Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

A Little Worried...


Joni63

Recommended Posts

Joni63 Collaborator

Hello,

I started training for a sprint triathlon last year after 3 years being dx'd celiac. I knew I had an issue with dairy and caffiene, but never totally eliminated them. In the last 2 weeks I am having a lot more stomach pain, gas and bloating. I'm currently going through a lot of tests and am getting rescoped. Am starting an elimination diet tomorrow thanks to suggestions on another thread.

I ran my first 5k last Sept., then an 8k in Nov, and am signed up to do an 11k in April and my first sprint tri also in April. I was not able to do anything all week and this threw off my training schedule. I seem to go through good phases and then crashes. Wondering if I got myself in too deep as I'm also signed up for a 1/2 marathon in Oct(I actually won free entry for this one) and have some other races I plan on doing. I did see a nutritionist and had my vitamin levels checked. Everything was good, but still waiting on the serum ferritin result which was just done late thursday and has been low before. Not sure how much I can train if I don't start feeling better.

Anyone else training for events like this? Do you push through your bad times? How do you cope?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tictax707 Apprentice

Hi... I train for half and full ironmans. You definitely want to get a handle on the foods you can and can't have, but if you can train at all I would bet that you could do both races in april. There are bound to be ups and downs, but as long as you are really good about listening to your body (rest when you don't feel like training) I think it will work out. But, if you continue to feel bad you might want to postpone the events in April. When I was first diagnosed I was training for a marathon, and had to postpone that one for sure. The elimination diet should help - and hopefully you can at least improve in the next few weeks and feel up to training.

But bottom line still - if you don't feel up to training because you are tired or your stomach is upset - don't. The races can wait. Why make yourself miserable? Hope this helps...

Joni63 Collaborator

Thx Tictax! I admire you for being able to do full and half marathons - way to go! I'm curious - did you train for them before you were dx'd? How long have you done them?

I had always done some form of exercise, but this is pushing my body past what I have ever done. The longest I ran so far was the 8k. I did run 4 miles last week trying to build up to 7 for the 11k. I know I can't overtrain and increase my running by more than 10% each week (a rule I do abide by) because I will end up wiped out for weeks. I spaced it out so that after the two in April, my races are every other month in case I get wiped out. My goal is just to finish...I know I will never place in anything and I'm doing this just to have a goal to train for ,lol!

I also have a history of low serum ferritin...it was 7 when dx'd with Celiac 3 1/2 yrs ago. I went to a nutritionist and she put me on really high doseages of iron...blood checked and my iron levels were all high. I did feel so good at that time though! Now I have been off all iron supplements for almost a year and have been exercising pretty hard in that year. I just had blood drawn thursday to test it. I kind of think it may have dropped again as I don't absorb D either and have to take 5,000 units a day just to keep my level at 36! This could be another issue if it went low again.

Do you have any issues with vitamins absorption? Do you supplement with iron since your training must be quite intense?

tictax707 Apprentice

Why thank you! :) So, the good news is that I started the endurance distance stuff *after* I was diagnosed. I was diagnosed when I was in training for my first marathon ever. So I had to put that off for a year to focus on the diet, and then I went back and did the marathon. I switched to tris in 2006 and slowly worked my way from sprint/Olympic distance to half/full distance. I did my first ironman in 2009 and did another one last year. So really, not long. I too, do these things just to finish. I am not fast compared to the rest of the world. I love the training - the race is just a cool thing to do at the end. ;) You sound very smart about your training (sticking to the 10% rule) and that will serve you well!!

The funny thing about me is that one of the reasons that it took so long for me to get diagnosed is that although my villi were flat I had no vitamin deficiencies. (yeah, I know. Makes *no* sense). I do have vitamin D deficiency but i am working on that. It's hard to tell if it's from the celiac or the training, or maybe a combo of both. I tried the vit D supplements with tons and tons of vit D and they all gave me really bad gas, so I went back to my old calcium/vit D combo supplement. We'll check my levels in another 6 months or so to see if anything has changed...

Anyway - I think it's fantastic that you are getting into the races and tris. I do hope you like them. :) Which 1/2 marathon are you doing??

Joni63 Collaborator

Your giving me such hope! :) I really want to be able to keep up my training and love it so far. I am not fast either and I'm only 5' 1 1/2" tall so I can't keep up with some of those lean, tall athletes. I'm just happy to be seeing improvement in myself and I joined a wonderful women's group that is so active and supportive.

I know so many Celiacs have other deficiencies, but I only had D and serum ferritin. It's so wierd how everyone is affected so differently. Hopefully your old vitamin will make your levels increase. I know that can be frustrating! And if it works don't stop taking it because it will probably go back down as mine did. Just keep getting it checked periodically.

The 1/2 is the Atlantic City Marathon. I actually won free entry into it so that was my deciding factor to do it. I knew I could handle the 10k and wanted to push a litle harder so the 1/2 was perfect! How could I turn that down? :)

ElseB Contributor

I ran two marathons before I was diagnosed, but post diagnosis have scaled back to half marathons. I just don't have the same energy I had before diagnosis, nor do I feel consistently well enough to get through the training (weird, I know - I should feel better than I did before, but alas I don't!) Halfs are manageable. If I'm having a bad week, I might skip my runs or just go for short slow ones. I figure something is always better than nothing. More than pizza, more than beer, I miss the post race bagels!!!!

tictax707 Apprentice

Your giving me such hope! :) I really want to be able to keep up my training and love it so far. I am not fast either and I'm only 5' 1 1/2" tall so I can't keep up with some of those lean, tall athletes. I'm just happy to be seeing improvement in myself and I joined a wonderful women's group that is so active and supportive.

I know so many Celiacs have other deficiencies, but I only had D and serum ferritin. It's so wierd how everyone is affected so differently. Hopefully your old vitamin will make your levels increase. I know that can be frustrating! And if it works don't stop taking it because it will probably go back down as mine did. Just keep getting it checked periodically.

The 1/2 is the Atlantic City Marathon. I actually won free entry into it so that was my deciding factor to do it. I knew I could handle the 10k and wanted to push a litle harder so the 1/2 was perfect! How could I turn that down? :)

Yes - there is definitely hope! :) I'm 5'4" so I don't have long legs either. I think that is super cool that you joined a women's group for support. Congrats on the free entry! I will say it's fate helping you along. ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Joni63 Collaborator

Yes - there is definitely hope! :) I'm 5'4" so I don't have long legs either. I think that is super cool that you joined a women's group for support. Congrats on the free entry! I will say it's fate helping you along. ;)

LOL Helpme - post race bagels! I'd go for the beer right about now! Have you ever had your iron or vitamin levels checked? Low iron can really wipe you out. It's not part of the CBC, they are separate tests your doctor has to order. Just found out I have that problem again.

I also have diverticulitus!

But I'm doing my races if I have to go at a snail's pace! :rolleyes:

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442

    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...