I've introduced chronic gluten somewhere (like in meds)? I haven't gotten Steatorrhea since before I went gluten free. However, I moved in the past few weeks and haven't been as careful - I've eaten at restauraunts with cross contamination but only experienced minor symptoms like headache. The past week, I ate only gluten free food at home except I went to Red Robin and got fries (told them gluten-free; allergy). The next day I had Steatorrhea and the day after that.   I know it's a symptom of malabsorption so I was wondering if it was the kind of thing that could be caused by one event or if it was due to a more chronic issue. Of course I will speak to a GI but I recently moved and need to find one.   Thank you for any info
    • plumbago
      A relative has opened another door for me on this issue -- the possibility of menopause raising HDL. Most studies suggest that menopause decreases HDL-C, however, one study found that often it's increased. "Surprisingly, HDL cholesterol was higher (p < 0.001) in postmenopausal women by 11%. Further, the number of women who had low HDL cholesterol was higher in pre vs. postmenopausal women. The range of ages were 26–49 years for pre-menopausal and 51–74 years for postmenopausal women. "This interesting finding has also been observed by other investigators. It is possible that the observed increase in HDL-C in postmenopausal women could be due to a protective mechanism to counterbalance the deleterious effects of biomarkers associated with menopause. However, further studies are needed to confirm this theory. And to the point raised earlier about functionality: "...some patients with elevated HDL-C concentrations could remain at risk for coronary events if HDL is not functional and some authors have suggested that this could be the case for menopausal women." Postmenopausal Women Have Higher HDL and Decreased Incidence of Low HDL than Premenopausal Women with Metabolic Syndrome. By no means to I think this is definitive, rather food for thought.
    • ognam
      Yes, lots of delicious things have barley malt. It also doesn't include rye. And there are a number of grains commonly cross contaminated such as oats.   Additionally, wheat allergies are different from gluten allergies as wheat allergies are a reaction to a wheat protein. So something *could* contain wheat gluten without causing a wheat allergic response (though realistically,  I don't know how likely that is to occur)
×
×
  • Create New...