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Can Anyone Shine A Little Light Please

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Hello I have been unwell since I entered my forties I have been diagnosed with IBS anaemia ostoeporosis, they thought I had chrons as I was terribly ill with constant loose stools, skin rashes and mal apsortion , I had a york test and it revealed I was very strongly intolerant to Casein I was quite a bit better after cutting Casien out and the hospital have done blood tests for celiac but nothing has shown up .... however I have been very poorly with digestive problems over the years and was admitted to hospital recently with digestive problems ..... but they still don't know what the problem is, I have relatives with Celiac on my mums side,

However tonight I really looked at my skin rash with a light and a magnifying glass and it looks exactly like a celiac DH rash .... the rash is mainly on the lower legs and the lesions seem to spring up from nowhere they really sting and get extremely itchy, there is always a little shiny watery crater in the middle and the marks takes ages to clear up , it leaves behind a darker skin coloured mark which then turn white over time as though the pigment has gone away , I have lots of little white marks on my skin where this rash has been , can anyone help shine a little light on what I should do next I feel poorly all the time now .

Thank you in advance .

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Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):

Yes, this sounds like a textbook description of dermatitis herpetiformis, or the skin form of celiac. Make sure when they take the biopsy that they take it from the skin next to the lesion, and not from the lesion itself. The antibodies they are looking for will be found in the adjacent tissue.


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson


Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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