Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


  • You've found your Celiac Tribe! Join our like-minded, private community and share your story, get encouragement and connect with others.

    💬

    • Sign In
    • Sign Up

Archived

This topic is now archived and is closed to further replies.

lindalee

Juror Questionnaire

Recommended Posts

For this post my definition of "outsiders" is a non-celiac who knows nothing about celiac and gluten-free diet.

I think the problem is as such:

Celiacs without on-going health-related problems are able to

participate in normal activities, as well they should.

The "outsiders" view this as, "Oh, so celiacs are able to participate."

But when a celiac, who isn't doing well, claims illness due to ongoing celiac issues, the "outsiders" view this as perhaps "false" because they happen to know celiacs who are perfectly OK with normal activities. This causes the "outsiders" to cast doubt on celiac disease as possibly causing additional health problems which would keep you from doing normal activities.

To me, it's too complex for a yes or a no or just to answer on face value. Every case has to be considered individually.


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

Share this post


Link to post
Share on other sites