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You Should Stop Calling Gluten Intolerance A Disease

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Life is full of individual choices. I don't think what a individual chooses to label themselves, whether diseased or different, should be a subject for argument. No matter what the label all here know the serious repercussions of injesting gluten on our bodies. If one person is more comfortable thinking of themselves as diseased and another is more comfortable thinking of themselves as different then that is their personal choice and both IMHO should be respected.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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You know why this topic irks me? Because we are some darn sick people here with symptoms ranging from annoying to deadly. Non celiacs give so many of us a hard time, saying it's in our heads, it's not as bad as we think it is. Many people on here have been intentionally glutened by friends and family members who didn't take their disease seriously.

So when I come on here I don't appreciate being told that the disease I have that has made my life HELL for so many years is not really a disease. I have an autoimmune reaction to a food which destroys parts of my body. OF COURSE IT'S a DISEASE! I don't have gluten INTOLERANCE I have celiac DISEASE.

Ditto--to me, this is a disease. It's what the doctor wrote on my chart and it's something that I live with every day. It took years to figure out that I had this, and as I write this I'm in the middle of yet another uncomfortable bout of nausea and have been popping Immodium because I had the gaull to travel and gamble on <gasp> eating out at a well known restaurant that has a gluten-free menu. Again, yes, it's always a roll of the dice. But it gets very old--and it's forever.

This is not a normal way to live--and not all Celiacs get "complete reversal of symptoms" on The Gluten Free Diet. Celiac Disease puts us at greater risk for other autoimmune disease, and ups the liklihood of other food intolerances.

Just my two cents.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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