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Does This Sound Like A Gluten Symptom?

loxleynew

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loxleynew Apprentice
loxleynew
Posted

Pre-gluten free I never got diarrhea and cramping. So i'm not sure if this is a new symptom? I ate a burger from a restaurant on sunday for lunch, w/o the bun of course and was on their gluten free menu. HOWEVER, to my surprise 3 hours later I was in bad cramps. I thought this would go away and went to the gym. Started getting extremely fatigued in the gym after doing basically the equivalent of lifting 15lb weights and then the diarrhea came. 2-3 hours later I felt fine except tired.

Does this sound like the burger might've had gluten in it? Ive just never had those symptoms before and want to know if I should stop going to that restaurant.

Thanks!

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ang1e0251 Contributor
ang1e0251
Posted

It sure sounds like one. That's similar to the way I react. It could be CC or maybe they slapped ii onto a bun in the kitchen then remembered and just removed the bun. The restaurant next to my flower shop always makes burgers for me but the last time I had a mild reaction. I've never had that before. I don't know what was different.

gaingus Rookie
gaingus
Posted

I had the same thing happen to me at In-N-Out. I ordered the burger protien style and animal style. Later I had the same thing happen that you explained. It either came from the burger accidentally touching the bun, or CC from the dressing that they use. I found out that the dressing isn't in a pump or a squeeze style bottle. So they just keep dipping the same spatula in the dressing and slapping it on the buns.

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    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possibly way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Coeliac or not coeliac

      By CC90 · Posted

      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
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      By Wheatwacked · Posted

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    • trents
      Coeliac or not coeliac

      By trents · Posted

      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
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